CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C12870	Echocardiogram pulmonic stenosis degree status	Assessment with echocardiography of whether there is stenosis of the pulmonary valve of the heart	Supplemental	Echocardiogram II	False	Stroke	Stroke
C14025	Vasospasm Lindegaard ratio value	Indicates vasospasm lindegaard ratio result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C01703	Lab panel category	Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Stroke	Stroke
C07108	Center for Epidemiologic Studies-Depression Scale (CES-D) - sadness indicator	Indicates how often the subject felt sad in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
C54912	Endovascular surgery procedure duration	Duration in minutes of the endovascular surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58866	Mental resilience stress management tool adopt intervention other text	The free-text field related to 'Mental resilience stress management tool adopt intervention type' specifying other text. If the participant/subject received counseling to adopt tools for mental resilience and stress management, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C53896	Stroop Color and Word Test (SCW) - Word raw score	Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
C13905	Imaging contrast agent method type	Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C58995	Medication other current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken other medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58727	Occupation primary prior event other status text	The free-text field to capture other status indicating the participant's/subject's primary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
C58786	Stroke surgical therapeutic procedure other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other text. Type of surgical or therapeutic procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C18778	ECG ventricular arrhythmia other text	The free-text field related to 'ECG ventricular arrhythmia type' specifying other text. Type of ventricular arrythmia, if any, apparent on the electrocardiogram (EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
C58843	Findings other present indicator	Indicates if Other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C00721	Family history medical condition indicator	Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event	Supplemental	Family History	False	Stroke	Stroke
C54764	Imaging aneurysm parent branch vessel occlusion indicator	Indicator of whether a parent or branch vessel of the aneurysm exhibits occlusion, as determined from imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
C14256	World Federation of Neurological Surgeons (WFNS) - grading system subarachnoid hemorrhage scale	World Federation of Neurological Surgeons (WFNS) Grading System for Subarachnoid Hemorrhage Scale	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
C13842	Hemorrhagic transformation present indicator	Indicates presence of Hemorrhagic Transformation	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C14036	Breath-holding index result	Indicates Breath-holding index (BHI) result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C10896	Pregnancy test performed indicator	Indicator as to whether or not a pregnancy test was performed on the participant/subject	Supplemental	Laboratory Tests	False	Stroke	Stroke
C18906	Stroke symptom pediatric-specific other text	The free-text field related to 'Stroke symptom pediatric-specific type' specifying other text	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
C14289	Adjunctive treatment type	Describe the type(s) of adjunctive treatments	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
C53904	Stroop Color and Word Test (SCW) - Color word raw score	Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
C14379	Surgery post-operative medical complication type	The type of event or complication(s) affecting the general medical health or functionality that occurred after surgery	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.