CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1542
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01541 Weight measurement

Measurement of participant's/subject's weight

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C13910 Imaging plaque severity grade

Indicates plaque severity grade

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58951 Anticoagulant agent stroke discharge prescribe other text

The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C14630 Anticoagulant agent in hospital type

Type(s) of anticoagulant agents received during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Perfusion and Penumbral Imaging Stroke Stroke
C14258 Perinatal stroke type

Indicates the type of clinical stroke suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C18985 Antiplatelet agent in hospital other text

The free-text field related to 'Antiplatelet agent in hospital type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C55746 Specimen surround dry ice shipment indicator

The indicator related to whether the specimen was surrounded by dry ice for shipping

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C58958 Lipid lower agent stroke discharge prescribe type

Type(s) of lipid lowering agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C54889 Intervention surgical status

Status of surgical intervention

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C58751 Specimen expiration date

Date when the specimen will expire, if applicable

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C13879 Imaging modality vessel imaging angiography type

Indicates imaging modality for vessel imaging angiography

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
Displaying 151 - 175 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.