CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1542
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01541 Weight measurement

Measurement of participant's/subject's weight

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C13910 Imaging plaque severity grade

Indicates plaque severity grade

 Supplemental-Highly Recommended Vessel Carotid Ultrasound False Stroke Stroke
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C58951 Anticoagulant agent stroke discharge prescribe other text

The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C00723 APGAR ten minute score

Score of a newborn recorded at ten minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

 Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True Stroke Stroke
C11065 Gravida maternal value

Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

 Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health True Stroke Stroke
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

 Supplemental-Highly Recommended Glasgow Coma Scale (GCS) False Stroke Stroke
C14630 Anticoagulant agent in hospital type

Type(s) of anticoagulant agents received during the acute hospital stay

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

 Supplemental-Highly Recommended Perfusion and Penumbral Imaging False Stroke Stroke
C14258 Perinatal stroke type

Indicates the type of clinical stroke suffered by the neonate

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C18985 Antiplatelet agent in hospital other text

The free-text field related to 'Antiplatelet agent in hospital type', specifying other text

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C55746 Specimen surround dry ice shipment indicator

The indicator related to whether the specimen was surrounded by dry ice for shipping

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C01705 Lab test name

Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C01582 Height unit of measure

Unit of measure for the height numerical value for subject/participant

 Supplemental-Highly Recommended Vital Signs False Stroke Stroke
C58958 Lipid lower agent stroke discharge prescribe type

Type(s) of lipid lowering agents prescribed at discharge following stroke

 Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications False Stroke Stroke
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Stroke Stroke
C54889 Intervention surgical status

Status of surgical intervention

 Supplemental-Highly Recommended SAH Surgical/Procedural Interventions False Stroke Stroke
C58751 Specimen expiration date

Date when the specimen will expire, if applicable

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C11083 Delivery extraction type

Type of extraction used to assist with the delivery of the participant/subject

 Supplemental-Highly Recommended Pregnancy and Perinatal History False Stroke Stroke
C07438 Patient Health Questionnaire (PHQ) - Movement speech impairment score

Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

 Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale True Stroke Stroke
C13879 Imaging modality vessel imaging angiography type

Indicates imaging modality for vessel imaging angiography

 Supplemental-Highly Recommended Vessel Imaging Angiography False Stroke Stroke
Displaying 151 - 175 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.