CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Sub Domain Name

CRF Name

Displaying 151 - 175 of 1886

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C13458	Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-production scale	The scale for language deficit - production (including dysarthria) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)	Supplemental-Highly Recommended	Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Infant Version (Infants Term Birth to Two Years)	True	Stroke	Stroke
C20529	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category	Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
C58955	Antihypertensive agent stroke discharge prescribe other text	The free-text field related to 'Antihypertensive agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C54695	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health fatigue rate scale	Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
C14397	IV tPA initiated date and time	If Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, indicates the date and time IV tPA was initiated at this hospital or ED (time of bolus administration)	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C58740	Specimen collection grossly bloody indicator	Indicate whether the specimen collection was grossly bloody	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C10558	Delivery or pregnancy termination last date and time	Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C07438	Patient Health Questionnaire (PHQ) - Movement speech impairment score	Score of how much the subject has been suffering with moving or speaking too slowly in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
C11079	Neonate delivery route type	Route of delivery of the neonate	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
C54748	Specimen baseline collection indicator	The indicator related to baseline specimen being collected	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C55340	Specimen selective inhibitor used indicator	Indicator of whether or not selective inhibitors were used on the sample	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C13191	Walking speed value	Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
C13238	National Institutes of Health Stroke Scale (NIHSS) - Motor arm score	Motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS)	Supplemental-Highly Recommended	NIH Stroke Scale (NIHSS)	True	Stroke	Stroke
C01539	Temperature measurement	Measurement of the participant's/subject's body temperature	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
C13909	Imaging plaque surface type	Indicates plaque surface type	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C04814	Residence type	Type of residence where the participant/subject is currently living	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
C13461	Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-comprehension description text	Description of the language comprehension deficits observed in the participant/subject based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003)	Supplemental-Highly Recommended	Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older)	True	Stroke	Stroke
C13246	National Institutes of Health Stroke Scale (NIHSS) Supplemental - intervention present type	Were any of the following present during the NIHSS assessment?	Supplemental-Highly Recommended	NIH Stroke Scale (NIHSS)	True	Stroke	Stroke
C13917	Imaging end diastolic velocity measurement	Indicates end diastolic velocity (cm/sec)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.