CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1426 - 1450 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14220 Clinical stroke tissue-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58953 Antiplatelet agent stroke discharge prescribe other text

The free-text field related to 'Antiplatelet agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58720 Collection time mortality status indicator

Indicate whether the participant/subject is living or deceased at the time of specimen collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58738 CSF/serum simultaneous collection indicator

Indicate whether the CSF and serum samples were collected simultaneously

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55325 Specimen convalescent collected indicator

Indicator of whether or not convalescent samples were collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58936 Drug or substance current illicit or recreational use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58871 Imaging signal indicator

Indicates signal on the carotid ultrasound

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C58753 Specimen analysis date and time

Date (and time if applicable and known) when the specimen was analyzed

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C07435 Patient Health Questionnaire (PHQ) - Abnormal diet score

Score of how much the subject has been bothered by abnormal diet/appetite in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C11078 Delivery mode type

Type of delivery mode of the neonate

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Stroke Stroke
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C14006 Imaging stenosis percentage value

Indicates stenosis percentage value

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58745 Specimen cooler than room temperature indicator

Indicate whether the specimen was kept cooler than room temperature

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54694 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C13191 Walking speed value

Comfortable walking speed is assessed in meters per second (m/sec) and is measured using the time to complete the central 4 meters of a 6 meter line

Supplemental-Highly Recommended Walking Speed Stroke Stroke
C10559 Spontaneous miscarriage count

Value representing the number of times the participant/subject has had miscarriages or spontaneous abortions, including all trimesters

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C57923 Blood collection tube additive type

Type of additives used in blood collection tube

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14221 Clinical stroke time-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C58954 Antihypertensive agent stroke discharge prescribe type

Type(s) of antihypertensive agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
Displaying 1426 - 1450 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.