CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1401 - 1425 of 1542
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07375 PTSD Checklist Civilian (PCL-C) - Memories indicator

Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C07383 PTSD Checklist Civilian (PCL-C) - Loss interest indicator

Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C07391 PTSD Checklist Civilian (PCL-C) - Jumpy indicator

Indicator of whether the subject experiences feeling jumpy or easily startled, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C55352 Microdialysate source type

The free-text field to specify the type of microdialysate specimen source

Exploratory Biospecimen Collection and Processing Stroke Stroke
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Exploratory Demographics Stroke Stroke
C13514 Consciousness findings result

Assess consciousness using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C52619 Medical history atrial fibrillation other cause indicator

The indicator related to other cause of atrial fibrillation

Exploratory Medical History Stroke Stroke
C55353 Microdialysate composition type text

The free-text field to specify the composition of microdialysate specimen

Exploratory Biospecimen Collection and Processing Stroke Stroke
C52695 Cancer diagnosis type

The element related to the type of cancer diagnosis the participant/subject has or had

Exploratory Medical History Stroke Stroke
C54772 Imaging aneurysm wall shear stress minimum measurement

Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C54994 Potency enhancing drug current former use type

Type of potency-enhancing drug formerly or currently taken by the subject/participant

Exploratory Prior and Concomitant Medications Stroke Stroke
C54917 Unruptured intracranial aneurysm treatment reason

Reason for treatment of unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C52706 Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator

The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)

Exploratory Medical History Stroke Stroke
C58890 Imaging aneurysm kinetic energy mean unit of measure

The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07376 PTSD Checklist Civilian (PCL-C) - Dream indicator

Indicator of whether the subject experiences repeated, disturbing dreams of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C58931 Menopause treatment type

Type of treatment the participant/subject is receiving or has received for menopause

Exploratory Medical History Stroke Stroke
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

Exploratory Rehabilitation Therapies Stroke Stroke
C07384 PTSD Checklist Civilian (PCL-C) - Distant indicator

Indicator of whether the subject experiences feeling distant or cut off from other people, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C07426 PTSD Checklist Civilian (PCL-C) - Total score

A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C52535 Ethnicity pertinent intracranial aneurysm type

Ethnicity type pertinent to unruptured intracranial aneurysms the participant/subject most closely identifies with

Exploratory Demographics Stroke Stroke
C13515 Orientation findings result

Assess orientation using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C14199 Stroke complication of medical/ surgical procedure or therapy likelihood type

Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)

Exploratory Hospital Arrival/Admission Stroke Stroke
Displaying 1401 - 1425 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.