CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2380-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1150-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Stroke	Stroke
F2838-C14013	C14013	Intracranial stenosis mean velocity criterion value	Indicates intracranial stenosis mean velocity criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07101	C07101	Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator	Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F1152-C58928	C58928	Medical history carotid endarterectomy recent date	Date of most recent carotid endarterectomy performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F2436-C54919	C54919	Unruptured intracranial aneurysm management noncompliance text	The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2832-C13211	C13211	Generalized Anxiety Disorder (GAD-7) - feeling afraid scale	Scale describing how often participant/subject feels afraid as if something awful might happen, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07378	C07378	PTSD Checklist Civilian (PCL-C) - Very Upset indicator	Indicator of whether the subject experiences feeling very upset when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1153-C52569	C52569	Brain aneurysm family member relationship text	Specify the relationship(s) that a family member with brain aneurysm(s) has with the subject/participant	Exploratory	Family History	False	Stroke	Stroke
F2567-C07386	C07386	PTSD Checklist Civilian (PCL-C) - Future indicator	Indicator of whether the subject experiences feeling as if your future will somehow be cut short, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1182-C58884	C58884	Supportive medical equipment indicator	Indicates if the participant/ subject was provided with any supportive medical equipment	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55348	C55348	Device model number	The model number for the device used	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C55361	C55361	Microdialysis cerebral novel target analyte indicator	The indicator related to whether there were any novel target analytes in the cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54771	C54771	Imaging aneurysm wall shear stress maximum measurement	Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C54996	C54996	Potency enhancing drug current former use age start value	Age in years at which the subject/participant began taking the specified former or current potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1150-C58782	C58782	Race expanded maternal category	Category of race(s) or region(s) the participant/subject's mother most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F1151-C19482	C19482	Paid work hour week count	The number of hours per week in paid work	Exploratory	Social Status	False	Stroke	Stroke
F2827-C54736	C54736	Contralateral stenocclusive vessel disease indicator	Indicator for the presence of contralateral stenoocclusive vessel disease	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1169-C55362	C55362	Multiplex platform normalization technique text	Free-text field to describe normalization techniques for multiplex platforms	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54772	C54772	Imaging aneurysm wall shear stress minimum measurement	Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C58890	C58890	Imaging aneurysm kinetic energy mean unit of measure	The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1152-C58929	C58929	Medical history carotid artery stenting recent date	Date of most recent carotid artery stenting performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F2832-C13212	C13212	Generalized Anxiety Disorder (GAD-7) - total score	Total score for the GAD-7 used for office coding, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07379	C07379	PTSD Checklist Civilian (PCL-C) - Physical reaction indicator	Indicator of whether the subject experiences having physical reactions (e.g., heart pounding, trouble breathing, sweating) when something reminded you of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1153-C52570	C52570	Subarachnoid hemorrhage family member relationship text	Specify the relationship(s) that a family member with subarachnoid hemorrhage has with the subject/participant	Exploratory	Family History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.