CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F0936-C10772	C10772	Echocardiogram left atrial antero - posterior dimension z-score	Z-score calculated for the left atrial antero - posterior dimension measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F2828-C54247	C54247	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1152-C52617	C52617	Head trauma result type	The element related to the result of head trauma	Supplemental	Medical History	False	Stroke	Stroke
F1172-C13865	C13865	Imaging magnetic resonance based identification perfusion defect volume measurement	Indicates MR based identification of perfusion defect volume	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1158-C14207	C14207	Pre-hospital stroke identification screen indicator	Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1203-C13472	C13472	Stroke Adjudication Worksheet - WHO definition indicator	The indicator of whether the event is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1174-C58881	C58881	Expanded Thrombolysis in Cerebral Infarction (eTICI) perfusion scale grade	Indicates Expanded Thrombolysis in Cerebral Infarction (eTICI) perfusion scale grade indicator	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14626	C14626	Sophia delivery mode type	Mother's mode of delivery of the neonate. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1154-C00705	C00705	Alcohol current use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1179-C14401	C14401	Intra-arterial (IA) procedure initiated indicator	Indicates whether an Intra-arterial (IA) procedure was initiated for participant/ subject at this hospital	Supplemental-Highly Recommended	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F2168-C20527	C20527	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category	Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F1154-C58938	C58938	Drug or substance illicit or recreational use other text	The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1169-C58747	C58747	Specimen freezing date and time	Date (and time if applicable and known) when the specimen was frozen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58913	C58913	Perinatal arterial ischemic stroke type	Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1173-C13907	C13907	Imaging B-mode finding result	Indicates B-mode finding	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1169-C58873	C58873	Blood collection method category	Indicate the method of blood collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1155-C11062	C11062	Maternal delivery age value	Mother's age at the time she gave birth to the participant/subject	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1169-C54746	C54746	Specimen not collected reason	The reason the specimen sample was excluded	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1178-C58956	C58956	Anti diabetic agent stroke discharge prescribe type	Type(s) of anti-diabetic agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1158-C04814	C04814	Residence type	Type of residence where the participant/subject is currently living	Supplemental-Highly Recommended	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1169-C55003	C55003	Specimen centrifugation revolutions per minute value	The value related to revoluntions per minute in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1152-C15629	C15629	Postpartum indicator	Whether the participant/subject is currently in her postpartum phase, after pregnancy phase, of pregnancy	Supplemental-Highly Recommended	Medical History	False	Stroke	Stroke
F1169-C55338	C55338	Specimen freeze thaw cycle prior biomarker assay number	The number of freeze thaw cycles the sample underwent prior to the biomarker assay	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.