CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1171-C13823	C13823	Spot sign maximum axial dimension measurement	The maximum axial dimention related to "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58796	C58796	Ventricular drain place type	Type of ventricular drainage placed	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54055	C54055	D-KEFS Color-Word Interference Test (CWIT) -Condition 2 Raw Score	Raw score of word reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C14539	C14539	Cardiac output measurement	The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM)	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13929	C13929	Intima media thickness (IMT) edge detection algorithm indicator	Indicates intima media thickness (IMT) edge detection algorithm use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58965	C58965	Medication anticoagulant past week type	Type of anticoagulant medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13770	C13770	Imaging acute lesion count	Indicates acute lesion count	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1157-C18820	C18820	Developmental and academic history other text	The free-text field related to 'Developmental and academic history type' specifying other text. Specific aspects of the participant's/subject's pre-morbid developmental status and academic function	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1151-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Stroke	Stroke
F2838-C18903	C18903	Vasomotor response (VMR) vessel anatomic other text	The free-text field related to 'Vasomotor response (VMR) vessel anatomic site' specifying other text. Indicates vasomotor response (VMR) vessel type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54727	C54727	Aneurysm width measurement	Measurement of the width of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13957	C13957	High intensity transient signal hits intensity value	Indicates high intensity transient signal hits intensity value (dB)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1181-C14274	C14274	Smoking cessation treatment indicator	For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54063	C54063	Delis-Kaplan Executive Function System (DKEFS) - Completion time contrast Type	Type of primary contrast measures for completion times, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1167-C01700	C01700	Specimen accession number	Number with which the specimen taken for the tests being reported was accessioned to the record storage facility	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1206-C58973	C58973	Medication diabetic past week other text	The free-text field related to 'Medication diabetic past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13788	C13788	Imaging chronic infarct anatomic site	Anatomic site of the chronic infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F1158-C14202	C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C52880	C52880	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B follow trail complete time	The element related to the time it takes the participant/subject to follow the trail in Part B as part of the Trail Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2380-C10742	C10742	Echocardiogram mitral valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14006	C14006	Imaging stenosis percentage value	Indicates stenosis percentage value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.