CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1174-C13894	C13894	Imaging vessel angiography overall assessment type	Indicates vessel angiography overall assessment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58994	C58994	Medication implant estrogen contraceptive current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken implanted, estrogen-containing contraceptives	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C58725	C58725	Occupation paid prior event code	Code corresponding to type of paid occupation prior to the event as defined by the International Labor Organization/International Standard Classification of Occupations (ILO/ISCO)	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13814	C13814	Intraparenchymal hematoma MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58785	C58785	Stroke neurosurgical procedure non vascular other text	The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other non-vascular neurosurgical procedure text. Type of non-vascular neurosurgical procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1305-C14703	C14703	Berg Balance Scale (BBS) - turn around scale	The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F1165-C14428	C14428	Waist circumference measurement	A measurement of the body circumference at the level of the waist. It should be the smallest circumference of the natural waist, usually just above the belly button	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13922	C13922	Imaging common carotid artery (CCA) externalization indicator	Indicates common carotid artery (CCA) externalization	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C58810	C58810	Pre-hospital large vessel occlusion indicator	Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C13762	C13762	Imaging infarcts one vascular territory indicator	Indicates acute infarct(s) are all in one vascular territory	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C58829	C58829	Diagnosis principal discharge stroke TIA related ICD-10-CM code status	Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1157-C05130	C05130	Therapy or rehabilitation type	Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Prior Functional Status	False	Stroke	Stroke
F2838-C14034	C14034	Vasomotor response (VMR) vessel anatomic site	Indicates vasomotor response (VMR) vessel type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2370-C53902	C53902	Stroop Color and Word Test (SCW) - Color residual score	Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2838-C13946	C13946	Imaging spectrum angle correction indicator	Indicates spectrum angle correction	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C02486	C02486	Traumatic aneurysm volume measurement	Measured volume of the traumatic aneurysm in mm (calculated from length of involved vessel)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2824-C58733	C58733	Occupation secondary after event status	The status indicating the participant's/subject's secondary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13824	C13824	Spot sign maximum attenuation score	The maximum attenuation score for "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58793	C58793	Carotid revascularization procedure other text	The free-text field related to 'Carotid revascularization procedure type' specifying other text. Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54052	C54052	D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 180 Duration	Duration of total time to for condition 3 and 4, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C14540	C14540	Pulmonary artery wedge pressure measurement	Pulmonary artery wedge pressure (PAWP) or pulmonary capillary wedge pressure (PCWP) is the intravascular pressure as measured by a catheter wedged into the distal pulmonary artery. It is used to measure indirectly the mean left atrial pressure	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13930	C13930	Intima media thickness (IMT) timing type	Indicates intima media thickness (IMT) timing type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58962	C58962	Medication antiplatelet past week type	Type of antiplatelet medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C14192	C14192	Symptom awaken discover indicator	Indicate if symptoms were discovered shortly upon awakening from sleep	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.