CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1158-C58812	C58812	Pre-hospital severity scale not documented status	Indicates if a severity scale was not documented	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14008	C14008	Imaging window quality category	Indicates window quality category	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07096	C07096	Center for Epidemiologic Studies-Depression Scale (CES-D) - depressed indicator	Indicates how often the subject felt depressed in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54899	C54899	Blood transfusion surgery procedure indicator	Indicator of whether blood transfusion was performed during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1164-C00023	C00023	Hand preference type	Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C17480	C17480	Diabetes mellitus complications type	Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Stroke	Stroke
F1181-C58853	C58853	Dietary intervention type	If the participant/subject received dietary recommendations, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1157-C11084	C11084	Developmental and academic history type	Specific aspects of the participant's/subject's pre-morbid developmental status and academic function	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1174-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58983	C58983	Medication calcium-channel blocker past week other text	The free-text field related to 'Medication calcium-channel blocker past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13803	C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1150-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	Demographics	False	Stroke	Stroke
F1179-C60362	C60362	IV thrombolytic agent type other text	The free-text field related to 'IV thrombolytic agent type' specifying other text.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1171-C02437	C02437	Imaging modality type	Type of radiologic study performed on the participant	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2827-C58813	C58813	Aneurysm formation de novo indicator	Indicator for the presence of de novo formation of aneurysm since last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1165-C14542	C14542	Systemic vascular resistance unit of measure	Units used to measure the systemic vascular resistance	Supplemental	Vital Signs	False	Stroke	Stroke
F2380-C12865	C12865	Echocardiogram left atrial volume measurement	Measurement of the left atrial volume obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1159-C14195	C14195	Hospital point of origin for admission or visit type	Documents whether the patient originated from the community or was transferred from one hospital to the study hospital	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F2838-C14016	C14016	High intensity transient signal hits start time	Indicates high intensity transient signal hits start time	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07104	C07104	Center for Epidemiologic Studies-Depression Scale (CES-D) - loneliness indicator	Indicates how often the subject felt lonely in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54907	C54907	Aneurysm treatment endovascular type	Type of endovascular aneurysm treatment	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1152-C52597	C52597	Medical history ischemic stroke range	The element related to the number of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1181-C58862	C58862	Contraceptive hormone replacement treatment counsel indicator	Indicates if counseling relating to contraceptive/hormone replacement treatment was provided at discharge. The intervention can be discussion or use of alternate treatment or approaches	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2838-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13890	C13890	Qureshi angiographic occlusions category	The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.