CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C10770 Echocardiogram left ventricular end diastolic internal dimension z score

Calculated z-score for the left ventricular end - diastolic internal dimension (LVIDd) measured with echocardiography

Supplemental Echocardiogram Stroke Stroke
C01523 Head circumference unit of measure

Unit of measure for the head circumference numerical value

Supplemental Vital Signs Stroke Stroke
C21109 Visit assessment complete type

Type of assessment completed during visit

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C14207 Pre-hospital stroke identification screen indicator

Whether a pre-hospital identification stroke screen was documented by EMS personnel. Pre-hospital stroke identification screens are defined as published validated screening algorithms or those required by state EMS agencies (e.g., LAPSS, CPSS, MASS, etc.)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13470 Stroke Adjudication Worksheet - neuroimaging type

Type of neuro-imaging done for the stroke event

Supplemental Stroke Adjudication Form Stroke Stroke
C58921 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C02483 Traumatic aneurysm findings type

Further describes the traumatic aneurysm

Supplemental Vessel Imaging Angiography Stroke Stroke
C13821 Spot sign positive indicator

The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients

Supplemental Parenchymal Imaging Stroke Stroke
C18701 Imaging modality type other text

The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant

Supplemental Imaging Acquisition Stroke Stroke
C13927 Intima media thickness (IMT) B Mode guided M mode indicator

Indicates intima media thickness (IMT) B mode guided M mode

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13768 Imaging additional vascular result

Indicates additional vascular imaging findings

Supplemental Parenchymal Imaging Stroke Stroke
C12839 Cardiac MRI ventricle end diastolic dimension measurement

Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C54253 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C18409 Glasgow Outcome date and time

Date and Time of Glasgow Outcome Scale

Supplemental Glasgow Outcome Scale (GOS) Stroke Stroke
C18907 Emergency Medical Services (EMS) dispatch type other text

The free-text field related to 'Emergency Medical Services (EMS) dispatch type code' specifying other text. For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13478 Stroke Adjudication Worksheet - stroke TIA other symptoms type

The type of other identified cause(s) of ischemic stroke

Supplemental Stroke Adjudication Form Stroke Stroke
C12874 Echocardiogram pulmonic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography

Supplemental Echocardiogram II Stroke Stroke
C10724 Echocardiogram perform date and time

Date (and time, if applicable and known) the echocardiography was performed

Supplemental Echocardiogram Stroke Stroke
C14215 Diagnosis stroke risk factor new indicator

Were there any new diagnoses (i.e., diagnosed for the first time) related to stroke risk factors during the hospital stay?

Supplemental Hospital Discharge Stroke Stroke
C18666 Body system category other text

The free-text field related to 'Body system category', specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

Supplemental Medical History Stroke Stroke
C13935 Intima media thickness (IMT) max far-wall measurement

Indicates max intima media thickness (IMT) far-wall measurement (mm)

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13785 Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) total score

The total score for the Alberta Stroke Program Early CT score (ASPECTS) middle cerebral artery (MCA)

Supplemental Parenchymal Imaging Stroke Stroke
C12847 Cardiac MRI left ventricle mass index measurement

Measurement of the left ventricle mass as obtained by cardiac magnetic resonance imaging (MRI) divided by the participant's body surface area in square meters

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C14457 Waist circumference unit of measure

Units used to measure the waist circumference

Supplemental Vital Signs Stroke Stroke
C54261 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score

Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
Displaying 1276 - 1300 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.