CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1167-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Stroke	Stroke
F2838-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1305-C14694	C14694	Berg Balance Scale (BBS) - unsupport stand scale	The scale for assessment of standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F2828-C54283	C54283	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1158-C14623	C14623	Los Angeles Motor Scale (LAMS) - grip abnormal type	Type of abnormal grip observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2380-C17961	C17961	Cardiovascular aortic valve stenosis regurgitation comment text	The free-text field detailing the comments of the degree of stenosis and regurgitation for the aortic valve	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1949-C54090	C54090	Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT) - Part B T score	Normalized T score for Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F0936-C10768	C10768	Echocardiogram left ventricular end-diastolic posterior wall thickness z score	Calculated z-score for the left ventricular end - diastolic posterior wall thickness (PWTd) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1151-C00204	C00204	Employment current status	Status of participant/subject's current employment	Supplemental	Social Status	False	Stroke	Stroke
F1152-C52693	C52693	High cholesterol treatment type	Type of treatment for high blood cholesterol	Supplemental	Medical History	False	Stroke	Stroke
F2380-C12866	C12866	Echocardiogram left atrial area measurement	Measurement of the left atrial area from the apical 4-chamber view obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14020	C14020	Sickle cell disease vessel anatomic site	Indicates sickle cell vessel	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07105	C07105	Center for Epidemiologic Studies-Depression Scale (CES-D) - unfriendly indicator	Indicates how often the subject felt that people were unfriendly, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54908	C54908	Blood vessel rupture surgery procedure evidence indicator	Indicator of whether there is evidence of blood vessel rupture during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58863	C58863	Contraceptive hormone replacement treatment intervention type	If the participant/subject received counseling related to contraceptive/hormone replacement treatment, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2838-C13901	C13901	Imaging patient type	Indicates imaging patient type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13892	C13892	Arterial occlusion lesion (AOL) recanalization score	The score as related to recanalization of the primary arterial occlusive lesion (AOL) for DSA. The score as related to recanalization of the modified arterial occlusive lesion (mAOL) for CTA and MRA	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58992	C58992	Medication hormone replacement therapy route other text	The free-text field related to 'Medication hormone replacement therapy route type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C54925	C54925	Work responsibility level previous not resume reason	Reason that the subject/participant has not resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13812	C13812	Intracerebral hemorrhage volume measurement	Indicates intracerebral hemorrhage (ICH) volume (ABC/2)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C21669	C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1173-C13920	C13920	Imaging volume flow rate measurement	Indicates volume flow rate	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C18908	C18908	Diagnosis stroke risk factor new other text	The free-text field related to 'Diagnosis new type' specifying other text. If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors	Supplemental	Hospital Discharge	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.