CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 126 - 150 of 1886
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20526 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Mobility category

Category determining the extent to which the participant has problems with mobility, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L).

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58953 Antiplatelet agent stroke discharge prescribe other text

The free-text field related to 'Antiplatelet agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58720 Collection time mortality status indicator

Indicate whether the participant/subject is living or deceased at the time of specimen collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response.

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C58738 CSF/serum simultaneous collection indicator

Indicate whether the CSF and serum samples were collected simultaneously

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00724 APGAR five minute score

Score of a newborn recorded at five minutes from the time of birth and expressed as a number quantifying the overall physical condition, which includes heart rate, muscle tone, respiratory effort, color, and reflex responsiveness.

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C07436 Patient Health Questionnaire (PHQ) - Feeling failure score

Score of how much the subject has been feeling bad for himself/herself in the past two weeks, as part of the Patient Health Questionnaire (PHQ).

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C01000 Glasgow Coma Scale (GCS) - eye response scale

Glasgow Coma Scale (GCS) - Best eye response (E). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response.

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session.

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58746 Specimen centrifugation date and time

Date (and time if applicable and known) when the specimen was centrifuged

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C11066 Pregnancy or delivery risk factor type

Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C13235 National Institutes of Health Stroke Scale (NIHSS) - Best gaze score

Best gaze assessed using the NIH Stroke Scale (NIHSS)

Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) Stroke Stroke
C01522 Height measurement

Measurement of participant's/subject's height.

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry.

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C54743 Specimen biologic source type

The type of biologic specimen collection source.

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14221 Clinical stroke time-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA.

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C55329 Specimen storage barcode system used indicator

The indicator related to whether a specimen storage barcode system was used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58887 Follow-up care specialist type

Type of specialist the participant/subject received follow-up care from.

Supplemental-Highly Recommended Rehabilitation Therapies Stroke Stroke
C13907 Imaging B-mode finding result

Indicates B-mode finding

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58873 Blood collection method category

Indicate the method of blood collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C18829 Delivery mode induced other text

The free-text field related to 'Delivery mode type' for induced delivery mode. Type of delivery mode of the neonate.

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C13459 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-production description text

Description of the language production deficits observed in the participant/subject based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003).

Supplemental-Highly Recommended Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older) Stroke Stroke
C13244 National Institutes of Health Stroke Scale (NIHSS) - extinction and inattention score

Extinction and inattention assessed using the NIH Stroke Scale (NIHSS)

Supplemental-Highly Recommended NIH Stroke Scale (NIHSS) Stroke Stroke
Displaying 126 - 150 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.