CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 1543
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58944 Alcohol 30 day use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58740 Specimen collection grossly bloody indicator

Indicate whether the specimen collection was grossly bloody

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55329 Specimen storage barcode system used indicator

The indicator related to whether a specimen storage barcode system was used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C58887 Follow-up care specialist type

Type of specialist the participant/subject received follow-up care from

Supplemental-Highly Recommended Rehabilitation Therapies Stroke Stroke
C07432 Patient Health Questionnaire (PHQ) - Sleep impairment score

Score of how much the subject has been bothered with troubling falling/staying asleep or sleeping too much in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C13907 Imaging B-mode finding result

Indicates B-mode finding

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C58873 Blood collection method category

Indicate the method of blood collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C07441 Patient Health Questionnaire (PHQ) - Difficulty performing scale

The scale related to how difficult it is to do work, take care of things at home, or get along with other people for the subject, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C59019 Birth weight measurement

Measurement in kilograms of the weight of a neonate at birth

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54884 Vessel repair anatomic site

Anatomic site of the vessel that was repaired

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C14396 IV tPA initiated status

Indicates whether Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject at your hospital

Supplemental-Highly Recommended Thrombolytic/Reperfusion Therapies Stroke Stroke
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58747 Specimen freezing date and time

Date (and time if applicable and known) when the specimen was frozen

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C11078 Delivery mode type

Type of delivery mode of the neonate

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C00714 Behavioral history assessment date and time

Date (and time, if applicable and known) the participant/subject behavioral history was taken

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58426 Biomarker specimen collected aliquot number

The number of aliquots made for specimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54746 Specimen not collected reason

The reason the specimen sample was excluded

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58937 Drug or substance illicit or recreational use category

Category of illegal or recreational drugs or substances, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, in large amounts, or for recreational purposes

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58956 Anti diabetic agent stroke discharge prescribe type

Type(s) of anti-diabetic agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C55003 Specimen centrifugation revolutions per minute value

The value related to revoluntions per minute in a centrifuge

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
Displaying 126 - 150 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.