CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 126 - 150 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54761 Wall opposition stent flow diverter quality grade

Grade of wall opposition quality for stents or flow diverters

 Exploratory Vessel Imaging Angiography False Stroke Stroke
C07426 PTSD Checklist Civilian (PCL-C) - Total score

A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C55359 Microdialysis cerebral analyte lactate measurement

The value of lactate in in the cerebral microdialysis analyte

 Exploratory Biospecimen Collection and Processing False Stroke Stroke
C54769 Imaging aneurysm vortex coreline length measurement

Measurement of the vortex coreline length of the aneurysm, as computed from imaging

 Exploratory Vessel Imaging Angiography False Stroke Stroke
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

 Exploratory Social Status False Stroke Stroke
C13518 Upper limb tone findings result

Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C10543 Cancer head or neck radiation treatment indicator

Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation

 Exploratory Medical History False Stroke Stroke
C14123 Country of residence name

Country where the participant/subject currently lives

 Exploratory Demographics False Stroke Stroke
C58816 Frontal lobe function status

Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)

 Exploratory Physical/Neurological Exam False Stroke Stroke
C54918 Unruptured intracranial aneurysm management compliance indicator

Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)

 Exploratory Unruptured Intracranial Aneurysm Management False Stroke Stroke
C13210 Generalized Anxiety Disorder (GAD-7) - easily annoyed scale

Scale describing how often participant/subject becomes easily annoyed or irritable, as a part of Generalized Anxiety Disorder (GAD-7)

 Exploratory Generalized Anxiety Disorder (GAD-7) True Stroke Stroke
C07377 PTSD Checklist Civilian (PCL-C) - Act indicator

Indicator of whether the subject experiences suddenly acting or feeling as if a stressful experience were happening again (as if you were reliving it), as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C07385 PTSD Checklist Civilian (PCL-C) - Emotionally numb indicator

Indicator of whether the subject experiences feeling emotionally numb or being unable to have loving feelings for those close to you, as part of PTSD Checklist Civilian (PCL-C)

 Exploratory PTSD Checklist - Civilian (PCL-C) True Stroke Stroke
C55347 Microdialysis cerebral probe membrane length measurement

The field to specify the membrane length for probes used for cerebral microdialysis specimens

 Exploratory Biospecimen Collection and Processing False Stroke Stroke
C54762 Imaging aneurysm occlusion percent value

Value of percentage of aneurysm that is occluded, as determined from imaging

 Exploratory Vessel Imaging Angiography False Stroke Stroke
C55360 Microdialysis cerebral analyte lactate pyruvate ratio value

The ratio of lactate to pyruvate in the cerebral microdialysis analyte

 Exploratory Biospecimen Collection and Processing False Stroke Stroke
C52706 Mitochondrial encephalomyopathy lactic acidosis stroke like episodes indicator

The indicator related to whether the participant/subject has or had mitochondrial encephalomyopathy, lactic acidosis and stroke-like episodes (MELAS)

 Exploratory Medical History False Stroke Stroke
C19482 Paid work hour week count

The number of hours per week in paid work

 Exploratory Social Status False Stroke Stroke
C58931 Menopause treatment type

Type of treatment the participant/subject is receiving or has received for menopause

 Exploratory Medical History False Stroke Stroke
C13880 Digital Subtraction Angiography (DSA) site of access anatomic site

The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment

 Exploratory Aneurysm Location and Dimensions False Stroke Stroke
C13774 Imaging one third middle cerebral artery territory involved indicator

Indicates if 1/3 middle cerebral artery (MCA) territory is involved

 Exploratory Parenchymal Imaging False Stroke Stroke
C13519 Lower limb tone findings result

Assess tone of lower limbs on the affected side using the Orgogozo Stroke Scale

 Exploratory Physical/Neurological Exam False Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

 Exploratory Physical/Neurological Exam False Stroke Stroke
C58782 Race expanded maternal category

Category of race(s) or region(s) the participant/subject's mother most closely identifies with

 Exploratory Demographics False Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

 Exploratory Thrombolytic/Reperfusion Therapies False Stroke Stroke
Displaying 126 - 150 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.