CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C07382	PTSD Checklist Civilian (PCL-C) - Remember important part indicator	Indicator of whether the subject experiences trouble remembering important parts of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C17473	Cardiovascular history cardiac surgery date	Date of most recent cardiac surgery or mechanical intervention performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
C07390	PTSD Checklist Civilian (PCL-C) - Super alert indicator	Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C13517	Hand function findings result	Assess hand function on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C55346	Microdialysis cerebral probe molecular weight limit value	The field to specify the molecular weight limit for probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C52621	Medical history artificial valve type	The element related to the type of artificial valve	Exploratory	Medical History	False	Stroke	Stroke
C55359	Microdialysis cerebral analyte lactate measurement	The value of lactate in in the cerebral microdialysis analyte	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C14011	Intracranial stenosis present indicator	Indicates presence of intracranial stenosis	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C13774	Imaging one third middle cerebral artery territory involved indicator	Indicates if 1/3 middle cerebral artery (MCA) territory is involved	Exploratory	Parenchymal Imaging	False	Stroke	Stroke
C58926	Medical history hemorrhagic stroke range	The element related to the number of hemorrhagic strokes the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C58816	Frontal lobe function status	Assess frontal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C54771	Imaging aneurysm wall shear stress maximum measurement	Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C19260	Occupation secondary status	The status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
C54993	Cocaine exposure age end value	Age in years at which the subject/participant's exposure to cocaine ended	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C54916	Unruptured intracranial aneurysm observation reason	Reason for observation only of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C13208	Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale	Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C07375	PTSD Checklist Civilian (PCL-C) - Memories indicator	Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C58825	Intracranial aneurysm rupture delivery status	The element related to the time when the rupture of the brain aneurysm occurred, either before, during or after delivery	Exploratory	Pregnancy and Perinatal History	False	Stroke	Stroke
C07383	PTSD Checklist Civilian (PCL-C) - Loss interest indicator	Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C17475	Cardiovascular history cardiac surgery type	Type of cardiac surgery or mechanical intervention the participant/subject underwent	Exploratory	Medical History	False	Stroke	Stroke
C07391	PTSD Checklist Civilian (PCL-C) - Jumpy indicator	Indicator of whether the subject experiences feeling jumpy or easily startled, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.