CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 1547
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54884 Vessel repair anatomic site

Anatomic site of the vessel that was repaired

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C11062 Maternal delivery age value

Mother's age at the time she gave birth to the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54692 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out social role scale

Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C14631 Antiplatelet agent in hospital indicator

Whether the participant/subject received antiplatelet agents during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C04804 Hospital discharge date and time

Date (and time, if applicable and known) the participant/subject was discharged from the hospital

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C55747 Specimen insulate shipment box indicator

The indicator related to whether the specimen insulated in a shipment box

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01712 Lab specimen type

Type of specimen collected for the laboratory test

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58952 Antiplatelet agent stroke discharge prescribe type

Type(s) of antiplatelet agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C54751 Cerebrospinal fluid collection anatomic site

The anatomic site related to collection of cerebrospinal fluid (CSF)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58737 Blood collection tube number

Enter the number of collection tubes used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C55323 Specimen normal control collected indicator

Indicator of whether or not normal or control samples were collected

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Stroke Stroke
C00706 Alcohol prior use indicator

Indicator of the participant's/subject's alcohol consumption prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58752 Specimen expiration not applicable indicator

Indicate whether there is no expiration date for the specimen

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C07433 Patient Health Questionnaire (PHQ) - Tired little energy score

Score of how much the subject has been feeling tired in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C00730 Alcohol use frequency

The frequency of consumption of alcohol by the participant

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C14221 Clinical stroke time-based definition type

Indicates the type of clinical stroke suffered by the adult patient, using duration of symptoms to distinguish between ischemic stroke and TIA

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C00315 Medical history global assessment indicator

Indicator of whether the participant has a history of any medical problems/conditions

Supplemental-Highly Recommended Medical History Stroke Stroke
C11081 Delivery caesarean timing status

Status of the caesarean delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C00001 Gestational age value

Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58959 Lipid lower agent stroke discharge prescribe other text

The free-text field related to 'Lipid lower agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
Displaying 76 - 100 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.