CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke
C58886	Supportive medical equipment other text	The free-text field related to 'Supportive medical equipment type' specifying other text. If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
C10543	Cancer head or neck radiation treatment indicator	Indicator as to whether the participant's/subject's cancer is or was treated with head or neck radiation	Exploratory	Medical History	False	Stroke	Stroke
C14123	Country of residence name	Country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
C55352	Microdialysate source type	The free-text field to specify the type of microdialysate specimen source	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C55363	Multiplex platform batch effect indicator	Indicator for whether there was batch effect for multiplex platforms	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C58999	Medication cold preparation current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C13515	Orientation findings result	Assess orientation using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
C58825	Intracranial aneurysm rupture delivery status	The element related to the time when the rupture of the brain aneurysm occurred, either before, during or after delivery	Exploratory	Pregnancy and Perinatal History	False	Stroke	Stroke
C19262	Occupation secondary other status text	The free-text field to capture other status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
C54762	Imaging aneurysm occlusion percent value	Value of percentage of aneurysm that is occluded, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C18862	Death location other text	The free-text field related to 'Death location type' specifying other text. Type of location where the participant/subject died	Exploratory	Death	False	Stroke	Stroke
C18827	Gastrointestinal therapy nutrition supplement other text	The free-text field related to 'Gastrointestinal therapy nutrition supplement type' specifying other text. Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C54915	Unruptured intracranial aneurysm management plan initial status	Status of initial management plan for unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C13207	Generalized Anxiety Disorder (GAD-7) - worry too much scale	Scale describing how often participant/subject worries too much about different things, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C54914	Home own relative time spent duration	Duration in days of time spent in own or relative's home	Exploratory	Home Time	False	Stroke	Stroke
C07382	PTSD Checklist Civilian (PCL-C) - Remember important part indicator	Indicator of whether the subject experiences trouble remembering important parts of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C52709	Menopause begin age value	The age at which menopause began for the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
C07390	PTSD Checklist Civilian (PCL-C) - Super alert indicator	Indicator of whether the subject experiences being "super-alert" or watchful or on guard, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C58932	Menopause treatment type other text	The free-text field related to 'Menopause treatment type', specifying other text	Exploratory	Medical History	False	Stroke	Stroke
C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C55353	Microdialysate composition type text	The free-text field to specify the composition of microdialysate specimen	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C58782	Race expanded maternal category	Category of race(s) or region(s) the participant/subject's mother most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.