CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1174-C02486	C02486	Traumatic aneurysm volume measurement	Measured volume of the traumatic aneurysm in mm (calculated from length of involved vessel)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2824-C58733	C58733	Occupation secondary after event status	The status indicating the participant's/subject's secondary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1171-C13824	C13824	Spot sign maximum attenuation score	The maximum attenuation score for "spot sign" on computed tomography (CT) angiography to identify patients with intracerebral hemorrhage (ICH) who are at high risk for hematoma expansion. Intracerebral hemorrhage (ICH), a CT angiography spot sign (i.e., active contrast extravasation) indicates a high risk of hematoma expansion	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58793	C58793	Carotid revascularization procedure other text	The free-text field related to 'Carotid revascularization procedure type' specifying other text. Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54052	C54052	D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 180 Duration	Duration of total time to for condition 3 and 4, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C14540	C14540	Pulmonary artery wedge pressure measurement	Pulmonary artery wedge pressure (PAWP) or pulmonary capillary wedge pressure (PCWP) is the intravascular pressure as measured by a catheter wedged into the distal pulmonary artery. It is used to measure indirectly the mean left atrial pressure	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13930	C13930	Intima media thickness (IMT) timing type	Indicates intima media thickness (IMT) timing type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58962	C58962	Medication antiplatelet past week type	Type of antiplatelet medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C14192	C14192	Symptom awaken discover indicator	Indicate if symptoms were discovered shortly upon awakening from sleep	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13772	C13772	Imaging acute ischemic lesion volume method type	Indicates acute lesion volume Method	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C58960	C58960	Antithrombotic therapy not prescribed serious side effect text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying serious side effect to medication text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1152-C19174	C19174	Other cardiac disorder type	Type of other cardiac disorder	Supplemental	Medical History	False	Stroke	Stroke
F1157-C18821	C18821	School placement other text	The free-text field related to 'School placement type' specifying other text. The description of the type of education the participant/subject receives with details of being with or without assistance	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1151-C00205	C00205	Family income range	Range, in U.S. dollars, of the annual pre-tax, pre-deduction total income, of the household of which the participant/subject is a member	Supplemental	Social Status	False	Stroke	Stroke
F2838-C18693	C18693	Imaging contrast agent method other text	The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10725	C10725	Echocardiogram left ventricular posterior wall thickness end diastole measurement	Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13954	C13954	Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time	The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Stroke	Stroke
F2826-C54886	C54886	Subarachnoid hemorrhage ictus elapsed hour count	Count of 60-minute intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58801	C58801	Stroke surgical operative preventive treatment type	Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54060	C54060	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Scaled Score	Scaled score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58970	C58970	PCSK9 inhibitor past three month indicator	The indicator related to whether the subject/participant was taking PCSK9 inhibitors (alirocumab, evolocumab) within the past three months	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1159-C18686	C18686	Hospital transport other text	The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13790	C13790	Fazekas scale periventricular score	Indicates the Fazekas scale periventricular score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.