CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1161-C01001	C01001	Glasgow Coma Scale (GCS) - motor response scale	Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke
F2032-C07437	C07437	Patient Health Questionnaire (PHQ) - Concentration impairment score	Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)	Supplemental-Highly Recommended	Patient Health Questionnaire - 9 (PHQ-9) Depression Scale	True	Stroke	Stroke
F1172-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1154-C58936	C58936	Drug or substance current illicit or recreational use indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1178-C58956	C58956	Anti diabetic agent stroke discharge prescribe type	Type(s) of anti-diabetic agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1154-C58944	C58944	Alcohol 30 day use indicator	Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1155-C10558	C10558	Delivery or pregnancy termination last date and time	Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1165-C01522	C01522	Height measurement	Measurement of participant's/subject's height	Supplemental-Highly Recommended	Vital Signs	False	Stroke	Stroke
F1174-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1173-C13908	C13908	Imaging echo pattern result	Indicates echo pattern	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2464-C13230	C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Supplemental-Highly Recommended	Modified Rankin Scale (mRS)	True	Stroke	Stroke
F1162-C14219	C14219	Clinical stroke time-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1163-C14213	C14213	Diagnosis principal discharge code	The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F1173-C13916	C13916	Imaging color flow angle measurement	Indicates color flow angle (degrees)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1154-C00711	C00711	Tobacco prior use indicator	Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1169-C54753	C54753	Specimen collection tube type	Type of tube used for specimen collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C14151	C14151	Pregnancy medical terminations count	Number of medical terminations (abortions)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1169-C58739	C58739	CSF/plasma simultaneous collection indicator	Indicate whether the CSF and plasma samples were collected simultaneously	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2836-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1169-C55327	C55327	Specimen serial collected indicator	Indicator of whether or not serial samples were collected over time	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1155-C58823	C58823	Pregnancy or delivery risk factor fetal abnormal recognize in utero text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2836-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1159-C14191	C14191	Last known to be well date and time	The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
F1169-C57923	C57923	Blood collection tube additive type	Type of additives used in blood collection tube	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1161-C01002	C01002	Glasgow Coma Scale (GCS) - verbal response scale	Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)	Supplemental-Highly Recommended	Glasgow Coma Scale (GCS)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.