CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1542
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01001 Glasgow Coma Scale (GCS) - motor response scale

Glasgow Coma Scale (GCS) - Best motor response (M). The GCS is a standardized instrument for assessing the level of consciousness. It evaluates three aspects of responsiveness: eye opening, motor response, verbal response

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
C07437 Patient Health Questionnaire (PHQ) - Concentration impairment score

Score of how much the subject has been bothered with troubling concentrating in the past two weeks, as part of the Patient Health Questionnaire (PHQ)

Supplemental-Highly Recommended Patient Health Questionnaire - 9 (PHQ-9) Depression Scale Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Perfusion and Penumbral Imaging Stroke Stroke
C58936 Drug or substance current illicit or recreational use indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs in the past year for purposes other than those for which they are meant to be used, or in large amounts

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58956 Anti diabetic agent stroke discharge prescribe type

Type(s) of anti-diabetic agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58944 Alcohol 30 day use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C10558 Delivery or pregnancy termination last date and time

Date (and time if applicable and known) the female participant/subject last delivered a pregnancy or the pregnancy terminated (e.g., miscarriage, abortion)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C01522 Height measurement

Measurement of participant's/subject's height

Supplemental-Highly Recommended Vital Signs Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Vessel Imaging Angiography Stroke Stroke
C13908 Imaging echo pattern result

Indicates echo pattern

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C13230 Modified Rankin Scale (mRS) Score

The overall modified Rankin Scale (mRS) score assigned to the participant/ subject

Supplemental-Highly Recommended Modified Rankin Scale (mRS) Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C14213 Diagnosis principal discharge code

The principal diagnosis is defined in the Uniform Hospital Discharge Data Set (UHDDS) as "that condition established after study to be chiefly responsible for occasioning the admission of the patient to the hospital for care."

Supplemental-Highly Recommended Hospital Discharge Stroke Stroke
C13916 Imaging color flow angle measurement

Indicates color flow angle (degrees)

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C00711 Tobacco prior use indicator

Indicator of the participant's/subject's past regular tobacco (e.g., cigarettes, cigars, chewing tobacco or pipe) use prior to the past 12 months

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C54753 Specimen collection tube type

Type of tube used for specimen collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58739 CSF/plasma simultaneous collection indicator

Indicate whether the CSF and plasma samples were collected simultaneously

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54689 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C55327 Specimen serial collected indicator

Indicator of whether or not serial samples were collected over time

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58823 Pregnancy or delivery risk factor fetal abnormal recognize in utero text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C14191 Last known to be well date and time

The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)

Supplemental-Highly Recommended Hospital Arrival/Admission Stroke Stroke
C57923 Blood collection tube additive type

Type of additives used in blood collection tube

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C01002 Glasgow Coma Scale (GCS) - verbal response scale

Score that describes the participant's verbal response according to the Glasgow Coma Scale (GCS)

Supplemental-Highly Recommended Glasgow Coma Scale (GCS) Stroke Stroke
Displaying 51 - 75 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.