CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54916 Unruptured intracranial aneurysm observation reason

Reason for observation only of unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C58890 Imaging aneurysm kinetic energy mean unit of measure

The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C58929 Medical history carotid artery stenting recent date

Date of most recent carotid artery stenting performed on the participant/subject

Exploratory Medical History Stroke Stroke
C13208 Generalized Anxiety Disorder (GAD-7) - trouble relaxing scale

Scale describing how often participant/subject has trouble relaxing, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07375 PTSD Checklist Civilian (PCL-C) - Memories indicator

Indicator of whether the subject experiences repeated, disturbing memories, thoughts, or images of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C05134 Therapy rehabilitation start date time

Date (and time, if applicable and known) on which the therapy or rehabilitation started

Exploratory Rehabilitation Therapies Stroke Stroke
C13522 Monocular visual loss status

Whether the participant/subject has monocular visual loss at bedside assessment

Exploratory Physical/Neurological Exam Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C16055 Full term delivery child indicator

Indicates whether the participant's/subject's child was delivered full-term

Exploratory Pregnancy and Perinatal History Stroke Stroke
C07384 PTSD Checklist Civilian (PCL-C) - Distant indicator

Indicator of whether the subject experiences feeling distant or cut off from other people, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C07426 PTSD Checklist Civilian (PCL-C) - Total score

A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C55352 Microdialysate source type

The free-text field to specify the type of microdialysate specimen source

Exploratory Biospecimen Collection and Processing Stroke Stroke
C54765 Imaging aneurysm kinetic energy mean measurement

Measurement of the mean kinetic energy of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C16174 Menopause indicator

Indicates whether participant is currently menopausal

Exploratory Medical History Stroke Stroke
C55363 Multiplex platform batch effect indicator

Indicator for whether there was batch effect for multiplex platforms

Exploratory Biospecimen Collection and Processing Stroke Stroke
C54773 Imaging aneurysm shear concentration index value

Value of the shear concentration index of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C19078 Cardiovascular history cardiac surgery other text

The free-text field related to 'Cardiovascular history cardiac surgery type' specifying other text. Type of cardiac surgery or mechanical intervention the participant/subject underwent

Exploratory Medical History Stroke Stroke
C54995 Potency enhancing drug current former use duration

Duration in months for which the subject/participant took or has taken the specified potency-enhancing drug

Exploratory Prior and Concomitant Medications Stroke Stroke
C54917 Unruptured intracranial aneurysm treatment reason

Reason for treatment of unruptured intracranial aneurysm (UIA)

Exploratory Unruptured Intracranial Aneurysm Management Stroke Stroke
C58891 Imaging aneurysm shear rate mean unit of measure

Unit of measure of the mean shear rate of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C19258 Occupation primary status

The status indicating the participant's/subject's current primary occupational status

Exploratory Social Status Stroke Stroke
C13209 Generalized Anxiety Disorder (GAD-7) - restless scale

Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)

Exploratory Generalized Anxiety Disorder (GAD-7) Stroke Stroke
C07376 PTSD Checklist Civilian (PCL-C) - Dream indicator

Indicator of whether the subject experiences repeated, disturbing dreams of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
C13514 Consciousness findings result

Assess consciousness using the Scandinavian Stroke Scale

Exploratory Physical/Neurological Exam Stroke Stroke
C07385 PTSD Checklist Civilian (PCL-C) - Emotionally numb indicator

Indicator of whether the subject experiences feeling emotionally numb or being unable to have loving feelings for those close to you, as part of PTSD Checklist Civilian (PCL-C)

Exploratory PTSD Checklist - Civilian (PCL-C) Stroke Stroke
Displaying 51 - 75 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.