CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1164-C13518	C13518	Upper limb tone findings result	Assess tone of upper limbs on the affected side using the Orgogozo Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2436-C54921	C54921	Unruptured intracranial aneurysm treatment repair score	Score in favor of repair on the unruptured intracranial aneurysm (UIA) treatment score model	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54917	C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54922	C54922	Unruptured intracranial aneurysm treatment management score	Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54920	C54920	Unruptured intracranial aneurysm rupture risk PHASES score	Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54916	C54916	Unruptured intracranial aneurysm observation reason	Reason for observation only of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54915	C54915	Unruptured intracranial aneurysm management plan initial status	Status of initial management plan for unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54919	C54919	Unruptured intracranial aneurysm management noncompliance text	The free-text field related to 'Unruptured intracranial aneurysm management compliance indicator' specifying noncompliance	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2436-C54918	C54918	Unruptured intracranial aneurysm management compliance indicator	Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1171-C13852	C13852	Tumor present indicator	Indicates if tumor present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1171-C13853	C13853	Tumor anatomic site	Specifies location of tumor	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14225	C14225	Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type	Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1174-C02486	C02486	Traumatic aneurysm volume measurement	Measured volume of the traumatic aneurysm in mm (calculated from length of involved vessel)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02484	C02484	Traumatic aneurysm status	Status of false aneurysmal outpouching of an artery due to mechanical disruption of the entire vessel wall with extravasation of blood into a confined soft-tissue space	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02483	C02483	Traumatic aneurysm findings type	Further describes the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C58903	C58903	Traumatic aneurysm anatomic site other text	The free-text field related to 'Traumatic aneurysm anatomic site' specifying other text. Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C02485	C02485	Traumatic aneurysm anatomic site	Anatomic site of the traumatic aneurysm	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1949-C54097	C54097	Trail Making Test (TMT)- Part A image used source	Source of Part A image used, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1167-C58755	C58755	Toxicology screen other text	The free-text field related to 'Toxicology Screen' specifying other text	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1182-C22608	C22608	Total rehabilitation session count	The total number of rehabilitation sessions the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1154-C00701	C00701	Tobacco use stopped age value	Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C55953	C55953	Tobacco use stopped age not applicable status	Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C06108	C06108	Tobacco smoke pack-year value	If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C00719	C00719	Tobacco product used type	Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject	Supplemental	Behavioral History	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.