CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1172-C13863	C13863	Imaging magnetic resonance based identification perfusion defect threshold type	Indicates MR based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13470	C13470	Stroke Adjudication Worksheet - neuroimaging type	Type of neuro-imaging done for the stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14270	C14270	Sophia stroke vessels affected type	Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C14050	C14050	Hijdra scale total score	Indicates Hijdra scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1154-C55953	C55953	Tobacco use stopped age not applicable status	Status indicating that age stopped tobacco use does not apply to the subject/participant as they are still using tobacco	Supplemental	Behavioral History	False	Stroke	Stroke
F2830-C18701	C18701	Imaging modality type other text	The free-text field related to 'Imaging modality type', specifying other text. Type of radiologic study performed on the participant	Supplemental	Imaging Acquisition	False	Stroke	Stroke
F1056-C12839	C12839	Cardiac MRI ventricle end diastolic dimension measurement	Measurement of the diameter across the selected ventricle at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54253	C54253	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Coding total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Coding Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13871	C13871	Imaging perfusion computed tomography based identification core volume measurement	Indicates perfusion CT (PCT) based identification of core volume for all the methods used	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13478	C13478	Stroke Adjudication Worksheet - stroke TIA other symptoms type	The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12874	C12874	Echocardiogram pulmonic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the pulmonic valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F0936-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	Echocardiogram	False	Stroke	Stroke
F1171-C02455	C02455	Midline shift supratentorial indicator	Displacement of the supratentorial midline structures, particularly the septum pellucidum, 2 mm or more due to mass effect of a focal traumatic lesion or brain swelling	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1169-C54752	C54752	Cerebrospinal fluid collection anatomic site other text	The free-text field related to other anatomic site related to collection of cerebrospinal fluid (CSF)	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C58942	C58942	E-cigarette electronic vapor product use ever indicator	The indicator related to whether the participant/subject has ever used an e-cigarette or other electronic vaping product, even just one time, in their entire life	Supplemental	Behavioral History	False	Stroke	Stroke
F1162-C14231	C14231	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - small vessel grade	The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of small vessel disease (S)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C58933	C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
F1056-C12847	C12847	Cardiac MRI left ventricle mass index measurement	Measurement of the left ventricle mass as obtained by cardiac magnetic resonance imaging (MRI) divided by the participant's body surface area in square meters	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54261	C54261	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall index score	Index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Form A Story Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1203-C14054	C14054	Stroke Adjudication Worksheet - neuroimaging multiple CT stroke finding indicator	Whether the multiple brain CTs separated in time was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12893	C12893	Echocardiogram right ventricle wall motion abnormal indicator	Indicator of wall motion abnormalities in the right ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04506	C04506	ECG right ventricular hypertrophy status	Status of right ventricular hypertrophy on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10732	C10732	Echocardiogram right ventricular enlargement status	Status of right ventricular enlargement on the echocardiogram	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58901	C58901	Causative Classification System (CCS) - small artery occlusion phenotype status	The status of the predefined small artery occlusion phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58830	C58830	Imaging acute ischemic lesion volume sequence specify text	The free-text field related to 'Imaging acute ischemic lesion volume sequence type' specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.