CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58896	C58896	Clinical stroke tissue based Intracerebral hemorrhage laterality type	Indicate the laterality of the intracerebral hemorrhage	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58826	C58826	Hyperdense artery specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C02491	C02491	Venous sinus injury status	Status of compression (>50%), occlusion, or laceration of a dural venous sinus due to trauma	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14236	C14236	Oxfordshire Community Stroke Project (OCSP) - subtype category	Oxfordshire Community Stroke Project (OCSP) Subtype Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1153-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Stroke	Stroke
F2834-C14279	C14279	Comfort care indicator	Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1056-C12852	C12852	Cardiac MRI atrium area measurement	Measurement of the area of the selected atrium as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F2828-C54266	C54266	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score	Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1203-C18887	C18887	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type' specifying other text. The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F2380-C12898	C12898	Echocardiogram left ventricle end diastolic volume index measurement	Measurement calculated from end diastolic volume over body surface area for the left ventricle obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04511	C04511	ECG QT interval	Interval in milliseconds (msec) from the start of the Q wave to the end of the T wave (QT interval) for the electrocardiogram (ECG/EKG) being recorded	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10737	C10737	Echocardiogram left ventricular outflow tract obstruction indicator	Indicator of whether the echocardiogram shows that the participant/subject has a left ventricular outflow tract (LVOT)	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58909	C58909	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - other grade	The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of other cause (O)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58836	C58836	Perihematomal edema MRI sequence other text	The free-text field related to 'Intraparenchymal hematoma MRI sequence type' specifying other text. Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58877	C58877	Inpatient therapy or rehabilitation location type	Type of inpatient location where the participant subject received therapy or rehabilitation services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2827-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10731	C10731	Echocardiogram right atrial enlargement status	Status of right atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13961	C13961	High intensity transient signal hits present indicator	Indicates presence of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2826-C54891	C54891	Medication antithrombotic used procedure type	Type of antithrombotic medication used during surgical or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C14277	C14277	Dietary recommendation indicator	Indicates if dietary recommendations were made at discharge. Examples of possible diets the patient may be put on include the Therapeutic Lifestyle Changes (TLC) Diet (a low saturated fat, low cholesterol diet) and an antihypertensive diet, such as the Dietary Approaches to Stop Hypertension (DASH) diet	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54065	C54065	D-KEFS Color-Word Interference Test (CWIT) -Contrast Scaled Score	Scaled score converted from scaled score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58975	C58975	Medication antihypertensive past week type	Type of antihypertensive medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13795	C13795	Modified Scheltens scale occipital score	Indicates modified Scheltens scale - occipital score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.