CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2826-C54888	C54888	Lumbar drain indicator	Indicator of whether a lumbar drain was placed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58803	C58803	Stroke surgical operative preventive neurosurgical treatment other text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1171-C13838	C13838	Hijdra scale anatomic site	The site for the Hijdra scale assessment (the Hijdra et al. (1990) described a method to grade the amount of blood in the SA space and ventricles on CT)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2008-C54062	C54062	D-KEFS Color-Word Interference Test (CWIT) -Sum of Scaled Scores	Sum of scaled scores of Color Naming and Word Reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1162-C14228	C14228	Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) - standard sub type	Ischemic Stroke Subtype based on the Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1206-C58972	C58972	Medication diabetic past week type	Type of diabetic medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1179-C14409	C14409	Intra-sinus intervention groin puncture date and time	Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1949-C52879	C52879	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time	The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54734	C54734	Aneurysm sidewall branch count	Count of sidewall branches of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10741	C10741	Echocardiogram aortic valve regurgitation degree status	Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14005	C14005	Imaging brain death diagnosis result	Indicates brain death diagnosis result	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C58898	C58898	Causative Classification System (CCS) - large artery atherosclerosis phenotype status	The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F0372-C07093	C07093	Center for Epidemiologic Studies-Depression Scale (CES-D) - blues family friend indicator	Indicates how often the subject felt like not able to shake off blues even with help from family and friends in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54896	C54896	Assessment surgery procedure vessel patency aneurysm occlusion method type	Type of method used to for assessment of vessel patency or aneurysm occlusion during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58849	C58849	Physical activity increase recommendation indicator	Indicates if recommendations to increase physical activity were provided at discharge. The intervention can be education, discussion, an individualized plan, referral to a structured program or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1171-C13849	C13849	Bicaudate index score	Indicates Bicaudate index	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2008-C54070	C54070	Delis-Kaplan Executive Function System (DKEFS) - Error total raw score	Total raw score calculated as the sum of raw scores of Sequencing Errors, Set-Loss Errors and Time-Discontinue Errors in Condition 4 (Number-Letter Switching), as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1162-C14237	C14237	Intracerebral hemorrhage presumed cause type	Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1206-C58980	C58980	Medication angiotensin receptor blocker past week type	Type of angiotensin receptor blocker (ARB) medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1167-C01704	C01704	Pregnancy test specimen type	Type of specimen collected to perform the pregnancy test	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1949-C54087	C54087	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time raw score	Complete time as a raw score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54744	C54744	Aneurysm size increase measurement	Measurement of the size increase of the aneurysm. The difference between the current largest diameter measurement and the previous diameter measurement along the same axis	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1172-C13863	C13863	Imaging magnetic resonance based identification perfusion defect threshold type	Indicates MR based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F2380-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14013	C14013	Intracranial stenosis mean velocity criterion value	Indicates intracranial stenosis mean velocity criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.