CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1152-C52605	C52605	Medical history carotid artery stenting anatomic site	The element related to the location of carotid artery stenting the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1180-C58793	C58793	Carotid revascularization procedure other text	The free-text field related to 'Carotid revascularization procedure type' specifying other text. Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54052	C54052	D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 180 Duration	Duration of total time to for condition 3 and 4, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C13930	C13930	Intima media thickness (IMT) timing type	Indicates intima media thickness (IMT) timing type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58962	C58962	Medication antiplatelet past week type	Type of antiplatelet medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1178-C58960	C58960	Antithrombotic therapy not prescribed serious side effect text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying serious side effect to medication text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1162-C14263	C14263	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) - primary chronic sub type	Childhood AIS standardized classification and diagnostic evaluation (CASCADE) primary classification: chronic - patients with an initial vascular diagnosis (at 0-1 month) for "Primary Classification: Acute" are given a follow-up diagnosis based on studies obtained at or after 3-6 months that will capture any progression, stability or regression of the arteriopathy	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1167-C58757	C58757	Lab test unit type	Indicator of whether United States Customary Units (Standard) or International Standard of Units (SI) were used in the laboratory test results	Supplemental	Laboratory Tests	False	Stroke	Stroke
F2838-C18693	C18693	Imaging contrast agent method other text	The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C13831	C13831	Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score	Indicates Graeb IVH Scale - Right lateral ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2827-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C10725	C10725	Echocardiogram left ventricular posterior wall thickness end diastole measurement	Measurement of left ventricular end - diastolic posterior wall thickness (PWTd) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13954	C13954	Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time	The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1152-C52700	C52700	Hypercoagulable disorder type text	The free-text field related to the type of hypercoagulable disorder	Supplemental	Medical History	False	Stroke	Stroke
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Stroke	Stroke
F2826-C54886	C54886	Subarachnoid hemorrhage ictus elapsed hour count	Count of 60-minute intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58801	C58801	Stroke surgical operative preventive treatment type	Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54060	C54060	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Scaled Score	Scaled score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58970	C58970	PCSK9 inhibitor past three month indicator	The indicator related to whether the subject/participant was taking PCSK9 inhibitors (alirocumab, evolocumab) within the past three months	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Stroke	Stroke
F1179-C14407	C14407	Intra-sinus intervention indicator	Indicates whether the participant/subject received any intra-sinus (i.e., for cerebral venous thrombosis) intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C10570	C10570	Imaging contrast agent used indicator	Indicator of whether an imaging contrast agent was used for the scan	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1150-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant's mother most closely identifies with	Supplemental	Demographics	False	Stroke	Stroke
F1162-C14626	C14626	Sophia delivery mode type	Mother's mode of delivery of the neonate. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.