CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54084	C54084	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count	The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2380-C10746	C10746	Echocardiogram late mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14010	C14010	Intracranial stenosis collateral vessel anatomic site	Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2826-C54901	C54901	Craniectomy perform indicator	Indicator of whether craniectomy was performed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58802	C58802	Stroke surgical operative preventive cardiac treatment text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying cardiac surgical/operative preventative treatment text. Type of cardiac surgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1173-C18693	C18693	Imaging contrast agent method other text	The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58971	C58971	Medication diabetic current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken diabetic medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13791	C13791	Fazekas scale deep white matter score	Indicates the Fazekas scale deep white matter score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14408	C14408	Intra-sinus procedure type	If intra-sinus (i.e., for cerebral venous thrombosis) intervention was received, specifies the type of intra-sinus procedure performed on the participant/subject at this hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1162-C19076	C19076	Sophia signs symptoms presentation neurological signs other text	The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1154-C58940	C58940	Tobacco cigarette use stopped age value	Age in years when participant/subject stopped using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1162-C14228	C14228	Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) - standard sub type	Ischemic Stroke Subtype based on the Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C58912	C58912	Embolic stroke of undetermined source (ESUS) - criteria category	The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2380-C12867	C12867	Echocardiogram left ventricular trabeculation status	Status of trabeculations in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14021	C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07092	C07092	Center for Epidemiologic Studies-Depression Scale (CES-D) - poor appetite indicator	Indicates how often the subject didn't feel like eating in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54909	C54909	Endovascular complication intra surgery procedure type	Type of endovascular complication(s) which occurred during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58848	C58848	Weight loss intervention type	If the participant/subject received counseling for weight loss, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Stroke	Stroke
F1173-C58872	C58872	Intima media thickness (IMT) edge detection algorithm type	Indicates intima media thickness (IMT) edge detection algorithm type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C13902	C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1206-C58979	C58979	Medication beta-blocker past week other text	The free-text field related to 'Medication beta-blocker past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13799	C13799	Modified Scheltens scale periventricular bands score	Indicates Modified Scheltens scale - Periventricular bands score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2824-C54926	C54926	Workload after event rate	Rate in hours per week of the subject/participant's workload subsequent to the event	Supplemental	Return to Work	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.