CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 351 - 375 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C02474 Subdural hematoma acute volume measurement

Measured volume in cubic centimeters of the acute subdural hematoma (calculated from length, width, maximal thickness)

 Supplemental Parenchymal Imaging False Stroke Stroke
C14286 Therapy or rehabilitation received status

If the participant/ subject was assessed for rehabilitation therapy/services, describes the status of therapy/services

 Supplemental Rehabilitation Therapies False Stroke Stroke
C58943 E-cigarette electronic vapor product use status

Status of participant/subject's use of e-cigarettes or other electronic vaping products

 Supplemental Behavioral History False Stroke Stroke
C14232 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - cardioembolic grade

The grade of cardioembolism, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of cardiac source (C)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C12848 Cardiac MRI left ventricle non-compaction result status

Status of the result of the evaluation of the left ventricle for non-compaction as observed by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C54262 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value

Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C14055 Stroke Adjudication Worksheet - neuroimaging MRI stroke finding indicator

Whether the MRI was positive for this stroke event

 Supplemental Stroke Adjudication Form False Stroke Stroke
C12894 Echocardiogram right ventricular internal dimension end diastole measurement

Measurement of right ventricular end - diastolic internal dimension (RVIDd) obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C04507 ECG complete bundle branch block status

Status of complete bundle branch block on the electrocardiogram (EKG) being reported

 Supplemental Electrocardiogram (ECG) False Stroke Stroke
C10733 Echocardiogram right ventricular systolic dysfunction status

Status of right ventricular systolic dysfunction on the echocardiogram

 Supplemental Echocardiogram False Stroke Stroke
C58902 Causative Classification System (CCS) - other uncommon cause phenotype status

The status of the predefined other uncommon causes phenotype, as part of the Causative Classification System (CCS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C58832 Imaging chronic infarct count category

Indicates number of chronic infarct(s)

 Supplemental Parenchymal Imaging False Stroke Stroke
C22608 Total rehabilitation session count

The total number of rehabilitation sessions the participant/subject has been part of

 Supplemental Rehabilitation Therapies False Stroke Stroke
C54675 Imaging aneurysm anatomic site

Anatomic site of aneurysm scanned scanned in the imaging study

 Supplemental Vessel Imaging Angiography False Stroke Stroke
C14245 Hunt and Hess scale

This is a 5 level scale for classifying the severity of Subarachnoid Hemorrhage (SAH), the higher the score the lower the likelihood of survival

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C13831 Graeb intraventricular hemorrhage (IVH) scale - right lateral ventricle score

Indicates Graeb IVH Scale - Right lateral ventricle score

 Supplemental Parenchymal Imaging False Stroke Stroke
C14147 Family history coronary artery disease (CAD) youngest age value

If there is a family history of coronary artery disease (CAD), specify the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack

 Supplemental Family History False Stroke Stroke
C14283 Do not resuscitate or intubate (DNR or DNI) earliest documentation timepoint type

Timepoint of earliest documentation of DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization

 Supplemental Palliative/Comfort Care and End of Life Issues False Stroke Stroke
C12858 Cardiac MRI other cardiac anatomy evaluate name

Name of other cardiac anatomy that was evaluated by cardiac magnetic resonance imaging (MRI)

 Supplemental Cardiac Magnetic Resonance Imaging (MRI) False Stroke Stroke
C54270 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value

Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C12902 Echocardiogram left ventricle end systolic volume index measurement

Measurement calculated from end systolic volume over body surface area for the left ventricle obtained by echocardiography

 Supplemental Echocardiogram II False Stroke Stroke
C04515 ECG ventricular arrhythmia type

Type of ventricular arrythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported

 Supplemental Electrocardiogram (ECG) False Stroke Stroke
C10741 Echocardiogram aortic valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the aortic valve as assessed by echocardiography

 Supplemental Echocardiogram False Stroke Stroke
Displaying 351 - 375 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.