CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2826-C22492	C22492	Blood estimate loss measurement	The measurement related to the estimated amount of blood loss	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1171-C13827	C13827	Hematoma chronic count	Indicates number of chronic hematomas if present	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C58796	C58796	Ventricular drain place type	Type of ventricular drainage placed	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54055	C54055	D-KEFS Color-Word Interference Test (CWIT) -Condition 2 Raw Score	Raw score of word reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1165-C18767	C18767	Temperature measurement other text	The free-text field related to 'Temperature measurement anatomic site' specifying other text. Anatomic site on or within the body where the temperature was measured	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13933	C13933	Intima media thickness (IMT) mean far-wall measurement	Indicates mean intima media thickness (IMT) far-wall measurement (mm)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58965	C58965	Medication anticoagulant past week type	Type of anticoagulant medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13775	C13775	Alberta Stroke Program Early CT score (ASPECTS) - middle cerebral artery (MCA) territory segment type	The type of middle cerebral artery (MCA) territory segment assessed for Alberta Stroke Program Early CT score (ASPECTS) score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1154-C00703	C00703	Tobacco use started age value	Age in years when participant/subject started using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)	Supplemental	Behavioral History	False	Stroke	Stroke
F1164-C13521	C13521	Gait walk unassisted result	Ability of the participant/subject to walk multiple steps unassisted	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1172-C18890	C18890	Imaging magnetic resonance based identification core volume other text	The free-text field related to 'Imaging magnetic resonance based identification core volume type' specifying other text. Indicates magnetic resonance based identification of core volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F2838-C18903	C18903	Vasomotor response (VMR) vessel anatomic other text	The free-text field related to 'Vasomotor response (VMR) vessel anatomic site' specifying other text. Indicates vasomotor response (VMR) vessel type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54727	C54727	Aneurysm width measurement	Measurement of the width of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1158-C58806	C58806	Pre-hospital stroke screen tool other text	The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2380-C10728	C10728	Echocardiogram left ventricular internal dimension end systole measurement	Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C13957	C13957	High intensity transient signal hits intensity value	Indicates high intensity transient signal hits intensity value (dB)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1156-C11133	C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Supplemental	History Data Source and Reliability	False	Stroke	Stroke
F1181-C14274	C14274	Smoking cessation treatment indicator	For patients who have smoked at least one cigarette within the past year (Joint Commission definition) or who vape, indicates whether the patient received counseling to stop smoking/vaping or smoking cessation advice during the hospitalization as documented in progress notes or physician orders at discharge or admissions	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54063	C54063	Delis-Kaplan Executive Function System (DKEFS) - Completion time contrast Type	Type of primary contrast measures for completion times, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C13245	C13245	National Institutes of Health Stroke Scale (NIHSS) - severity total score	The level of stroke severity as measured by the NIH Stroke Scale (NIHSS) scoring system (i.e., total of the subscale item scores)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58973	C58973	Medication diabetic past week other text	The free-text field related to 'Medication diabetic past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13793	C13793	Modified Scheltens scale frontal score	Indicates Modified Scheltens scale - Frontal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14410	C14410	Intra-sinus intervention initiated date and time	Date (and time, if applicable and known) intra-sinus (IS) intervention (i.e., for cerebral venous thrombosis) was initiated at this hospital or ED	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C58818	C58818	Dysphagia status	Did the participant/subject have dysphagia (difficulty swallowing) identified at bedside assessment? The dysphagia screening should utilize a validated tool that incorporates a swallow assessment and an assessment of level of consciousness and neurological function	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1173-C13900	C13900	Imaging probe frequency	Indicates imaging probe frequency (Hz)	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.