CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1949-C54084	C54084	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count	The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2380-C10746	C10746	Echocardiogram late mitral inflow velocity measurement	Measurement of the diastolic pressure difference between the left ventricle and left atrium (A) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F2838-C14010	C14010	Intracranial stenosis collateral vessel anatomic site	Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07098	C07098	Center for Epidemiologic Studies-Depression Scale (CES-D) - hopeful future indicator	Indicates how often the subject felt hopefully about the future in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54901	C54901	Craniectomy perform indicator	Indicator of whether craniectomy was performed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58855	C58855	High sodium intake avoid intervention type	If the participant/subject received counseling to avoid high sodium intake, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1174-C13880	C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58985	C58985	Medication ACE inhibitor past week other text	The free-text field related to 'Medication ACE inhibitor past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13805	C13805	Age-related white matter changes (ARWMC) scale - basal ganglia score	The basal ganglia score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C60364	C60364	IV thrombolytic agent not started other text	The free-text field related to 'IV thrombolytic agent not started reason' specifying other text. If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1165-C01553	C01553	Blood pressure measurement position type	Indicator of the participant's position during the blood pressure measurement	Supplemental	Vital Signs	False	Stroke	Stroke
F1173-C13912	C13912	Imaging plaque composition result	Indicates plaque composition	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C02446	C02446	Intraventricular hemorrhage status	Indicator of acute-appearing blood within the ventricles	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C59019	C59019	Birth weight measurement	Measurement in kilograms of the weight of a neonate at birth	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C06246	C06246	Medical history condition type	Type of pre-specified medical condition/disease asked about when collecting the medical history from the participant or found documented in the medical record	Supplemental	Medical History	False	Stroke	Stroke
F2380-C12867	C12867	Echocardiogram left ventricular trabeculation status	Status of trabeculations in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1150-C00033	C00033	Race USA maternal category	Race(s) the participant's mother most closely identifies with	Supplemental	Demographics	False	Stroke	Stroke
F2838-C14021	C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07106	C07106	Center for Epidemiologic Studies-Depression Scale (CES-D) - enjoy life indicator	Indicates how often the subject felt like he/she enjoyed life in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F2826-C54909	C54909	Endovascular complication intra surgery procedure type	Type of endovascular complication(s) which occurred during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58864	C58864	Mental resilience stress management tool adopt counsel indicator	Indicates if counseling to adopt tools for mental resilience and stress management was provided at discharge. The intervention can be discussion or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Stroke	Stroke
F2838-C13902	C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13893	C13893	Imaging vessel angiography venous findings type	Indicates vessel angiography venous findings type	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.