CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1158-C14624	C14624	Los Angeles Motor Scale (LAMS) - arm strength abnormal type	Type of abnormal arm strength observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1162-C58921	C58921	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1152-C00317	C00317	Medical history condition start date and time	Date (and time, if applicable and known) for the start of an event in the participant's medical history	Supplemental	Medical History	False	Stroke	Stroke
F1949-C54087	C54087	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time raw score	Complete time as a raw score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54744	C54744	Aneurysm size increase measurement	Measurement of the size increase of the aneurysm. The difference between the current largest diameter measurement and the previous diameter measurement along the same axis	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2380-C12862	C12862	Echocardiogram left atrial enlargement status	Status of left atrial enlargement on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1150-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Stroke	Stroke
F2838-C14013	C14013	Intracranial stenosis mean velocity criterion value	Indicates intracranial stenosis mean velocity criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F0372-C07101	C07101	Center for Epidemiologic Studies-Depression Scale (CES-D) - Restless sleep indicator	Indicates how often the subject had restless sleep in the past week, as part of the Center for Epidemiologic Studies-Depression Scale (CES-D)	Supplemental	Center for Epidemiologic Studies-Depression Scale (CES-D)	False	Stroke	Stroke
F1181-C58859	C58859	Recreational prescription drug abuse discontinue counsel indicator	Indicates if counseling to discontinue recreational or prescription drug abuse was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program, use of an alternative treatment, or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2838-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13883	C13883	Computer tomography (CT) angiography type	The type of computer tomography angiography being performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58988	C58988	Medication hormone replacement current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken hormonal replacement medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1171-C13808	C13808	Van Swieetten scale anterior white matter result	Describes Van Swieetten Scale - Anterior white matter	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1180-C05104	C05104	Inpatient outpatient status	Status describing whether the participant/subject was admitted to the hospital and stayed overnight	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1173-C13915	C13915	Imaging plaque thickness measurement	Indicates plaque thickness	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C58804	C58804	Emergency Medical Services (EMS) service personnel highest level type	Highest level of emergency medical service (EMS) personnel that attended to the participant/subject provided	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1171-C02495	C02495	Imaging scanner strength value type	Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1206-C54989	C54989	Stimulant former use age end value	Age in years at which the subject/participant stopped taking the selected former stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C18878	C18878	Echocardiogram result other text	The free-text field related to 'Echocardiogram result status' specifying other text. The global results of the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1949-C54097	C54097	Trail Making Test (TMT)- Part A image used source	Source of Part A image used, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1178-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F0936-C10773	C10773	Echocardiogram right ventricular diastolic wall thickness z score	Calculated z-score for the right ventricular wall thickness in diastole (RVWTd) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F2828-C54248	C54248	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure copy total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Copy Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13866	C13866	Imaging magnetic resonance based identification penumbra method type	Indicates MR based identification of penumbra method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.