CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C55343	C55343	Specimen hazardous triple packaged ship indicator	The indicator related to whether the hazardous specimen was triple packaged for shipping	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54757	C54757	Imaging aneurysm dome size value	Value of the aneurysm dome size determined by imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13836	C13836	Fisher grade	Indicates Fisher grade	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C58912	C58912	Embolic stroke of undetermined source (ESUS) - criteria category	The descriptive identification criteria categories used to identify Embolic Stroke of Undetermined Source (ESUS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1167-C01705	C01705	Lab test name	Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions	Supplemental	Laboratory Tests	False	Stroke	Stroke
F2822-C04800	C04800	Death cause text	Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate	Supplemental	Death	False	Stroke	Stroke
F1154-C58941	C58941	Tobacco cigarette use stopped age not applicable status	Status indicating that age stopped cigarette use does not apply to the subject/participant, as they are still using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F2828-C54279	C54279	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1152-C15630	C15630	Postpartum day week value	Number of days/weeks the participant/subject has been postpartum	Supplemental	Medical History	False	Stroke	Stroke
F1206-C18736	C18736	Medication prior or concomitant dose unit of measure other text	The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C12911	C12911	Echocardiogram right ventricle systolic pressure estimation type	Type of technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram II	False	Stroke	Stroke
F0936-C10750	C10750	Echocardiogram tissue doppler septum S prime velocity measurement	Tissue doppler septum S' velocity measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1199-C13231	C13231	King's Outcome Scale for Childhood Head Injury (KOSCHI) - prognosis category	The category that best describes the child's prognosis by the King's Outcome Scale for Childhood Head Injury (KOSCHI), which is a specific pediatric adaptation of the original adult Glasgow Outcome Scale (GOS)	Supplemental	King's Outcome Scale for Childhood Head Injury (KOSCHI)	False	Stroke	Stroke
F1171-C13847	C13847	Imaging shift measurement	Indicates Shift measurement (mm)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C58920	C58920	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 2 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M2 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1167-C18731	C18731	Lab test other text	The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1158-C58806	C58806	Pre-hospital stroke screen tool other text	The free-text field related to 'Pre-hospital stroke screen tool' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2822-C58714	C58714	Death WHO definition indicator	The indicator of whether the death is a stroke according to the WHO definition. World Health Organization definition = Rapidly developing clinical signs of focal, at times global, disturbance of cerebral function, lasting more than 24 hours or leading to death with no apparent cause other than that of vascular origin	Supplemental	Death	False	Stroke	Stroke
F1156-C11133	C11133	History data not obtained reason	Reason(s) the medical/family history data were not obtained from the participant/subject and instead were obtained from alternate source(s)	Supplemental	History Data Source and Reliability	False	Stroke	Stroke
F1305-C14698	C14698	Berg Balance Scale (BBS) - unsupport stand closed eyes scale	The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental	Berg Balance Scale (BBS)	False	Stroke	Stroke
F2830-C02494	C02494	Imaging study date and time	Date (and time, if applicable and known) the radiologic study was obtained	Supplemental	Imaging Acquisition	False	Stroke	Stroke
F1152-C19057	C19057	Diabetes mellitus complications other text	The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Stroke	Stroke
F1206-C54988	C54988	Stimulant current former use age start value	Age in years at which the subject/participant began taking the selected former or current stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2380-C18877	C18877	Echocardiogram right ventricle systolic pressure estimation type other text	The free-text field related to 'Echocardiogram systolic pressure estimation type' specifying other text. Type of technique used to estimate the right ventricular systolic pressure	Supplemental	Echocardiogram II	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.