CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2830-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Imaging Acquisition	False	Stroke	Stroke
F1056-C12841	C12841	Cardiac MRI ventricle end diastolic volume measurement	Measurement in milliliters of the selected ventricle's volume at the end of diastole as obtained by cardiac magnetic resonance imaging (MRI)	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F1158-C18907	C18907	Emergency Medical Services (EMS) dispatch type other text	The free-text field related to 'Emergency Medical Services (EMS) dispatch type code' specifying other text. For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2828-C54255	C54255	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1172-C13873	C13873	Imaging perfusion computed tomography based identification perfusion defect volume type	Indicates CT (PCT) based identification of perfusion defect volume type	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13480	C13480	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation indicator	The indicator of ischemic infarction with hemorrhagic transformation being present	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1152-C19057	C19057	Diabetes mellitus complications other text	The free-text field related to 'Diabetes mellitus complications type' specifying other text. Type(s) of complications related to diabetes mellitus the participant/subject has experienced or is experiencing	Supplemental	Medical History	False	Stroke	Stroke
F2380-C12887	C12887	Echocardiogram left ventricular concentric remodel status	Status of concentric remodeling in the left ventricle on the echocardiogram	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1169-C58722	C58722	Specimen collection position type	Indicate the position of the participant/subject during sample collection	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1177-C04500	C04500	ECG atrial arrhythmia type	Type of atrial arrhythmia, if any, apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10726	C10726	Echocardiogram left interventricular septal thickness end diastole measurement	Measurement of left ventricular end - diastolic septal thickness (IVSTd) obtained by echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke
F1162-C58893	C58893	Clinical stroke time based ischemic stroke laterality type	Indicate the laterality of the ischemic stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C14288	C14288	Adjunctive treatment indicator	Indicates if any adjunctive treatments were or are being performed on the participant/subject to preserve or increase independence	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1151-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Stroke	Stroke
F1169-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14233	C14233	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade	The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1056-C12849	C12849	Cardiac MRI left ventricle trabeculations count	Count of trabeculations in the left ventricle when non-compaction is present	Supplemental	Cardiac Magnetic Resonance Imaging (MRI)	False	Stroke	Stroke
F1158-C58805	C58805	Pre-hospital stroke screen tool type	The stroke screen tool used to determine stroke status by EMS personnel	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2828-C54263	C54263	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval lower bound value	Confidence interval lower bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1203-C18884	C18884	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1152-C52600	C52600	Medical history transient ischemic attack range	The element related to the number of transient ischemic attacks (TIAs) the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F2380-C12895	C12895	Echocardiogram right ventricular internal dimension end systole measurement	Measurement of right ventricular end - systolic internal dimension (RVIDs) obtained by echocardiography	Supplemental	Echocardiogram II	False	Stroke	Stroke
F1177-C04508	C04508	ECG previous myocardial infarction status	Status of patterns of previous myocardial infarction apparent on the electrocardiogram (ECG/EKG) being reported	Supplemental	Electrocardiogram (ECG)	False	Stroke	Stroke
F0936-C10734	C10734	Echocardiogram left ventricle mass measurement	Left ventricle mass (index) measured with echocardiography	Supplemental	Echocardiogram	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.