CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1153-C52570	C52570	Subarachnoid hemorrhage family member relationship text	Specify the relationship(s) that a family member with subarachnoid hemorrhage has with the subject/participant	Exploratory	Family History	False	Stroke	Stroke
F2567-C07387	C07387	PTSD Checklist Civilian (PCL-C) - Falling asleep indicator	Indicator of whether the subject experiences trouble falling or staying asleep, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1182-C58885	C58885	Supportive medical equipment type	If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55349	C55349	Microdialysis cerebral Ictus monitoring interval	The period of time elapsed between ictus and monitoring for cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1206-C12207	C12207	Gastrointestinal therapy take nutrition supplement indicator	Indicator whether the participant/subject is taking nutritional supplements	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C55362	C55362	Multiplex platform normalization technique text	Free-text field to describe normalization techniques for multiplex platforms	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54772	C54772	Imaging aneurysm wall shear stress minimum measurement	Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C58890	C58890	Imaging aneurysm kinetic energy mean unit of measure	The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C58998	C58998	Medication ADHD ADD current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken Attention Deficit Hyperactivity Disorder (ADHD) or Attention Deficit Disorder (ADD) medications	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1206-C54997	C54997	Potency enhancing drug former use age end value	Age in years at which the subject/participant stopped taking the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1150-C58783	C58783	Race expanded paternal category	Category of race(s) or region(s) the participant/subject's father most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F1164-C13522	C13522	Monocular visual loss status	Whether the participant/subject has monocular visual loss at bedside assessment	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1151-C52560	C52560	Occupation paid type	Type of paid occupation as defined by the International Labor Organization/International Standard Classification of Ocupations (ILO/ISCO)	Exploratory	Social Status	False	Stroke	Stroke
F1155-C16055	C16055	Full term delivery child indicator	Indicates whether the participant's/subject's child was delivered full-term	Exploratory	Pregnancy and Perinatal History	False	Stroke	Stroke
F1150-C18806	C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
F2832-C13205	C13205	Generalized Anxiety Disorder (GAD-7) - feeling nervous scale	Scale describing how often participant/subject has been bothered by feeling nervous, anxious or on edge, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
F2567-C07380	C07380	PTSD Checklist Civilian (PCL-C) - Thinking about indicator	Indicator of whether the subject experiences avoiding thinking about or talking about a stressful experience from the past or avoiding having feelings related to it, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F2567-C07388	C07388	PTSD Checklist Civilian (PCL-C) - Irritable indicator	Indicator of whether the subject experiences feeling irritable or having angry outbursts, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
F1182-C58886	C58886	Supportive medical equipment other text	The free-text field related to 'Supportive medical equipment type' specifying other text. If the participant/ subject was provided with any supportive medical equipment, describes the type(s) of equipment received	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1169-C55352	C55352	Microdialysate source type	The free-text field to specify the type of microdialysate specimen source	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54765	C54765	Imaging aneurysm kinetic energy mean measurement	Measurement of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C12208	C12208	Gastrointestinal therapy nutrition supplement type	Type(s) of nutritional supplement(s) being taken by the participant/subject	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C55363	C55363	Multiplex platform batch effect indicator	Indicator for whether there was batch effect for multiplex platforms	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54773	C54773	Imaging aneurysm shear concentration index value	Value of the shear concentration index of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1174-C58891	C58891	Imaging aneurysm shear rate mean unit of measure	Unit of measure of the mean shear rate of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.