CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C07383	PTSD Checklist Civilian (PCL-C) - Loss interest indicator	Indicator of whether the subject experiences loss of interest in activities that you used to enjoy, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C52569	Brain aneurysm family member relationship text	Specify the relationship(s) that a family member with brain aneurysm(s) has with the subject/participant	Exploratory	Family History	False	Stroke	Stroke
C07391	PTSD Checklist Civilian (PCL-C) - Jumpy indicator	Indicator of whether the subject experiences feeling jumpy or easily startled, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C55348	Device model number	The model number for the device used	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C55361	Microdialysis cerebral novel target analyte indicator	The indicator related to whether there were any novel target analytes in the cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54771	Imaging aneurysm wall shear stress maximum measurement	Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C54993	Cocaine exposure age end value	Age in years at which the subject/participant's exposure to cocaine ended	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C54916	Unruptured intracranial aneurysm observation reason	Reason for observation only of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C58782	Race expanded maternal category	Category of race(s) or region(s) the participant/subject's mother most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
C19482	Paid work hour week count	The number of hours per week in paid work	Exploratory	Social Status	False	Stroke	Stroke
C58929	Medical history carotid artery stenting recent date	Date of most recent carotid artery stenting performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
C13209	Generalized Anxiety Disorder (GAD-7) - restless scale	Scale describing how often participant/subject is so restless that it is hard to sit still, as a part of Generalized Anxiety Disorder (GAD-7)	Exploratory	Generalized Anxiety Disorder (GAD-7)	True	Stroke	Stroke
C07376	PTSD Checklist Civilian (PCL-C) - Dream indicator	Indicator of whether the subject experiences repeated, disturbing dreams of a stressful experience from the past, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C05134	Therapy rehabilitation start date time	Date (and time, if applicable and known) on which the therapy or rehabilitation started	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
C07384	PTSD Checklist Civilian (PCL-C) - Distant indicator	Indicator of whether the subject experiences feeling distant or cut off from other people, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C52570	Subarachnoid hemorrhage family member relationship text	Specify the relationship(s) that a family member with subarachnoid hemorrhage has with the subject/participant	Exploratory	Family History	False	Stroke	Stroke
C07426	PTSD Checklist Civilian (PCL-C) - Total score	A total score (range 17-85) can be obtained by summing the scores from each of the 17 items, as part of PTSD Checklist Civilian (PCL-C)	Exploratory	PTSD Checklist - Civilian (PCL-C)	True	Stroke	Stroke
C55349	Microdialysis cerebral Ictus monitoring interval	The period of time elapsed between ictus and monitoring for cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C55362	Multiplex platform normalization technique text	Free-text field to describe normalization techniques for multiplex platforms	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
C54772	Imaging aneurysm wall shear stress minimum measurement	Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C54994	Potency enhancing drug current former use type	Type of potency-enhancing drug formerly or currently taken by the subject/participant	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
C58890	Imaging aneurysm kinetic energy mean unit of measure	The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
C18806	Country of residence other text	The free-text field related to 'Country of residence code' specifying other text. Code (ISO 3166-1 alpha-2) for the country where the participant/subject currently lives	Exploratory	Demographics	False	Stroke	Stroke
C58783	Race expanded paternal category	Category of race(s) or region(s) the participant/subject's father most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.