CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1154-C00730	C00730	Alcohol use frequency	The frequency of consumption of alcohol by the participant	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1154-C00708	C00708	Alcohol use related to hospitalization indicator	Indicator of whether the participant/subject has been hospitalized for an alcohol-related problem (i.e., esophageal varices, delirium tremens (DTs), cirrhosis and others)	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C00702	C00702	Alcohol use started age value	Age in years when participant/subject started ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C55966	C55966	Alcohol use stopped age not applicable status	Status indicating that age quit drinking does not apply to the subject/participant, as they are still ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
F1154-C00700	C00700	Alcohol use stopped age value	Age in years when participant/subject stopped ingesting alcoholic beverages, including social drinking	Supplemental	Behavioral History	False	Stroke	Stroke
F1169-C58717	C58717	Alcoholic drink not applicable last year indicator	Indicates if the participant/subject consumed no alcohol within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1157-C14639	C14639	Ambulatory status	Status that reflects the participant's ability to walk	Core	Prior Functional Status	False	Stroke	Stroke
F2827-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2827-C54731	C54731	Aneurysm bottleneck factor value	Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54737	C54737	Aneurysm calcification indicator	Indicator for the presence of evidence of calcification	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54725	C54725	Aneurysm diameter maximum measurement	Measurement of the maximum diameter of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54740	C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C58813	C58813	Aneurysm formation de novo indicator	Indicator for the presence of de novo formation of aneurysm since last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54726	C54726	Aneurysm height measurement	Measurement of the height of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54893	C54893	Aneurysm intervention surgical result status	Status or result of surgical intervention to treat aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2827-C54741	C54741	Aneurysm morphology type	Type of morphology exhibited by the aneurysm being documented	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54882	C54882	Aneurysm multiple indicator	Indicator of whether the subject/participant presents multiple aneurysms	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2827-C54728	C54728	Aneurysm neck maximum measurement	Maximum measurement of the neck of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C54728	C54728	Aneurysm neck maximum measurement	Maximum measurement of the neck of the aneurysm being described	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2826-C54895	C54895	Aneurysm rupture occur surgery procedure grade	Grade of rupture of aneurysm occurring during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1174-C54739	C54739	Aneurysm shape pathology type	Type of shape or pathology of the aneurysm being documented	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2827-C54739	C54739	Aneurysm shape pathology type	Type of shape or pathology of the aneurysm being documented	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54734	C54734	Aneurysm sidewall branch count	Count of sidewall branches of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2827-C54742	C54742	Aneurysm size increase indicator	Indicator for whether the aneurysm being documented has increased diameter = 1 mm in any direction in comparison to last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.