CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1181-C58859	C58859	Recreational prescription drug abuse discontinue counsel indicator	Indicates if counseling to discontinue recreational or prescription drug abuse was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program, use of an alternative treatment, or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58988	C58988	Medication hormone replacement current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken hormonal replacement medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1162-C58925	C58925	Sophia chance findings during routine imaging other text	The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2826-C54912	C54912	Endovascular surgery procedure duration	Duration in minutes of the endovascular surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2370-C53896	C53896	Stroop Color and Word Test (SCW) - Word raw score	Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F1206-C58996	C58996	Medication other past week type	Type of other medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C58727	C58727	Occupation primary prior event other status text	The free-text field to capture other status indicating the participant's/subject's primary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F1180-C58787	C58787	Thrombectomy artery anatomic site	Artery anatomic site(s) where a thrombectomy was received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2370-C53904	C53904	Stroop Color and Word Test (SCW) - Color word raw score	Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F1180-C58795	C58795	Vertebral artery revascularization procedure other text	The free-text field related to 'Vertebral artery revascularization procedure type' specifying other text. Type of vertebral artery revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54054	C54054	D-KEFS Color-Word Interference Test (CWIT) -Condition 1 Scaled Score	Scaled score of color naming, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58964	C58964	Medication anticoagulant current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken anticoagulant medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1178-C58958	C58958	Lipid lower agent stroke discharge prescribe type	Type(s) of lipid lowering agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2827-C54726	C54726	Aneurysm height measurement	Measurement of the height of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1171-C58828	C58828	Imaging acute ischemic lesion volume sequence type	Indicates the imaging acute ischemic lesion volume sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2836-C54688	C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54272	C54272	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory vs. attention difference score	Difference score calculated as a subtraction of Attention index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1171-C58838	C58838	Epidural hematoma location anatomic site	The location of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58884	C58884	Supportive medical equipment indicator	Indicates if the participant/ subject was provided with any supportive medical equipment	Exploratory	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C54758	C54758	Imaging aneurysm irregular indicator	Indicator of whether the aneurysm is irregular as determined with imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1150-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Stroke	Stroke
F2836-C58680	C58680	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale	Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54280	C54280	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus language difference score	Difference score calculated as a subtraction of Language index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C54767	C54767	Imaging aneurysm vorticity mean measurement	Measurement of the mean vorticity of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.