CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58999 Medication cold preparation current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications

Exploratory Prior and Concomitant Medications Stroke Stroke
C58730 Occupation paid after event code

Code corresponding to type of paid occupation after the event as defined by the International Labor Organization/International Standard Classification of Occupations (ILO/ISCO)

Supplemental Return to Work Stroke Stroke
C58790 Intracranial revascularization procedure other text

The free-text field related to 'Intracranial revascularization procedure type' specifying other text. Type of intracranial revascularization procedure received by the participant/subject

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54049 D-KEFS Color-Word Interference Test (CWIT) -Total Uncorrected Errors Count

Count of total uncorrected errors, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54998 Medication immunosuppressant current former type

Type of immunosuppressant medication formerly or currently taken by the subject/participant

Exploratory Prior and Concomitant Medications Stroke Stroke
C54922 Unruptured intracranial aneurysm treatment management score

Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model

Supplemental Unruptured Intracranial Aneurysm Management Stroke Stroke
C54259 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value

Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58736 Needle gauge size type other text

The free-text field related to 'Needle gauge size type' specifying other text

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58898 Causative Classification System (CCS) - large artery atherosclerosis phenotype status

The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58827 Hyperdense venous sinus or cortical vein specify text

Specify in text the hyperdense observations that were made

Supplemental Parenchymal Imaging Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54267 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type

Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58837 Epidural hematoma thickness measurement

Measured thickness in mm of the epidural hematoma

Supplemental Parenchymal Imaging Stroke Stroke
C58878 Therapy or rehabilitation duration

Duration in weeks of therapy or rehabilitation services the participant/subject received

Supplemental Rehabilitation Therapies Stroke Stroke
C54757 Imaging aneurysm dome size value

Value of the aneurysm dome size determined by imaging

Supplemental Vessel Imaging Angiography Stroke Stroke
C58948 Family history coronary artery disease (CAD) youngest age unknown status

Status indicating the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack, if there is a family history of coronary artery disease (CAD)

Supplemental Family History Stroke Stroke
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C54275 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58887 Follow-up care specialist type

Type of specialist the participant/subject received follow-up care from

Supplemental-Highly Recommended Rehabilitation Therapies Stroke Stroke
C54766 Imaging aneurysm shear rate mean measurement

Measurement of the mean shear rate of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

Supplemental Laboratory Tests Stroke Stroke
C59006 Date time unknown status

Status indicating that the date/time of an event is unknown

Supplemental Assessment of Transient Neurologic Deficits Resolved Prior to Presentation Stroke Stroke
C54283 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54090 Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT) - Part B T score

Normalized T score for Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54774 Imaging aneurysm low wall shear stress percent value

Value of the percentage of the aneurysm that is under low wall shear stress (WSS)

Exploratory Vessel Imaging Angiography Stroke Stroke
Displaying 201 - 225 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.