CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 201 - 225 of 1542

« first
‹ previous
…
5
6
7
8
9
10
11
12
13
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1182-C58878	C58878	Therapy or rehabilitation duration	Duration in weeks of therapy or rehabilitation services the participant/subject received	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F2836-C54693	C54693	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale	Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1171-C58842	C58842	Herniation location type	Indicates herniation location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2168-C20535	C20535	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale	Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F1174-C54763	C54763	Imaging aneurysm Raymond Roy Occlusion Classification category	Category of the Raymond-Roy Occlusion Classification that applies to the aneurysm, as determined from imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1181-C58845	C58845	Discharge origin location type	The type of origin location that is discharging the participant/subject	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54067	C54067	Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type	Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58976	C58976	Medication diuretic past week type	Type of diuretic medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1949-C54085	C54085	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total time	The total time in seconds taken for the participant to complete Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54741	C54741	Aneurysm morphology type	Type of morphology exhibited by the aneurysm being documented	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2826-C54902	C54902	Hematoma evacuate surgery procedure indicator	Indicator of whether surgery or other procedure was performed to evacuate a hematoma	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1150-C58783	C58783	Race expanded paternal category	Category of race(s) or region(s) the participant/subject's father most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F1167-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1174-C54771	C54771	Imaging aneurysm wall shear stress maximum measurement	Measurement of the maximum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1181-C58854	C58854	High sodium intake avoid counsel indicator	Indicates if counseling to avoid high sodium intake was provided at discharge. The intervention can be education, discussion, or referral to a dietitian or formal program	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58984	C58984	Medication ACE inhibitor past week type	Type of ACE (angiotensin-converting enzyme) inhibitor medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2828-C54247	C54247	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1152-C52599	C52599	Medical history hemorrhagic stroke type	The element related to the type of hemorrhagic stroke the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2826-C54910	C54910	Endovascular complication post surgery procedure type	Type of endovascular complication(s) which occurred following surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1178-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1174-C58889	C58889	Imaging vessel angiography Tan collateral score	Indicates vessel angiography Tan collateral score	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1181-C58863	C58863	Contraceptive hormone replacement treatment intervention type	If the participant/subject received counseling related to contraceptive/hormone replacement treatment, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58992	C58992	Medication hormone replacement therapy route other text	The free-text field related to 'Medication hormone replacement therapy route type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke

Displaying 201 - 225 of 1542

« first
‹ previous
…
5
6
7
8
9
10
11
12
13
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.