CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58999 Medication cold preparation current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications

Exploratory Prior and Concomitant Medications Stroke Stroke
C58730 Occupation paid after event code

Code corresponding to type of paid occupation after the event as defined by the International Labor Organization/International Standard Classification of Occupations (ILO/ISCO)

Supplemental Return to Work Stroke Stroke
C58790 Intracranial revascularization procedure other text

The free-text field related to 'Intracranial revascularization procedure type' specifying other text. Type of intracranial revascularization procedure received by the participant/subject

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54049 D-KEFS Color-Word Interference Test (CWIT) -Total Uncorrected Errors Count

Count of total uncorrected errors, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58811 Pre-hospital severity scale total score

The total score of the severity scale, if completed

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C58831 Stroke initial residence or discharge destination other text

The free-text field related to 'Stroke initial residence or discharge destination type' specifying other text. Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay

Supplemental Hospital Discharge Stroke Stroke
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental Demographics Stroke Stroke
C53951 Stroop Color and Word Test (SCW) - Color word T score

Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Stroke Stroke
C54754 Specimen collection tube other text

The free-text field related to other tube for specimen collection

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58944 Alcohol 30 day use indicator

Indicator of whether the participant/subject consumed at least one alcoholic drink within the past 30 days

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C58935 Facial segmental hemangioma PHACE syndrome indicator

The indicator related to whether the participant/subject has facial segmental hemangioma/PHACE syndrome

Exploratory Medical History Stroke Stroke
C54267 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type

Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58740 Specimen collection grossly bloody indicator

Indicate whether the specimen collection was grossly bloody

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58904 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - atherothrombosis grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58833 Leukoaraiosis sequence type

Indicate the leukoaraiosis sequence type

Supplemental Parenchymal Imaging Stroke Stroke
C58878 Therapy or rehabilitation duration

Duration in weeks of therapy or rehabilitation services the participant/subject received

Supplemental Rehabilitation Therapies Stroke Stroke
C54728 Aneurysm neck maximum measurement

Maximum measurement of the neck of the aneurysm being described

Supplemental Vessel Imaging Angiography Stroke Stroke
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C54275 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score

Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58841 Herniation present indicator

Indicates if any herniation present

Supplemental Parenchymal Imaging Stroke Stroke
C58887 Follow-up care specialist type

Type of specialist the participant/subject received follow-up care from

Supplemental-Highly Recommended Rehabilitation Therapies Stroke Stroke
C54762 Imaging aneurysm occlusion percent value

Value of percentage of aneurysm that is occluded, as determined from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C52622 Medical history cardiac catheterization recency rate

The element related to the recency of cardiac catheterization the participant/subject has had

Exploratory Medical History Stroke Stroke
C54283 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54770 Imaging aneurysm wall shear stress mean measurement

Measurement of the mean wall shear stress of the aneurysm, as computed from imaging

Supplemental Vessel Imaging Angiography Stroke Stroke
Displaying 176 - 200 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.