CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54264 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval upper bound value

Confidence interval upper bound, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C58808 Pre-hospital severity scale type

The stroke severity scale used to determine stroke severity before hospital intake

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

 Supplemental History Data Source and Reliability False Stroke Stroke
C58875 Therapy or rehabilitation received status other text

The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject

 Supplemental Rehabilitation Therapies False Stroke Stroke
C54727 Aneurysm width measurement

Measurement of the width of the aneurysm being described

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C58736 Needle gauge size type other text

The free-text field related to 'Needle gauge size type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C20529 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Usual activities category

Category determining the extent to which the participants has problems with usual activities (e.g. work, study, housework, family or leisure activities), as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Stroke Stroke
C54889 Intervention surgical status

Status of surgical intervention

 Supplemental-Highly Recommended SAH Surgical/Procedural Interventions False Stroke Stroke
C54063 Delis-Kaplan Executive Function System (DKEFS) - Completion time contrast Type

Type of primary contrast measures for completion times, as part of Delis-Kaplan Executive Function System (DKEFS)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C55009 Specimen storage temperature value

The temperature value for the specimen being stored

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58840 Subdural hematoma location anatomic site

The location of the subdural hematoma

 Supplemental Parenchymal Imaging False Stroke Stroke
C58973 Medication diabetic past week other text

The free-text field related to 'Medication diabetic past week type', specifying other text

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C52880 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part B as part of the Trail Making Test (TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C54736 Contralateral stenocclusive vessel disease indicator

Indicator for the presence of contralateral stenoocclusive vessel disease

 Exploratory Aneurysm Location and Dimensions False Stroke Stroke
C58899 Causative Classification System (CCS) - cardiac embolism phenotype status

The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C54897 Complication surgery procedure aneurysm treatment type

Type of complication which occurred during surgery or other procedure to treat aneurysm

 Supplemental SAH Surgical/Procedural Interventions False Stroke Stroke
C58850 Physical activity increase intervention type

If the participant/subject received recommendations to increase physical activity, describes the type(s) of interventions received

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C54071 Delis-Kaplan Executive Function System (DKEFS) - All error types condition 4 scaled score

Scaled score of all error types for condition 4 Number-Letter Switching, as part of Delis-Kaplan Executive Function System (DKEFS)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C58981 Medication angiotensin receptor blocker past week other text

The free-text field related to 'Medication angiotensin receptor blocker past week type', specifying other text

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C54755 Arch injection indicator

Indicator of whether an arch injection was done for angiography

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C54905 Vessel occlude temporary surgery procedure maximum duration

Maximum duration of temporary vessel occlusion during surgery or other procedure

 Supplemental SAH Surgical/Procedural Interventions False Stroke Stroke
C58860 Recreational prescription drug abuse discontinue intervention type

If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C58989 Medication hormone replacement past week type

Type of hormone replacement medication taken by the subject/participant within the past week

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C18731 Lab test other text

The free-text field related to 'Lab test name' specifying other text. Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested and any special instructions

 Supplemental Laboratory Tests False Stroke Stroke
C54913 Endovascular intervention result Raymond Roy grade

Grade on the Raymond-Roy occlusion classification scale of the result of endovascular intervention for aneurysm

 Supplemental SAH Surgical/Procedural Interventions False Stroke Stroke
Displaying 176 - 200 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.