CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2826-C54894	C54894	Monitoring intraprocedural physiological indicator	Indicator of whether any type of physiological monitoring was maintained during the surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54068	C54068	Delis-Kaplan Executive Function System (DKEFS) - Error raw score	Errors as a raw score, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F2836-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54278	C54278	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1171-C58843	C58843	Findings other present indicator	Indicates if Other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1152-C22679	C22679	Medical history first depressive episode diagnosis age value	Value of a participant's/subject's age when first depressive episode was diagnosed	Exploratory	Medical History	False	Stroke	Stroke
F1169-C55349	C55349	Microdialysis cerebral Ictus monitoring interval	The period of time elapsed between ictus and monitoring for cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C54764	C54764	Imaging aneurysm parent branch vessel occlusion indicator	Indicator of whether a parent or branch vessel of the aneurysm exhibits occlusion, as determined from imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2822-C54722	C54722	Death age value	Value of the subject/participant's age at death	Supplemental	Death	False	Stroke	Stroke
F1206-C54986	C54986	Stimulant current former use other text	The free-text field related to 'Stimulant current former use type' specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C52604	C52604	Medical history carotid endarterectomy anatomic site	The element related to the location of a carotid endarterectomy the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F1174-C54772	C54772	Imaging aneurysm wall shear stress minimum measurement	Measurement of the minimum wall shear stress of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1151-C19260	C19260	Occupation secondary status	The status indicating the participant's/subject's current secondary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F1152-C52702	C52702	Connective tissue disease other type text	The free-text field related to other type of connective tissue disease	Supplemental	Medical History	False	Stroke	Stroke
F1206-C54994	C54994	Potency enhancing drug current former use type	Type of potency-enhancing drug formerly or currently taken by the subject/participant	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F2436-C54917	C54917	Unruptured intracranial aneurysm treatment reason	Reason for treatment of unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1178-C58949	C58949	Medication stroke discharge prescribe category	Class(es) of medications the participant/subject was prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54254	C54254	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C58890	C58890	Imaging aneurysm kinetic energy mean unit of measure	The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1154-C58938	C58938	Drug or substance illicit or recreational use other text	The free-text field related to 'Drug or substance illicit or recreational use category', specifying other text	Supplemental-Highly Recommended	Behavioral History	False	Stroke	Stroke
F1152-C58929	C58929	Medical history carotid artery stenting recent date	Date of most recent carotid artery stenting performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1178-C58957	C58957	Anti diabetic agent stroke discharge prescribe other text	The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54262	C54262	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value	Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1169-C58724	C58724	Specimen hemolyzed indicator	Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.