CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2826-C54885	C54885	Subarachnoid hemorrhage ictus elapsed day count	Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58800	C58800	Stroke surgical operative preventive treatment indicator	Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54059	C54059	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score	Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58969	C58969	Medication cholesterol reduce control past week other text	The free-text field related to 'Medication cholesterol reduce control past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F1169-C58744	C58744	Specimen ambient light protection indicator	Indicate whether the specimen was protected from ambient light	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1151-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F2838-C58906	C58906	Vasospasm resistive index value	Indicates vasospasm resistive Index (RI)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54731	C54731	Aneurysm bottleneck factor value	Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54893	C54893	Aneurysm intervention surgical result status	Status or result of surgical intervention to treat aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54067	C54067	Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type	Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58977	C58977	Medication diuretic past week other text	The free-text field related to 'Medication diuretic past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C58752	C58752	Specimen expiration not applicable indicator	Indicate whether there is no expiration date for the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54084	C54084	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count	The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54740	C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54901	C54901	Craniectomy perform indicator	Indicator of whether craniectomy was performed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58855	C58855	High sodium intake avoid intervention type	If the participant/subject received counseling to avoid high sodium intake, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58985	C58985	Medication ACE inhibitor past week other text	The free-text field related to 'Medication ACE inhibitor past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1158-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1155-C58823	C58823	Pregnancy or delivery risk factor fetal abnormal recognize in utero text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying the fetal abnormality(ies) recognized in utero. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2826-C54909	C54909	Endovascular complication intra surgery procedure type	Type of endovascular complication(s) which occurred during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.