CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 1543
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58724 Specimen hemolyzed indicator

Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58895 Clinical stroke tissue based ischemic stroke laterality type

Indicate the laterality of the ischemic stroke

Supplemental Stroke Types and Subtypes Stroke Stroke
C58822 Imaging acute infarcts count category

The number of acute infarct(s)

Supplemental Parenchymal Imaging Stroke Stroke
C55004 Specimen centrifugation temperature value

The value related to temperature in a centrifuge

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58946 Regular moderate intense aerobic exercise physical activity days week number

Number of days per typical week that the participant/subject engages in at least moderate-intensity aerobic exercise physical activities. Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously

Supplemental Behavioral History Stroke Stroke
C59010 Postpartum period current status

Status of the participant/subject in the postpartum period currently

Supplemental Medical History Stroke Stroke
C54269 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus visuospatial constructional difference score

Difference score calculated as a subtraction of Visuospatial/Constructional index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58908 Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade

The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C)

Supplemental Stroke Types and Subtypes Stroke Stroke
C58835 Perihematomal edema MRI sequence type

Indicates sequence employed for Intraparenchymal hematoma MRI

Supplemental Parenchymal Imaging Stroke Stroke
C58880 Assistive device type

Type for all assistive devices currently used by the participant/subject

Supplemental Rehabilitation Therapies Stroke Stroke
C54738 Aneurysm thrombus indicator

Indicator for the presence of evidence of thrombus

Supplemental Vessel Imaging Angiography Stroke Stroke
C54693 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C54277 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus language difference score

Difference score calculated as a subtraction of Language index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58749 Freezing method type other text

The free-text field related to freezing method type

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58915 Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status

The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system

Supplemental Stroke Types and Subtypes Stroke Stroke
C54085 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total time

The total time in seconds taken for the participant to complete Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54741 Aneurysm morphology type

Type of morphology exhibited by the aneurysm being documented

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C54902 Hematoma evacuate surgery procedure indicator

Indicator of whether surgery or other procedure was performed to evacuate a hematoma

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58856 High alcohol consumption avoid counsel indicator

Indicates if counseling to avoid high alcohol consumption was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program

Supplemental Lifestyle Modification Therapies Stroke Stroke
C58986 Medication other antihypertensive past week type

Type of other antihypertensive medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Stroke Stroke
C58923 Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code

The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C54247 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54910 Endovascular complication post surgery procedure type

Type of endovascular complication(s) which occurred following surgery or other procedure

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
Displaying 151 - 175 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.