CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1542
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54051 D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 90 Duration

Duration of total time to complete for condition 1 and 2, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C58812 Pre-hospital severity scale not documented status

Indicates if a severity scale was not documented

 Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course False Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Stroke Stroke
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

 Supplemental-Highly Recommended SAH Surgical/Procedural Interventions False Stroke Stroke
C58799 Osmotic therapy type

Type of osmotic therapy received by the participant/subject

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C54059 D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score

Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C58968 Medication cholesterol reduce control past week type

Type of cholesterol-reducing/ controlling medication taken by the subject/participant within the past week

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C58906 Vasospasm resistive index value

Indicates vasospasm resistive Index (RI)

 Supplemental Vessel Imaging Transcranial False Stroke Stroke
C54731 Aneurysm bottleneck factor value

Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Stroke Stroke
C54893 Aneurysm intervention surgical result status

Status or result of surgical intervention to treat aneurysm

 Supplemental SAH Surgical/Procedural Interventions False Stroke Stroke
C58845 Discharge origin location type

The type of origin location that is discharging the participant/subject

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C54067 Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type

Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C58976 Medication diuretic past week type

Type of diuretic medication taken by the subject/participant within the past week

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

 Exploratory Physical/Neurological Exam False Stroke Stroke
C58747 Specimen freezing date and time

Date (and time if applicable and known) when the specimen was frozen

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

 Supplemental-Highly Recommended Stroke Types and Subtypes False Stroke Stroke
C54084 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count

The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C54740 Aneurysm followup shape type

Type of shape of the aneurysm at follow-up

 Exploratory Aneurysm Location and Dimensions False Stroke Stroke
C54901 Craniectomy perform indicator

Indicator of whether craniectomy was performed

 Supplemental SAH Surgical/Procedural Interventions False Stroke Stroke
C58854 High sodium intake avoid counsel indicator

Indicates if counseling to avoid high sodium intake was provided at discharge. The intervention can be education, discussion, or referral to a dietitian or formal program

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C58984 Medication ACE inhibitor past week type

Type of ACE (angiotensin-converting enzyme) inhibitor medication taken by the subject/participant within the past week

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C58873 Blood collection method category

Indicate the method of blood collection

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58921 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C54095 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time scaled score

Complete time as a scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
Displaying 151 - 175 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.