CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1326 - 1350 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18986 Extracranial venous thromboembolism other text

The free-text field related to 'Extracranial venous thromboembolism type', specifying other text

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C00021 Ethnicity USA paternal category

Ethnicity the participant/subject's father most closely identifies with

Supplemental Demographics Stroke Stroke
C10773 Echocardiogram right ventricular diastolic wall thickness z score

Calculated z-score for the right ventricular wall thickness in diastole (RVWTd) measured with echocardiography

Supplemental Echocardiogram Stroke Stroke
C13862 Imaging magnetic resonance based identification perfusion defect volume type

Indicates MR based identification of perfusion defect volume type

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13473 Stroke Adjudication Worksheet - not meet WHO definition indicator

The indicator of whether the event is not a stroke according to the WHO definition

Supplemental Stroke Adjudication Form Stroke Stroke
C55747 Specimen insulate shipment box indicator

The indicator related to whether the specimen insulated in a shipment box

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C14269 Sophia signs symptoms presentation type

Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14049 Imaging lesion absolute threshold amount text

Indicates acute lesion threshold absolute amount

Supplemental Parenchymal Imaging Stroke Stroke
C01712 Lab specimen type

Type of specimen collected for the laboratory test

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C06108 Tobacco smoke pack-year value

If participant is a former or current cigarette smoker, documents the number of pack-years of smoking [(average number smoked daily)/20] x (number of years smoked) = pack-years]

Supplemental-Highly Recommended Behavioral History Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C11131 Body mass index value

Value of the participant's body mass index, calculated from height and weight

Supplemental Vital Signs Stroke Stroke
C13756 Imaging acute infarct present status

The status of the presence of acute infarct(s)

Supplemental Parenchymal Imaging Stroke Stroke
C02485 Traumatic aneurysm anatomic site

Anatomic site of the traumatic aneurysm

Supplemental Vessel Imaging Angiography Stroke Stroke
C10728 Echocardiogram left ventricular internal dimension end systole measurement

Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography

Supplemental Echocardiogram II Stroke Stroke
C13788 Imaging chronic infarct anatomic site

Anatomic site of the chronic infarct(s)

Supplemental Parenchymal Imaging Stroke Stroke
C02494 Imaging study date and time

Date (and time, if applicable and known) the radiologic study was obtained

Supplemental-Highly Recommended Vessel Carotid Ultrasound Stroke Stroke
C10742 Echocardiogram mitral valve regurgitation degree status

Status of the degree of regurgitation (leaking of the valve that allows blood to flow in the reverse direction) in the mitral valve as assessed by echocardiography

Supplemental Echocardiogram II Stroke Stroke
C12863 Echocardiogram left atrium view type

Type of view of the left atrium on the echocardiogram

Supplemental Echocardiogram II Stroke Stroke
C01553 Blood pressure measurement position type

Indicator of the participant's position during the blood pressure measurement

Supplemental Vital Signs Stroke Stroke
C02446 Intraventricular hemorrhage status

Indicator of acute-appearing blood within the ventricles

Supplemental Parenchymal Imaging Stroke Stroke
C12871 Echocardiogram aortic valve stenosis degree status

Status of the degree of aortic valve stenosis as assessed by echocardiography

Supplemental Echocardiogram II Stroke Stroke
C12843 Cardiac MRI ventricle end systolic volume measurement

Measurement in milliliters of the selected ventricle's volume at the end of systole as obtained by cardiac magnetic resonance imaging (MRI)

Supplemental Cardiac Magnetic Resonance Imaging (MRI) Stroke Stroke
C12889 Echocardiogram right ventricle fractional shortening measurement

Measurement of the difference between end-diastolic and end-systolic dimensions of the right ventricle divided by end-diastolic dimension obtained by echocardiography. FS or Fractional Shortening in percentage = EDD minus ESD divided by EDD times 100, where EDD = RV End Diastolic Dimension and ESD = RV End Systolic Dimension

Supplemental Echocardiogram II Stroke Stroke
C10728 Echocardiogram left ventricular internal dimension end systole measurement

Measurement of left ventricular end - systolic internal dimension (LVIDs) obtained by echocardiography

Supplemental Echocardiogram Stroke Stroke
Displaying 1326 - 1350 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.