CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1152-C52619	C52619	Medical history atrial fibrillation other cause indicator	The indicator related to other cause of atrial fibrillation	Exploratory	Medical History	False	Stroke	Stroke
F1169-C58750	C58750	Blood collection tube additive type other text	The free-text field related to other blood collection tube additive type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58916	C58916	Vascular effects of Infection in Pediatric Stroke (VIPS) - focal cerebral arteriopathy type	Type of focal cerebral arteriopathy (FCA), as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54082	C54082	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count	The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54738	C54738	Aneurysm thrombus indicator	Indicator for the presence of evidence of thrombus	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54899	C54899	Blood transfusion surgery procedure indicator	Indicator of whether blood transfusion was performed during surgery or procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58853	C58853	Dietary intervention type	If the participant/subject received dietary recommendations, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58983	C58983	Medication calcium-channel blocker past week other text	The free-text field related to 'Medication calcium-channel blocker past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1162-C58924	C58924	Focal Cerebral Arteriopathy Severity Score (FCASS) - follow up sum score	Score related to the follow-up sum of the five individual arterial segment scores (without weighting) and the delta point (if applicable), as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1155-C58820	C58820	Pregnancy or delivery risk factor status	The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2827-C58813	C58813	Aneurysm formation de novo indicator	Indicator for the presence of de novo formation of aneurysm since last imaging	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54907	C54907	Aneurysm treatment endovascular type	Type of endovascular aneurysm treatment	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58862	C58862	Contraceptive hormone replacement treatment counsel indicator	Indicates if counseling relating to contraceptive/hormone replacement treatment was provided at discharge. The intervention can be discussion or use of alternate treatment or approaches	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C58991	C58991	Medication hormone replacement therapy route type	Type of administration route for the hormone replacement therapy medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C54924	C54924	Work responsibility level previous resume indicator	Indicator of whether the subject/participant has resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Stroke	Stroke
F1180-C21668	C21668	ICD-10-CM code	Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1158-C58807	C58807	Pre-hospital stroke screen tool outcome status	The outcome status of the pre-hospital stroke screen used	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1169-C54750	C54750	Cerebrospinal fluid collection method other text	The free-text field related to other for method related to cerebrospinal fluid (CSF) being collected	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1154-C58940	C58940	Tobacco cigarette use stopped age value	Age in years when participant/subject stopped using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1152-C58931	C58931	Menopause treatment type	Type of treatment the participant/subject is receiving or has received for menopause	Exploratory	Medical History	False	Stroke	Stroke
F2436-C54922	C54922	Unruptured intracranial aneurysm treatment management score	Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F2828-C54259	C54259	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value	Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1169-C58736	C58736	Needle gauge size type other text	The free-text field related to 'Needle gauge size type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58898	C58898	Causative Classification System (CCS) - large artery atherosclerosis phenotype status	The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58827	C58827	Hyperdense venous sinus or cortical vein specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.