CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58737	C58737	Blood collection tube number	Enter the number of collection tubes used	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58899	C58899	Causative Classification System (CCS) - cardiac embolism phenotype status	The status of the predefined cardiac embolism phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58828	C58828	Imaging acute ischemic lesion volume sequence type	Indicates the imaging acute ischemic lesion volume sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1152-C52602	C52602	Medical history migraine aura indicator	The indicator related to the participant/subject having migraine(s) with aura	Supplemental	Medical History	False	Stroke	Stroke
F2370-C53902	C53902	Stroop Color and Word Test (SCW) - Color residual score	Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2824-C58733	C58733	Occupation secondary after event status	The status indicating the participant's/subject's secondary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1151-C19258	C19258	Occupation primary status	The status indicating the participant's/subject's current primary occupational status	Exploratory	Social Status	False	Stroke	Stroke
F1180-C58792	C58792	Carotid revascularization procedure type	Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54052	C54052	D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 180 Duration	Duration of total time to for condition 3 and 4, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58961	C58961	Medication antiplatelet current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken antiplatelet medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1178-C58957	C58957	Anti diabetic agent stroke discharge prescribe other text	The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54262	C54262	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story recall percentage value	Percentile rank score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1158-C58809	C58809	Pre-hospital severity scale type other text	The free-text field related to "Pre-hospital severity scale type" specifying other text	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1169-C58752	C58752	Specimen expiration not applicable indicator	Indicate whether there is no expiration date for the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2828-C54270	C54270	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Statistical significance value	Statistical significance, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1154-C58941	C58941	Tobacco cigarette use stopped age not applicable status	Status indicating that age stopped cigarette use does not apply to the subject/participant, as they are still using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1152-C58932	C58932	Menopause treatment type other text	The free-text field related to 'Menopause treatment type', specifying other text	Exploratory	Medical History	False	Stroke	Stroke
F1182-C58880	C58880	Assistive device type	Type for all assistive devices currently used by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C54738	C54738	Aneurysm thrombus indicator	Indicator for the presence of evidence of thrombus	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2836-C54694	C54694	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health bother emotional problem scale	Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54278	C54278	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Visuospatial constructional versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Visuospatial/Constructional index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C54764	C54764	Imaging aneurysm parent branch vessel occlusion indicator	Indicator of whether a parent or branch vessel of the aneurysm exhibits occlusion, as determined from imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2822-C54722	C54722	Death age value	Value of the subject/participant's age at death	Supplemental	Death	False	Stroke	Stroke
F1163-C21666	C21666	Diagnosis principal discharge stroke related ICD-10-CM code	If the Principal ICD-10-CM diagnosis code is a stroke-related code, then enter it here. If it is not, then select the Secondary ICD-10 diagnosis code that is stroke-related, as determined by ICD-10-CM code recorded in the medical record	Supplemental	Hospital Discharge	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.