CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1206-C54988	C54988	Stimulant current former use age start value	Age in years at which the subject/participant began taking the selected former or current stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1949-C54096	C54096	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Composite scaled score	Composite scaled scores of Number Sequencing and Letter Sequencing, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1178-C58845	C58845	Discharge origin location type	The type of origin location that is discharging the participant/subject	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54247	C54247	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Story memory total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Story Memory Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1169-C58407	C58407	Blood collection tube volume value	Volume of blood collection tube	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C58881	C58881	Expanded Thrombolysis in Cerebral Infarction (eTICI) perfusion scale grade	Indicates Expanded Thrombolysis in Cerebral Infarction (eTICI) perfusion scale grade indicator	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1152-C52621	C52621	Medical history artificial valve type	The element related to the type of artificial valve	Exploratory	Medical History	False	Stroke	Stroke
F1150-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	Demographics	False	Stroke	Stroke
F2436-C54918	C54918	Unruptured intracranial aneurysm management compliance indicator	Indicator of whether the subject/participant is complying with advice for the management of his or her unruptured intracranial aneurysm (UIA)	Exploratory	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1178-C58955	C58955	Antihypertensive agent stroke discharge prescribe other text	The free-text field related to 'Antihypertensive agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54255	C54255	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List recognition total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Recognition Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1169-C58722	C58722	Specimen collection position type	Indicate the position of the participant/subject during sample collection	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1169-C54754	C54754	Specimen collection tube other text	The free-text field related to other tube for specimen collection	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F2827-C54726	C54726	Aneurysm height measurement	Measurement of the height of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1158-C58811	C58811	Pre-hospital severity scale total score	The total score of the severity scale, if completed	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2168-C20527	C20527	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category	Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F2826-C54888	C54888	Lumbar drain indicator	Indicator of whether a lumbar drain was placed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58803	C58803	Stroke surgical operative preventive neurosurgical treatment other text	The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54062	C54062	D-KEFS Color-Word Interference Test (CWIT) -Sum of Scaled Scores	Sum of scaled scores of Color Naming and Word Reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58972	C58972	Medication diabetic past week type	Type of diabetic medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1164-C58817	C58817	Parietal lobe function status	Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F1169-C58747	C58747	Specimen freezing date and time	Date (and time if applicable and known) when the specimen was frozen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58913	C58913	Perinatal arterial ischemic stroke type	Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C52879	C52879	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time	The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54734	C54734	Aneurysm sidewall branch count	Count of sidewall branches of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.