CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2828-C54282	C54282	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1162-C58898	C58898	Causative Classification System (CCS) - large artery atherosclerosis phenotype status	The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58844	C58844	Other findings text	The free-text field to specify other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1206-C54990	C54990	Cocaine expose year prior unruptured intracranial aneurysm presentation indicator	Indicator of whether the subject/participant was exposed to cocaine in the year prior to clinical presentation of unruptured intracranial aneurysm (UIA)	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1174-C54766	C54766	Imaging aneurysm shear rate mean measurement	Measurement of the mean shear rate of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1169-C58873	C58873	Blood collection method category	Indicate the method of blood collection	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2370-C53952	C53952	Stroop Color and Word Test (SCW) - Interference T score	Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F1152-C58926	C58926	Medical history hemorrhagic stroke range	The element related to the number of hemorrhagic strokes the participant/subject has had	Exploratory	Medical History	False	Stroke	Stroke
F2008-C54058	C54058	D-KEFS Color-Word Interference Test (CWIT) -Condition 3 Scaled Score	Scaled score of inhibition, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1181-C58847	C58847	Weight loss counsel indicator	Indicates if weight loss counseling was provided at discharge. The intervention can be education, an individualized plan, or referral to a dietitian or structured program	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1206-C54998	C54998	Medication immunosuppressant current former type	Type of immunosuppressant medication formerly or currently taken by the subject/participant	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F2828-C54250	C54250	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C54774	C54774	Imaging aneurysm low wall shear stress percent value	Value of the percentage of the aneurysm that is under low wall shear stress (WSS)	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1154-C58943	C58943	E-cigarette electronic vapor product use status	Status of participant/subject's use of e-cigarettes or other electronic vaping products	Supplemental	Behavioral History	False	Stroke	Stroke
F1164-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1152-C58934	C58934	Chickenpox past twelve month indicator	The indicator related to whether the participant/subject has had chickenpox in the past 12 months	Exploratory	Medical History	False	Stroke	Stroke
F2008-C54066	C54066	Delis-Kaplan Executive Function System (DKEFS) - Condition type	Type of conditions, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1162-C58911	C58911	Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type	Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1181-C58856	C58856	High alcohol consumption avoid counsel indicator	Indicates if counseling to avoid high alcohol consumption was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1178-C58951	C58951	Anticoagulant agent stroke discharge prescribe other text	The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1179-C58852	C58852	IV tPA not started MRI selection treatment beyond 4.5 hour reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Exploratory	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F2828-C54258	C54258	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Confidence interval percentage value	Confidence interval percentage value, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C58892	C58892	Imaging aneurysm vorticity mean unit of measure	Unit of measure of the mean vorticity of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1160-C59006	C59006	Date time unknown status	Status indicating that the date/time of an event is unknown	Supplemental	Assessment of Transient Neurologic Deficits Resolved Prior to Presentation	False	Stroke	Stroke
F1182-C58876	C58876	Therapy or rehabilitation session week frequency	Frequency of therapy or rehabilitation sessions (number of session per week) the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.