CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2824-C58729	C58729	Occupation secondary prior event other status text	The free-text field to capture other status indicating the participant's/subject's secondary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke
F1180-C58789	C58789	Intracranial revascularization procedure type	Type of intracranial revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F1206-C54997	C54997	Potency enhancing drug former use age end value	Age in years at which the subject/participant stopped taking the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F1150-C58783	C58783	Race expanded paternal category	Category of race(s) or region(s) the participant/subject's father most closely identifies with	Exploratory	Demographics	False	Stroke	Stroke
F2370-C53906	C53906	Stroop Color and Word Test (SCW) - Color word residual score	Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2826-C54882	C54882	Aneurysm multiple indicator	Indicator of whether the subject/participant presents multiple aneurysms	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58797	C58797	Ventricular drain place other text	The free-text field related to 'Ventricular drain place type' specifying other text. Type of ventricular drainage placed	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54056	C54056	D-KEFS Color-Word Interference Test (CWIT) -Condition 2 Scaled Score	Scaled score of word reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F2828-C54266	C54266	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Scaled score	Scaled score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1162-C58909	C58909	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - other grade	The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of other cause (O)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58836	C58836	Perihematomal edema MRI sequence other text	The free-text field related to 'Intraparenchymal hematoma MRI sequence type' specifying other text. Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58877	C58877	Inpatient therapy or rehabilitation location type	Type of inpatient location where the participant subject received therapy or rehabilitation services	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C54739	C54739	Aneurysm shape pathology type	Type of shape or pathology of the aneurysm being documented	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1153-C58947	C58947	Family history stroke youngest age unknown status	Status indicating the youngest age an immediate family member (parent, sibling, child) suffered a stroke is unknown, if there is a family history of stroke	Supplemental	Family History	False	Stroke	Stroke
F2836-C54690	C54690	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health mental health rate scale	Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54274	C54274	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1171-C58844	C58844	Other findings text	The free-text field to specify other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1167-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Stroke	Stroke
F1174-C54765	C54765	Imaging aneurysm kinetic energy mean measurement	Measurement of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2828-C54282	C54282	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1949-C54089	C54089	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Contrast scaled score	Contrast scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1174-C54773	C54773	Imaging aneurysm shear concentration index value	Value of the shear concentration index of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C54991	C54991	Cocaine use duration	Duration in months for which the subject/participant took or has taken cocaine	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C58717	C58717	Alcoholic drink not applicable last year indicator	Indicates if the participant/subject consumed no alcohol within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1178-C58950	C58950	Anticoagulant agent stroke discharge prescribe type	Type(s) of anticoagulant agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.