CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 1543
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58878 Therapy or rehabilitation duration

Duration in weeks of therapy or rehabilitation services the participant/subject received

Supplemental Rehabilitation Therapies Stroke Stroke
C54728 Aneurysm neck maximum measurement

Maximum measurement of the neck of the aneurysm being described

Supplemental Vessel Imaging Angiography Stroke Stroke
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

Exploratory Physical/Neurological Exam Stroke Stroke
C52605 Medical history carotid artery stenting anatomic site

The element related to the location of carotid artery stenting the participant/subject has had

Supplemental Medical History Stroke Stroke
C58747 Specimen freezing date and time

Date (and time if applicable and known) when the specimen was frozen

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

Exploratory Social Status Stroke Stroke
C54083 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Sum scaled score

Sum of scaled scores of Number Sequencing and Letter Sequencing, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54739 Aneurysm shape pathology type

Type of shape or pathology of the aneurysm being documented

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C54900 Craniotomy category

Category of craniotomy performed during surgery

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58854 High sodium intake avoid counsel indicator

Indicates if counseling to avoid high sodium intake was provided at discharge. The intervention can be education, discussion, or referral to a dietitian or formal program

Supplemental Lifestyle Modification Therapies Stroke Stroke
C58984 Medication ACE inhibitor past week type

Type of ACE (angiotensin-converting enzyme) inhibitor medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C58873 Blood collection method category

Indicate the method of blood collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58921 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C54094 Test assessment type

Type of test procedure or assessment administered

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C21109 Visit assessment complete type

Type of assessment completed during visit

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C54908 Blood vessel rupture surgery procedure evidence indicator

Indicator of whether there is evidence of blood vessel rupture during surgery or other procedure

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58863 Contraceptive hormone replacement treatment intervention type

If the participant/subject received counseling related to contraceptive/hormone replacement treatment, describes the type(s) of interventions received

Supplemental Lifestyle Modification Therapies Stroke Stroke
C58992 Medication hormone replacement therapy route other text

The free-text field related to 'Medication hormone replacement therapy route type', specifying text

Supplemental Prior and Concomitant Medications Stroke Stroke
C21669 Surgical therapeutic procedure ICD-10-CM other text

The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C58804 Emergency Medical Services (EMS) service personnel highest level type

Highest level of emergency medical service (EMS) personnel that attended to the participant/subject provided

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Stroke Stroke
C59000 Medication L-asparaginase current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase

Exploratory Prior and Concomitant Medications Stroke Stroke
C58731 Occupation primary after event status

The status indicating the participant's/subject's primary occupational status after the event

Supplemental Return to Work Stroke Stroke
Displaying 101 - 125 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.