CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 76 - 100 of 1542
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58919 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C54758 Imaging aneurysm irregular indicator

Indicator of whether the aneurysm is irregular as determined with imaging

Supplemental Vessel Imaging Angiography Stroke Stroke
C58681 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C54281 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score

Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58901 Causative Classification System (CCS) - small artery occlusion phenotype status

The status of the predefined small artery occlusion phenotype, as part of the Causative Classification System (CCS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C54767 Imaging aneurysm vorticity mean measurement

Measurement of the mean vorticity of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C54924 Work responsibility level previous resume indicator

Indicator of whether the subject/participant has resumed their previous level of responsibility at work

Supplemental Return to Work Stroke Stroke
C54989 Stimulant former use age end value

Age in years at which the subject/participant stopped taking the selected former stimulant

Supplemental Prior and Concomitant Medications Stroke Stroke
C54100 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Notes text

Notes, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58829 Diagnosis principal discharge stroke TIA related ICD-10-CM code status

Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related

Supplemental Hospital Discharge Stroke Stroke
C54775 Imaging aneurysm oscillatory shear stress mean value

Value of the mean oscillatory shear stress of the aneurysm, as determined from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C54997 Potency enhancing drug former use age end value

Age in years at which the subject/participant stopped taking the specified potency-enhancing drug

Exploratory Prior and Concomitant Medications Stroke Stroke
C54920 Unruptured intracranial aneurysm rupture risk PHASES score

Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)

Supplemental Unruptured Intracranial Aneurysm Management Stroke Stroke
C58952 Antiplatelet agent stroke discharge prescribe type

Type(s) of antiplatelet agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C54257 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score

Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58719 Tobacco not applicable last year indicator

Indicates if the participant/subject used no tobacco products within the past year

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58897 Imaging aneurysm viscous dissipation unit of measure

Unit of measure of the mean viscous dissipation of the aneurysm, as computed from imaging

Exploratory Vessel Imaging Angiography Stroke Stroke
C54751 Cerebrospinal fluid collection anatomic site

The anatomic site related to collection of cerebrospinal fluid (CSF)

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54265 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Subtest type

Subtest type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Physical/Neurological Exam Stroke Stroke
C58737 Blood collection tube number

Enter the number of collection tubes used

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58828 Imaging acute ischemic lesion volume sequence type

Indicates the imaging acute ischemic lesion volume sequence type

Supplemental Parenchymal Imaging Stroke Stroke
C58875 Therapy or rehabilitation received status other text

The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject

Supplemental Rehabilitation Therapies Stroke Stroke
C58911 Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type

Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)

Supplemental Stroke Types and Subtypes Stroke Stroke
C54689 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
Displaying 76 - 100 of 1542

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.