CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58919	C58919	Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the A1 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1174-C54758	C54758	Imaging aneurysm irregular indicator	Indicator of whether the aneurysm is irregular as determined with imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2836-C58681	C58681	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health average pain rating scale	Scale indicating the rating of the average pain experienced by the subject, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54281	C54281	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1162-C58901	C58901	Causative Classification System (CCS) - small artery occlusion phenotype status	The status of the predefined small artery occlusion phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1174-C54767	C54767	Imaging aneurysm vorticity mean measurement	Measurement of the mean vorticity of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2824-C54924	C54924	Work responsibility level previous resume indicator	Indicator of whether the subject/participant has resumed their previous level of responsibility at work	Supplemental	Return to Work	False	Stroke	Stroke
F1206-C54989	C54989	Stimulant former use age end value	Age in years at which the subject/participant stopped taking the selected former stimulant	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1949-C54100	C54100	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Notes text	Notes, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1163-C58829	C58829	Diagnosis principal discharge stroke TIA related ICD-10-CM code status	Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related	Supplemental	Hospital Discharge	False	Stroke	Stroke
F1174-C54775	C54775	Imaging aneurysm oscillatory shear stress mean value	Value of the mean oscillatory shear stress of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C54997	C54997	Potency enhancing drug former use age end value	Age in years at which the subject/participant stopped taking the specified potency-enhancing drug	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
F2436-C54920	C54920	Unruptured intracranial aneurysm rupture risk PHASES score	Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1178-C58952	C58952	Antiplatelet agent stroke discharge prescribe type	Type(s) of antiplatelet agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54257	C54257	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1169-C58719	C58719	Tobacco not applicable last year indicator	Indicates if the participant/subject used no tobacco products within the past year	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1174-C58897	C58897	Imaging aneurysm viscous dissipation unit of measure	Unit of measure of the mean viscous dissipation of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1169-C54751	C54751	Cerebrospinal fluid collection anatomic site	The anatomic site related to collection of cerebrospinal fluid (CSF)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2828-C54265	C54265	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Subtest type	Subtest type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1164-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1169-C58737	C58737	Blood collection tube number	Enter the number of collection tubes used	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1171-C58828	C58828	Imaging acute ischemic lesion volume sequence type	Indicates the imaging acute ischemic lesion volume sequence type	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58875	C58875	Therapy or rehabilitation received status other text	The free-text field related to 'Therapy or rehabilitation received status' specifying other text. Status of therapy or rehabilitation services received by the participant/subject	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C58911	C58911	Atherosclerosis small vessel disease cardiac pathology other cause dissection (ASCOD) system - sub type	Stroke Subtype as defined by the A-S-C-O-D pattern (e.g., A1-S3-C1-O3-D0)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2836-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.