CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1178-C58960	C58960	Antithrombotic therapy not prescribed serious side effect text	The free-text field related to 'Antithrombotic therapy not prescribed reason', specifying serious side effect to medication text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1162-C58898	C58898	Causative Classification System (CCS) - large artery atherosclerosis phenotype status	The status of the predefined large artery atherosclerosis phenotype, as part of the Causative Classification System (CCS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C58868	C58868	Imaging transient ischemic attack type	Indicates type of transient ischemic attack	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54729	C54729	Aneurysm aspect ratio value	Value of the aspect ratio of the aneurysm being described, calculated as the largest height divided by the largest neck diameter	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1171-C58838	C58838	Epidural hematoma location anatomic site	The location of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2168-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F2826-C54891	C54891	Medication antithrombotic used procedure type	Type of antithrombotic medication used during surgical or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2008-C54065	C54065	D-KEFS Color-Word Interference Test (CWIT) -Contrast Scaled Score	Scaled score converted from scaled score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58974	C58974	Medication antihypertensive current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken antihypertensive medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1152-C58930	C58930	Hypertension treatment type	Type of treatment the participant/subject is receiving or has received for hypertension	Supplemental	Medical History	False	Stroke	Stroke
F1949-C54082	C54082	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total error count	The total number of errors made by the participant during their completion of Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54738	C54738	Aneurysm thrombus indicator	Indicator for the presence of evidence of thrombus	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1174-C54761	C54761	Wall opposition stent flow diverter quality grade	Grade of wall opposition quality for stents or flow diverters	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1152-C52598	C52598	Medical history ischemic stroke recency rate	The element related to the recency of ischemic strokes the participant/subject has had	Supplemental	Medical History	False	Stroke	Stroke
F2828-C54283	C54283	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Language versus delayed memory difference score	Difference score calculated as a subtraction of Delayed Memory index score from Language index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1162-C58917	C58917	Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale	The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1174-C54769	C54769	Imaging aneurysm vortex coreline length measurement	Measurement of the vortex coreline length of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2824-C54926	C54926	Workload after event rate	Rate in hours per week of the subject/participant's workload subsequent to the event	Supplemental	Return to Work	False	Stroke	Stroke
F1206-C54991	C54991	Cocaine use duration	Duration in months for which the subject/participant took or has taken cocaine	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1151-C19482	C19482	Paid work hour week count	The number of hours per week in paid work	Exploratory	Social Status	False	Stroke	Stroke
F1162-C58925	C58925	Sophia chance findings during routine imaging other text	The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2828-C54251	C54251	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Semantic fluency total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Semantic Fluency Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C54777	C54777	Imaging aneurysm inflow concentration index value	Value of the inflow concentration index of the aneurysm, as determined from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1206-C54999	C54999	Medication immunosuppressant current former take other text	The free-text field related to 'Medication immunosuppressant current former type' specifying other text	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.