CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 376 - 400 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58820 Pregnancy or delivery risk factor status

The status of the participant/subject when the specific risk factor was experienced either during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C58813 Aneurysm formation de novo indicator

Indicator for the presence of de novo formation of aneurysm since last imaging

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C54907 Aneurysm treatment endovascular type

Type of endovascular aneurysm treatment

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58862 Contraceptive hormone replacement treatment counsel indicator

Indicates if counseling relating to contraceptive/hormone replacement treatment was provided at discharge. The intervention can be discussion or use of alternate treatment or approaches

Supplemental Lifestyle Modification Therapies Stroke Stroke
C58991 Medication hormone replacement therapy route type

Type of administration route for the hormone replacement therapy medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C54924 Work responsibility level previous resume indicator

Indicator of whether the subject/participant has resumed their previous level of responsibility at work

Supplemental Return to Work Stroke Stroke
C21668 ICD-10-CM code

Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C58807 Pre-hospital stroke screen tool outcome status

The outcome status of the pre-hospital stroke screen used

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C53899 Stroop Color and Word Test (SCW) - Word T score

Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Stroke Stroke
C58999 Medication cold preparation current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken cold preparations/ medications

Exploratory Prior and Concomitant Medications Stroke Stroke
C58730 Occupation paid after event code

Code corresponding to type of paid occupation after the event as defined by the International Labor Organization/International Standard Classification of Occupations (ILO/ISCO)

Supplemental Return to Work Stroke Stroke
C58790 Intracranial revascularization procedure other text

The free-text field related to 'Intracranial revascularization procedure type' specifying other text. Type of intracranial revascularization procedure received by the participant/subject

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54049 D-KEFS Color-Word Interference Test (CWIT) -Total Uncorrected Errors Count

Count of total uncorrected errors, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54998 Medication immunosuppressant current former type

Type of immunosuppressant medication formerly or currently taken by the subject/participant

Exploratory Prior and Concomitant Medications Stroke Stroke
C53951 Stroop Color and Word Test (SCW) - Color word T score

Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Stroke Stroke
C54883 Aneurysm treated count

Count of aneurysms treated

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58798 Increase intracranial pressure medical therapy type

Type of medical therapy received by the participant/subject for the treatment of increased intracranial pressure

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54057 D-KEFS Color-Word Interference Test (CWIT) -Condition 3 Raw Score

Raw score of inhibition, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54267 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type

Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) Stroke Stroke
C58837 Epidural hematoma thickness measurement

Measured thickness in mm of the epidural hematoma

Supplemental Parenchymal Imaging Stroke Stroke
C58878 Therapy or rehabilitation duration

Duration in weeks of therapy or rehabilitation services the participant/subject received

Supplemental Rehabilitation Therapies Stroke Stroke
C54757 Imaging aneurysm dome size value

Value of the aneurysm dome size determined by imaging

Supplemental Vessel Imaging Angiography Stroke Stroke
C58948 Family history coronary artery disease (CAD) youngest age unknown status

Status indicating the youngest age an immediate family member (parent, sibling, child) was diagnosed with the condition/ suffered a heart attack, if there is a family history of coronary artery disease (CAD)

Supplemental Family History Stroke Stroke
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.