CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C54054 D-KEFS Color-Word Interference Test (CWIT) -Condition 1 Scaled Score

Scaled score of color naming, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58964 Medication anticoagulant current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken anticoagulant medications

Supplemental Prior and Concomitant Medications Stroke Stroke
C52597 Medical history ischemic stroke range

The element related to the number of ischemic strokes the participant/subject has had

Supplemental Medical History Stroke Stroke
C54726 Aneurysm height measurement

Measurement of the height of the aneurysm being described

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C54888 Lumbar drain indicator

Indicator of whether a lumbar drain was placed

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58803 Stroke surgical operative preventive neurosurgical treatment other text

The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54062 D-KEFS Color-Word Interference Test (CWIT) -Sum of Scaled Scores

Sum of scaled scores of Color Naming and Word Reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58972 Medication diabetic past week type

Type of diabetic medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C58817 Parietal lobe function status

Assess parietal lobe function using the scale from the Northern Manhattan Study (NOMAS)

Exploratory Physical/Neurological Exam Stroke Stroke
C52605 Medical history carotid artery stenting anatomic site

The element related to the location of carotid artery stenting the participant/subject has had

Supplemental Medical History Stroke Stroke
C58747 Specimen freezing date and time

Date (and time if applicable and known) when the specimen was frozen

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58913 Perinatal arterial ischemic stroke type

Indicates the type of perinatal arterial ischemic stroke (PAIS) suffered by the neonate

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

Exploratory Social Status Stroke Stroke
C52879 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54734 Aneurysm sidewall branch count

Count of sidewall branches of the aneurysm being described

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C54896 Assessment surgery procedure vessel patency aneurysm occlusion method type

Type of method used to for assessment of vessel patency or aneurysm occlusion during surgery or procedure

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58849 Physical activity increase recommendation indicator

Indicates if recommendations to increase physical activity were provided at discharge. The intervention can be education, discussion, an individualized plan, referral to a structured program or another intervention

Supplemental Lifestyle Modification Therapies Stroke Stroke
C54070 Delis-Kaplan Executive Function System (DKEFS) - Error total raw score

Total raw score calculated as the sum of raw scores of Sequencing Errors, Set-Loss Errors and Time-Discontinue Errors in Condition 4 (Number-Letter Switching), as part of Delis-Kaplan Executive Function System (DKEFS)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58980 Medication angiotensin receptor blocker past week type

Type of angiotensin receptor blocker (ARB) medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C58873 Blood collection method category

Indicate the method of blood collection

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58921 Focal Cerebral Arteriopathy Severity Score (FCASS) - anterior cerebral artery 2 segment score scale

The scale which represents the severity of focal cerebral arteriopathy in the A2 segment of the anterior cerebral artery (ACA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C54087 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time raw score

Complete time as a raw score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54744 Aneurysm size increase measurement

Measurement of the size increase of the aneurysm. The difference between the current largest diameter measurement and the previous diameter measurement along the same axis

Supplemental Aneurysm Location and Dimensions Stroke Stroke
Displaying 326 - 350 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.