CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 301 - 325 of 1547
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58931 Menopause treatment type

Type of treatment the participant/subject is receiving or has received for menopause

 Exploratory Medical History False Stroke Stroke
C54922 Unruptured intracranial aneurysm treatment management score

Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model

 Supplemental Unruptured Intracranial Aneurysm Management False Stroke Stroke
C54259 Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value

Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)

 Supplemental Repeatable Battery for Assessment of Neuropsychological Status (RBANS) True Stroke Stroke
C58736 Needle gauge size type other text

The free-text field related to 'Needle gauge size type' specifying other text

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Stroke Stroke
C54884 Vessel repair anatomic site

Anatomic site of the vessel that was repaired

 Supplemental-Highly Recommended SAH Surgical/Procedural Interventions False Stroke Stroke
C58799 Osmotic therapy type

Type of osmotic therapy received by the participant/subject

 Supplemental Stroke Surgical and Procedural Interventions False Stroke Stroke
C54058 D-KEFS Color-Word Interference Test (CWIT) -Condition 3 Scaled Score

Scaled score of inhibition, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C58968 Medication cholesterol reduce control past week type

Type of cholesterol-reducing/ controlling medication taken by the subject/participant within the past week

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C52601 Medical history transient ischemic attack recency rate

The element related to the recency of transient ischemic attacks (TIAs) the participant/subject has had

 Supplemental Medical History False Stroke Stroke
C58743 Shipping conditions type other text

The free-text field related to other shipping conditions type

 Supplemental Biospecimen Collection and Processing False Stroke Stroke
C18677 Employment other text

The free-text field related to 'Employment status' specifying other text. Status of participant/subject's current employment

 Supplemental Social Status False Stroke Stroke
C58905 Imaging transcranial ultrasound performed type

Indicates the ultrasound type

 Supplemental Vessel Imaging Transcranial False Stroke Stroke
C54730 Aneurysm size ratio value

Value of the size ratio of the aneurysm being described, calculated as the largest height divided by the largest diameter of parent artery

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
C20535 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Health today scale

Scale of how good or bad the participant's health is today, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) True Stroke Stroke
C54892 Aneurysm treatment surgical type

Type of surgery performed to treat aneurysm

 Supplemental SAH Surgical/Procedural Interventions False Stroke Stroke
C58845 Discharge origin location type

The type of origin location that is discharging the participant/subject

 Supplemental Lifestyle Modification Therapies False Stroke Stroke
C54066 Delis-Kaplan Executive Function System (DKEFS) - Condition type

Type of conditions, as part of Delis-Kaplan Executive Function System (DKEFS)

 Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) True Stroke Stroke
C58869 Imaging contrast agent name

The name of the imaging contrast agent used

 Supplemental Vessel Carotid Ultrasound False Stroke Stroke
C58976 Medication diuretic past week type

Type of diuretic medication taken by the subject/participant within the past week

 Supplemental Prior and Concomitant Medications False Stroke Stroke
C58857 Angiographic image last date and time

Date (and time, if applicable and known) of last angiographic image for the participant/subject

 Supplemental Thrombolytic/Reperfusion Therapies False Stroke Stroke
C58751 Specimen expiration date

Date when the specimen will expire, if applicable

 Supplemental-Highly Recommended Biospecimen Collection and Processing False Stroke Stroke
C58917 Focal Cerebral Arteriopathy Severity Score (FCASS) - supraclinoid internal carotid artery score scale

The scale which represents the severity of focal cerebral arteriopathy in the supraclinoid internal carotid artery (ICA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

 Supplemental Stroke Types and Subtypes False Stroke Stroke
C54083 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Sum scaled score

Sum of scaled scores of Number Sequencing and Letter Sequencing, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

 Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Stroke Stroke
C54739 Aneurysm shape pathology type

Type of shape or pathology of the aneurysm being documented

 Supplemental Aneurysm Location and Dimensions False Stroke Stroke
Displaying 301 - 325 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.