CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58741	C58741	Specimen shipped indicator	Indicate whether the specimen was shipped	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2838-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54728	C54728	Aneurysm neck maximum measurement	Maximum measurement of the neck of the aneurysm being described	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2168-C20531	C20531	European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category	Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)	Supplemental-Highly Recommended	EuroQoL-5 Dimension Questionnaire (EQ-5D)	True	Stroke	Stroke
F2826-C54890	C54890	Intervention endovascular status	Status of endovascular intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2008-C54064	C54064	D-KEFS Color-Word Interference Test (CWIT) -Difference Scaled Score	Scaled-score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C58867	C58867	Imaging chronic stroke type	Indicates chronic stroke type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58974	C58974	Medication antihypertensive current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken antihypertensive medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1164-C58819	C58819	Dizziness indicator	Indicator of whether the participant/subject experienced dizziness	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1169-C58749	C58749	Freezing method type other text	The free-text field related to freezing method type	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58915	C58915	Vascular effects of Infection in Pediatric Stroke (VIPS) - arteriopathy secondary diagnosis subtype classification status	The status of arteriopathy secondary diagnosis, as part of the Vascular effects of Infection in Pediatric Stroke (VIPS) arteriopathy classification system	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54081	C54081	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B total time	The total time in seconds taken for the participant to complete Trail B, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54737	C54737	Aneurysm calcification indicator	Indicator for the presence of evidence of calcification	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1171-C58844	C58844	Other findings text	The free-text field to specify other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1174-C54765	C54765	Imaging aneurysm kinetic energy mean measurement	Measurement of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1167-C18729	C18729	Lab panel other text	The free-text field related to 'Lab panel category' specifying other text. Category or panel of lab tests, often logically grouped according to type of testing (Hematology, Chemistry, Urinalysis) or specimen type (Blood, Urine, CSF)	Supplemental	Laboratory Tests	False	Stroke	Stroke
F2828-C54282	C54282	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Attention versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Attention index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1949-C54089	C54089	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Contrast scaled score	Contrast scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1154-C58939	C58939	Tobacco cigarette use started age value	Age in years when participant/subject started using cigarettes	Supplemental	Behavioral History	False	Stroke	Stroke
F1174-C54773	C54773	Imaging aneurysm shear concentration index value	Value of the shear concentration index of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1152-C58930	C58930	Hypertension treatment type	Type of treatment the participant/subject is receiving or has received for hypertension	Supplemental	Medical History	False	Stroke	Stroke
F1206-C54991	C54991	Cocaine use duration	Duration in months for which the subject/participant took or has taken cocaine	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1178-C58950	C58950	Anticoagulant agent stroke discharge prescribe type	Type(s) of anticoagulant agents prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54250	C54250	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Picture naming total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Picture Naming Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1162-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.