CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1169-C58744	C58744	Specimen ambient light protection indicator	Indicate whether the specimen was protected from ambient light	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C52880	C52880	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part B follow trail complete time	The element related to the time it takes the participant/subject to follow the trail in Part B as part of the Trail Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54736	C54736	Contralateral stenocclusive vessel disease indicator	Indicator for the presence of contralateral stenoocclusive vessel disease	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1158-C58808	C58808	Pre-hospital severity scale type	The stroke severity scale used to determine stroke severity before hospital intake	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2826-C54897	C54897	Complication surgery procedure aneurysm treatment type	Type of complication which occurred during surgery or other procedure to treat aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58850	C58850	Physical activity increase intervention type	If the participant/subject received recommendations to increase physical activity, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1156-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	History Data Source and Reliability	False	Stroke	Stroke
F2008-C54071	C54071	Delis-Kaplan Executive Function System (DKEFS) - All error types condition 4 scaled score	Scaled score of all error types for condition 4 Number-Letter Switching, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1154-C58942	C58942	E-cigarette electronic vapor product use ever indicator	The indicator related to whether the participant/subject has ever used an e-cigarette or other electronic vaping product, even just one time, in their entire life	Supplemental	Behavioral History	False	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58981	C58981	Medication angiotensin receptor blocker past week other text	The free-text field related to 'Medication angiotensin receptor blocker past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C58933	C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
F1169-C58752	C58752	Specimen expiration not applicable indicator	Indicate whether there is no expiration date for the specimen	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58918	C58918	Focal Cerebral Arteriopathy Severity Score (FCASS) - middle cerebral artery 1 segment score scale	The scale which represents the severity of focal cerebral arteriopathy in the M1 segment of the middle cerebral artery (MCA) score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1949-C54089	C54089	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Contrast scaled score	Contrast scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54755	C54755	Arch injection indicator	Indicator of whether an arch injection was done for angiography	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54905	C54905	Vessel occlude temporary surgery procedure maximum duration	Maximum duration of temporary vessel occlusion during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58860	C58860	Recreational prescription drug abuse discontinue intervention type	If the participant/subject received counseling to discontinue recreational or prescription drug abuse, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1157-C18768	C18768	Therapy or rehabilitation other text	The free-text field related to 'Therapy or rehabilitation type' specifying other text. Type of therapy or rehabilitation services received by the participant/subject	Supplemental	Prior Functional Status	False	Stroke	Stroke
F1206-C58989	C58989	Medication hormone replacement past week type	Type of hormone replacement medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2826-C54913	C54913	Endovascular intervention result Raymond Roy grade	Grade on the Raymond-Roy occlusion classification scale of the result of endovascular intervention for aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F2370-C53897	C53897	Stroop Color and Word Test (SCW) - Word age educate predict score	Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F1206-C58997	C58997	Medication other past week other text	The free-text field related to 'Medication other past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F2824-C58728	C58728	Occupation secondary prior event status	The status indicating the participant's/subject's secondary occupational status prior to the event	Supplemental	Return to Work	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.