CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1152-C58928	C58928	Medical history carotid endarterectomy recent date	Date of most recent carotid endarterectomy performed on the participant/subject	Exploratory	Medical History	False	Stroke	Stroke
F1163-C21666	C21666	Diagnosis principal discharge stroke related ICD-10-CM code	If the Principal ICD-10-CM diagnosis code is a stroke-related code, then enter it here. If it is not, then select the Secondary ICD-10 diagnosis code that is stroke-related, as determined by ICD-10-CM code recorded in the medical record	Supplemental	Hospital Discharge	False	Stroke	Stroke
F2370-C53901	C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
F2824-C58732	C58732	Occupation primary after event other status text	The free-text field to capture other status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
F1158-C58810	C58810	Pre-hospital large vessel occlusion indicator	Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1154-C58945	C58945	Regular moderate intense aerobic exercise physical activity indicator	Indicator related to whether or not the participant/subject participates in regular aerobic exercise (moderate intensity physical activity). Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1180-C58792	C58792	Carotid revascularization procedure type	Type of carotid revascularization procedure received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54051	C54051	D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 90 Duration	Duration of total time to complete for condition 1 and 2, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58961	C58961	Medication antiplatelet current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken antiplatelet medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C59009	C59009	Pregnancy current status	Status of the participant/subject's pregnancy currently	Supplemental	Medical History	False	Stroke	Stroke
F1178-C58959	C58959	Lipid lower agent stroke discharge prescribe other text	The free-text field related to 'Lipid lower agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Stroke	Stroke
F2826-C54885	C54885	Subarachnoid hemorrhage ictus elapsed day count	Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1180-C58800	C58800	Stroke surgical operative preventive treatment indicator	Indicates whether or not the participant/ subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
F2008-C54059	C54059	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score	Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1206-C58969	C58969	Medication cholesterol reduce control past week other text	The free-text field related to 'Medication cholesterol reduce control past week type', specifying other text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1169-C58744	C58744	Specimen ambient light protection indicator	Indicate whether the specimen was protected from ambient light	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C58906	C58906	Vasospasm resistive index value	Indicates vasospasm resistive Index (RI)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C54731	C54731	Aneurysm bottleneck factor value	Value of the bottleneck factor of the aneurysm being described, calculated as the largest width of the aneurysm divided by the largest width of the aneurysm neck	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54893	C54893	Aneurysm intervention surgical result status	Status or result of surgical intervention to treat aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1159-C18686	C18686	Hospital transport other text	The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1181-C58846	C58846	Discharge origin location other text	The free-text field related to 'Discharge origin location type', specifying other text	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54067	C54067	Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type	Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C58870	C58870	Imaging plaque thickness unit of measure	The unit of measure for "Imaging plaque thickness measurement"	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.