CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C58910	C58910	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - dissection grade	The grade of dissection, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of dissection (D)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1169-C55009	C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2836-C54688	C54688	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale	Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54272	C54272	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory vs. attention difference score	Difference score calculated as a subtraction of Attention index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1171-C58837	C58837	Epidural hematoma thickness measurement	Measured thickness in mm of the epidural hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2827-C54736	C54736	Contralateral stenocclusive vessel disease indicator	Indicator for the presence of contralateral stenoocclusive vessel disease	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2826-C54897	C54897	Complication surgery procedure aneurysm treatment type	Type of complication which occurred during surgery or other procedure to treat aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58849	C58849	Physical activity increase recommendation indicator	Indicates if recommendations to increase physical activity were provided at discharge. The intervention can be education, discussion, an individualized plan, referral to a structured program or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F2008-C54071	C54071	Delis-Kaplan Executive Function System (DKEFS) - All error types condition 4 scaled score	Scaled score of all error types for condition 4 Number-Letter Switching, as part of Delis-Kaplan Executive Function System (DKEFS)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
F1173-C58869	C58869	Imaging contrast agent name	The name of the imaging contrast agent used	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1206-C58980	C58980	Medication angiotensin receptor blocker past week type	Type of angiotensin receptor blocker (ARB) medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C58354	C58354	Other cancer type text	Text of type of other cancer(s) that the subject/participant has ever been diagnosed with	Exploratory	Medical History	False	Stroke	Stroke
F1152-C18666	C18666	Body system other text	The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured	Supplemental	Medical History	False	Stroke	Stroke
F1169-C58751	C58751	Specimen expiration date	Date when the specimen will expire, if applicable	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1949-C54089	C54089	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Contrast scaled score	Contrast scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F2827-C54755	C54755	Arch injection indicator	Indicator of whether an arch injection was done for angiography	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F1158-C18747	C18747	Residence other text	The free-text field related to 'Residence type' specifying other text. Type of residence where the participant/subject is currently living	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2826-C54905	C54905	Vessel occlude temporary surgery procedure maximum duration	Maximum duration of temporary vessel occlusion during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
F1181-C58859	C58859	Recreational prescription drug abuse discontinue counsel indicator	Indicates if counseling to discontinue recreational or prescription drug abuse was provided at discharge. The intervention can be education, discussion, or referral to a rehabilitation program, use of an alternative treatment, or another intervention	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1154-C58942	C58942	E-cigarette electronic vapor product use ever indicator	The indicator related to whether the participant/subject has ever used an e-cigarette or other electronic vaping product, even just one time, in their entire life	Supplemental	Behavioral History	False	Stroke	Stroke
F1155-C58824	C58824	Pregnancy or delivery risk factor maternal infection text	The free-text field related to 'Pregnancy or delivery risk factor type' specifying maternal infection(s). Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F1206-C58988	C58988	Medication hormone replacement current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken hormonal replacement medications	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1152-C58933	C58933	Acquired heart disease indicator	The indicator related to whether the participant/subject has acquired heart disease	Supplemental	Medical History	False	Stroke	Stroke
F1158-C58810	C58810	Pre-hospital large vessel occlusion indicator	Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2826-C54913	C54913	Endovascular intervention result Raymond Roy grade	Grade on the Raymond-Roy occlusion classification scale of the result of endovascular intervention for aneurysm	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.