CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1886
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20335 Glasgow Outcome Scale Extended (GOS-E) - Respondent type

Person responding to the Glasgow Outcome Scale Extended (GOSE)

Supplemental Glasgow Outcome Scale Extended (GOSE) Stroke Stroke
C52604 Medical history carotid endarterectomy anatomic site

The element related to the location of a carotid endarterectomy the participant/subject has had

Supplemental Medical History Stroke Stroke
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C58925 Sophia chance findings during routine imaging other text

The free-text field related to 'Sophia signs and symptoms on presentation type' for chance findings during routine imaging specifying other text. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification.

Supplemental Stroke Types and Subtypes Stroke Stroke
C58821 Pregnancy or delivery risk factor illness other text

The free-text field related to 'Pregnancy or delivery risk factor type' specifying other illness text. Type of risk factor to the participant's/subject's health that may have been experienced during the prenatal period (i.e., during time mother pregnant), at the time of delivery, or soon after delivery.

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C20443 Brief Visuospatial Memory Test - Revised (BVMT-R) - Form administered number

Number of form administered for the Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Stroke Stroke
C54885 Subarachnoid hemorrhage ictus elapsed day count

Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C54059 D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score

Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58788 Thrombectomy middle cerebral artery segment anatomic site

Anatomic site of the segment(s) of the middle cerebral artery (MCA) where a thrombectomy was received by the participant/subject.

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth.

Core General Core Stroke Stroke
C52623 Aortic thoracic aneurysm specify text

The free-text field related to the type of aortic or thoracic aneurysm

Supplemental Medical History Stroke Stroke
C58951 Anticoagulant agent stroke discharge prescribe other text

The free-text field related to 'Anticoagulant agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C21666 Diagnosis principal discharge stroke related ICD-10-CM code

If the Principal ICD-10-CM diagnosis code is a stroke-related code, then enter it here. If it is not, then select the Secondary ICD-10 diagnosis code that is stroke-related, as determined by ICD-10-CM code recorded in the medical record.

Supplemental Hospital Discharge Stroke Stroke
C58718 Tobacco last consumed date and time

Date (and time, if applicable and known) the participant/subject last used tobacco

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C58940 Tobacco cigarette use stopped age value

Age in years when participant/subject stopped using cigarettes.

Supplemental Behavioral History Stroke Stroke
C20453 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 3 T-score

Value of T-score for Trial 3 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Stroke Stroke
C54893 Aneurysm intervention surgical result status

Status or result of surgical intervention to treat aneurysm

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C54067 Delis-Kaplan Executive Function System (DKEFS) - Error analysis optional type

Optional measures for error analysis, as part of Delis-Kaplan Executive Function System (DKEFS)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54691 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C58796 Ventricular drain place type

Type of ventricular drainage placed.

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C52701 Bleeding disorder type text

Free-text field related to the type of bleeding disorder

Supplemental Medical History Stroke Stroke
C58959 Lipid lower agent stroke discharge prescribe other text

The free-text field related to 'Lipid lower agent stroke discharge prescribe type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58736 Needle gauge size type other text

The free-text field related to 'Needle gauge size type' specifying other text

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58896 Clinical stroke tissue based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

Supplemental Stroke Types and Subtypes Stroke Stroke
C54901 Craniectomy perform indicator

Indicator of whether craniectomy was performed

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
Displaying 1 - 25 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.