CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 1547
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C60360 IV thrombolytic agent total dose

Dose of IV thrombolytic agent, in mg, given to the participant

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C60361 IV thrombolytic agent type

Type of IV thrombolytic agent given to the participant

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C60362 IV thrombolytic agent type other text

The free-text field related to 'IV thrombolytic agent type' specifying other text.

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C60363 IV thrombolytic agent not started reason

If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C60364 IV thrombolytic agent not started other text

The free-text field related to 'IV thrombolytic agent not started reason' specifying other text. If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C60365 IV thrombolytic agent not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous thrombolytic agent was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C60366 IV thrombolytic agent at another hospital indicator

Indicator of whether IV thrombolytic agent was initiated for the participant at an outside hospital

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C53904 Stroop Color and Word Test (SCW) - Color word raw score

Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Stroke Stroke
C58810 Pre-hospital large vessel occlusion indicator

Indicates if the patient has detected positive for suspected Large Vessel Occlusion (LVO)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C58829 Diagnosis principal discharge stroke TIA related ICD-10-CM code status

Status indicating if the principal or secondary ICD-10-CM diagnosis code is not Stroke/ TIA (transient ischemic attack) related

Supplemental Hospital Discharge Stroke Stroke
C58795 Vertebral artery revascularization procedure other text

The free-text field related to 'Vertebral artery revascularization procedure type' specifying other text. Type of vertebral artery revascularization procedure received by the participant/subject

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54054 D-KEFS Color-Word Interference Test (CWIT) -Condition 1 Scaled Score

Scaled score of color naming, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58964 Medication anticoagulant current former take indicator

The indicator relating to whether the subject/participant has formerly or currently taken anticoagulant medications

Supplemental Prior and Concomitant Medications Stroke Stroke
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core Demographics Stroke Stroke
C54726 Aneurysm height measurement

Measurement of the height of the aneurysm being described

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C20527 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Self-care category

Category determining the extent to which the participant has problems with self-care, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C54888 Lumbar drain indicator

Indicator of whether a lumbar drain was placed

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C58803 Stroke surgical operative preventive neurosurgical treatment other text

The free-text field related to 'Stroke surgical operative preventive treatment type' specifying neurosurgical/operative preventative treatment other text. Type of other neurosurgical/operative preventative treatment the participant/subject received or was evaluated and scheduled for a surgical/ operative procedure as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C54062 D-KEFS Color-Word Interference Test (CWIT) -Sum of Scaled Scores

Sum of scaled scores of Color Naming and Word Reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C19174 Other cardiac disorder type

Type of other cardiac disorder

Supplemental Medical History Stroke Stroke
C58972 Medication diabetic past week type

Type of diabetic medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C52879 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A follow trail complete time

The element related to the time it takes the participant/subject to follow the trail in Part A as part of the Trail Making Test (TMT)

Supplemental Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54734 Aneurysm sidewall branch count

Count of sidewall branches of the aneurysm being described

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C18686 Hospital transport other text

The free-text field related to 'Hospital transport type' specifying other text. Type of transportation from injury scene to hospital

Supplemental Hospital Arrival/Admission Stroke Stroke
C54896 Assessment surgery procedure vessel patency aneurysm occlusion method type

Type of method used to for assessment of vessel patency or aneurysm occlusion during surgery or procedure

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
Displaying 1 - 25 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.