CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1886
Operations
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21965 Pediatric Quality of Life Inventory (PedsQL) - Problem worry self difficulty scale

Scale of problems worrying about what will happen to you, as part of the Pediatric Quality of Life Inventory (PedsQL)

Supplemental Pediatric Quality of Life Inventory (PEDSQL) Stroke Stroke
C58852 IV tPA not started MRI selection treatment beyond 4.5 hour reason

If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?

Exploratory Thrombolytic/Reperfusion Therapies Stroke Stroke
C58996 Medication other past week type

Type of other medication taken by the subject/participant within the past week

Supplemental Prior and Concomitant Medications Stroke Stroke
C19262 Occupation secondary other status text

The free-text field to capture other status indicating the participant's/subject's current secondary occupational status

Exploratory Social Status Stroke Stroke
C58923 Focal Cerebral Arteriopathy Severity Score (FCASS) - delta point score code

The score code which represents the change in severity of focal cerebral arteriopathy at the time of follow-up score, as part of the Focal Cerebral Arteriopathy Severity Score (FCASS)

Supplemental Stroke Types and Subtypes Stroke Stroke
C53906 Stroop Color and Word Test (SCW) - Color word residual score

Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Stroke Stroke
C20502 Grooved Pegboard Test (GPT) - Dominant hand time T-score

Hand time T-score to determine statistical significance for the hand time and pegs placed/dropped, as part of Grooved Pegboard Test (GPT)

Supplemental Grooved Pegboard Test Stroke Stroke
C54882 Aneurysm multiple indicator

Indicator of whether the subject/participant presents multiple aneurysms

Supplemental SAH Surgical/Procedural Interventions Stroke Stroke
C54056 D-KEFS Color-Word Interference Test (CWIT) -Condition 2 Scaled Score

Scaled score of word reading, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C58785 Stroke neurosurgical procedure non vascular other text

The free-text field related to 'Stroke surgical or therapeutic procedure type' specifying other non-vascular neurosurgical procedure text. Type of non-vascular neurosurgical procedure received by the participant/subject

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C58846 Discharge origin location other text

The free-text field related to 'Discharge origin location type', specifying other text

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58426 Biomarker specimen collected aliquot number

The number of aliquots made for specimens collected from the participant/subject for biomarkers

Supplemental-Highly Recommended Biospecimen Collection and Processing Stroke Stroke
C54728 Aneurysm neck maximum measurement

Maximum measurement of the neck of the aneurysm being described

Supplemental Aneurysm Location and Dimensions Stroke Stroke
C20449 Brief Visuospatial Memory Test - Revised (BVMT-R) - Trial 2 T-score

T-score for Trial 2 portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Stroke Stroke
C54890 Intervention endovascular status

Status of endovascular intervention

Supplemental-Highly Recommended SAH Surgical/Procedural Interventions Stroke Stroke
C54064 D-KEFS Color-Word Interference Test (CWIT) -Difference Scaled Score

Scaled-score difference, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)

Supplemental Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS) Stroke Stroke
C54688 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C58793 Carotid revascularization procedure other text

The free-text field related to 'Carotid revascularization procedure type' specifying other text. Type of carotid revascularization procedure received by the participant/subject

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
C20531 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Pain discomfort category

Category determining the extent to which the participant has problems with pain or discomfort category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

Supplemental-Highly Recommended EuroQoL-5 Dimension Questionnaire (EQ-5D) Stroke Stroke
C58956 Anti diabetic agent stroke discharge prescribe type

Type(s) of anti-diabetic agents prescribed at discharge following stroke

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C58723 Blood collection method type other text

The free-text field related to 'Blood collection method type' specifying other text

Supplemental Biospecimen Collection and Processing Stroke Stroke
C58894 Clinical stroke time based Intracerebral hemorrhage laterality type

Indicate the laterality of the intracerebral hemorrhage

Supplemental Stroke Types and Subtypes Stroke Stroke
C20461 Brief Visuospatial Memory Test - Revised (BVMT-R) - Learning raw score

Raw score for Learning portion of Brief Visuospatial Memory Test - Revised (BVMT-R)

Supplemental Brief Visuospatial Memory Test Revised (BVMT-R) Stroke Stroke
C58680 Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health general health scale

Scale related to an individual's rating of his/her general health, as part of the PROMIS Global Health

Supplemental-Highly Recommended PROMIS Item Bank v1.2 - Global Health Stroke Stroke
C58801 Stroke surgical operative preventive treatment type

Type of surgical/operative preventative treatment the participant/ subject received or was evaluated and scheduled for as a preventative therapy for stroke after initial hospital discharge for the index stroke/ TIA

Supplemental Stroke Surgical and Procedural Interventions Stroke Stroke
Displaying 1 - 25 of 1886

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.