CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1179-C60361	C60361	IV thrombolytic agent type	Type of IV thrombolytic agent given to the participant	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60362	C60362	IV thrombolytic agent type other text	The free-text field related to 'IV thrombolytic agent type' specifying other text.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60363	C60363	IV thrombolytic agent not started reason	If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60364	C60364	IV thrombolytic agent not started other text	The free-text field related to 'IV thrombolytic agent not started reason' specifying other text. If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60365	C60365	IV thrombolytic agent not started MRI selection treatment beyond 4.5 hour reason	If NO Intravenous thrombolytic agent was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Exploratory	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60366	C60366	IV thrombolytic agent at another hospital indicator	Indicator of whether IV thrombolytic agent was initiated for the participant at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60360	C60360	IV thrombolytic agent total dose	Dose of IV thrombolytic agent, in mg, given to the participant	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1206-C54990	C54990	Cocaine expose year prior unruptured intracranial aneurysm presentation indicator	Indicator of whether the subject/participant was exposed to cocaine in the year prior to clinical presentation of unruptured intracranial aneurysm (UIA)	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
F1949-C54100	C54100	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Notes text	Notes, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
F1178-C58949	C58949	Medication stroke discharge prescribe category	Class(es) of medications the participant/subject was prescribed at discharge following stroke	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54249	C54249	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Line orientation total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Line Orientation Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1174-C58890	C58890	Imaging aneurysm kinetic energy mean unit of measure	The unit of measure of the mean kinetic energy of the aneurysm, as computed from imaging	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F2436-C54920	C54920	Unruptured intracranial aneurysm rupture risk PHASES score	Score on the PHASES scale for the risk of rupture of unruptured intracranial aneurysm (UIA)	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1178-C58957	C58957	Anti diabetic agent stroke discharge prescribe other text	The free-text field related to 'Anti diabetic agent stroke discharge prescribe type', specifying other text	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F2828-C54257	C54257	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Figure recall total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Figure Recall Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1169-C58724	C58724	Specimen hemolyzed indicator	Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1171-C58822	C58822	Imaging acute infarcts count category	The number of acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1169-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2828-C54265	C54265	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Subtest type	Subtest type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1162-C58896	C58896	Clinical stroke tissue based Intracerebral hemorrhage laterality type	Indicate the laterality of the intracerebral hemorrhage	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58835	C58835	Perihematomal edema MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1182-C58876	C58876	Therapy or rehabilitation session week frequency	Frequency of therapy or rehabilitation sessions (number of session per week) the participant/subject has been part of	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C54738	C54738	Aneurysm thrombus indicator	Indicator for the presence of evidence of thrombus	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2836-C54689	C54689	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health physical health rate scale	Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F2828-C54273	C54273	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus language difference score	Difference score calculated as a subtraction of Language index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.