CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1179-C60363	C60363	IV thrombolytic agent not started reason	If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60364	C60364	IV thrombolytic agent not started other text	The free-text field related to 'IV thrombolytic agent not started reason' specifying other text. If NO Intravenous thrombolytic agent was initiated, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60365	C60365	IV thrombolytic agent not started MRI selection treatment beyond 4.5 hour reason	If NO Intravenous thrombolytic agent was initiated for the participant/subject treated using MRI imaging selection beyond 4.5 hours, documents reasons in the medical record for why no IV thrombolytic agent was started for the participant at the current hospital.	Exploratory	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60366	C60366	IV thrombolytic agent at another hospital indicator	Indicator of whether IV thrombolytic agent was initiated for the participant at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60360	C60360	IV thrombolytic agent total dose	Dose of IV thrombolytic agent, in mg, given to the participant	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60361	C60361	IV thrombolytic agent type	Type of IV thrombolytic agent given to the participant	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1179-C60362	C60362	IV thrombolytic agent type other text	The free-text field related to 'IV thrombolytic agent type' specifying other text.	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1169-C58724	C58724	Specimen hemolyzed indicator	Indicate whether the sample was hemolyzed (Gross hemolysis, microscope not required)	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C58895	C58895	Clinical stroke tissue based ischemic stroke laterality type	Indicate the laterality of the ischemic stroke	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58822	C58822	Imaging acute infarcts count category	The number of acute infarct(s)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2436-C54922	C54922	Unruptured intracranial aneurysm treatment management score	Score in favor of management on the unruptured intracranial aneurysm (UIA) treatment score model	Supplemental	Unruptured Intracranial Aneurysm Management	False	Stroke	Stroke
F1169-C55004	C55004	Specimen centrifugation temperature value	The value related to temperature in a centrifuge	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
F2828-C54259	C54259	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Alpha level value	Confidence interval alpha level, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1154-C58946	C58946	Regular moderate intense aerobic exercise physical activity days week number	Number of days per typical week that the participant/subject engages in at least moderate-intensity aerobic exercise physical activities. Moderate-intensity physical activities cause small increases in breathing or heart rate and are done for at least 10 minutes continuously	Supplemental	Behavioral History	False	Stroke	Stroke
F1152-C59010	C59010	Postpartum period current status	Status of the participant/subject in the postpartum period currently	Supplemental	Medical History	False	Stroke	Stroke
F1162-C58908	C58908	Atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system - cardioembolic grade	The grade of cardiac pathology, as part of the atherosclerosis small-vessel disease cardiac pathology other cause dissection (ASCOD) system. Patients are evaluated for the predefined phenotype of cardiac pathology (C)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C58835	C58835	Perihematomal edema MRI sequence type	Indicates sequence employed for Intraparenchymal hematoma MRI	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2828-C54267	C54267	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Percentile group type	Percentile group type, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1182-C58878	C58878	Therapy or rehabilitation duration	Duration in weeks of therapy or rehabilitation services the participant/subject received	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1174-C54757	C54757	Imaging aneurysm dome size value	Value of the aneurysm dome size determined by imaging	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F2836-C54691	C54691	Patient-Reported Outcome Measurement Information System (PROMIS) - Global Health social satisfaction rate scale	Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health	Supplemental-Highly Recommended	PROMIS Item Bank v1.2 - Global Health	True	Stroke	Stroke
F1171-C58843	C58843	Findings other present indicator	Indicates if Other findings	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1169-C55349	C55349	Microdialysis cerebral Ictus monitoring interval	The period of time elapsed between ictus and monitoring for cerebral microdialysis	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F2828-C54275	C54275	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - Immediate memory versus total scale difference score	Difference score calculated as a subtraction of Total Scale index score from Immediate Memory index score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS)	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
F1182-C58887	C58887	Follow-up care specialist type	Type of specialist the participant/subject received follow-up care from	Supplemental-Highly Recommended	Rehabilitation Therapies	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.