CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C54084	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Part A total error count	The total number of errors made by the participant during their completion of Trail A, as part of the Delis-Kaplan Executive Function System (D-KEFS) Trail-Making Test (TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
C54740	Aneurysm followup shape type	Type of shape of the aneurysm at follow-up	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
C54901	Craniectomy perform indicator	Indicator of whether craniectomy was performed	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58854	High sodium intake avoid counsel indicator	Indicates if counseling to avoid high sodium intake was provided at discharge. The intervention can be education, discussion, or referral to a dietitian or formal program	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C58984	Medication ACE inhibitor past week type	Type of ACE (angiotensin-converting enzyme) inhibitor medication taken by the subject/participant within the past week	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C54095	Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Completion time scaled score	Complete time as a scaled score, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)	Supplemental	Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS)	False	Stroke	Stroke
C54246	Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) - List learning total score	Total score, as part of the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) List Learning Subtest	Supplemental	Repeatable Battery for Assessment of Neuropsychological Status (RBANS)	True	Stroke	Stroke
C54909	Endovascular complication intra surgery procedure type	Type of endovascular complication(s) which occurred during surgery or other procedure	Supplemental	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58863	Contraceptive hormone replacement treatment intervention type	If the participant/subject received counseling related to contraceptive/hormone replacement treatment, describes the type(s) of interventions received	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
C58992	Medication hormone replacement therapy route other text	The free-text field related to 'Medication hormone replacement therapy route type', specifying text	Supplemental	Prior and Concomitant Medications	False	Stroke	Stroke
C58718	Tobacco last consumed date and time	Date (and time, if applicable and known) the participant/subject last used tobacco	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C21669	Surgical therapeutic procedure ICD-10-CM other text	The free-text field related to 'Surgical or therapeutic procedure ICD-10-CM code' specifying other text. Code from the International Classification of Diseases, Tenth Revision, Clinical Modification (ICD-10-CM) for the selected surgical procedure	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C54750	Cerebrospinal fluid collection method other text	The free-text field related to other for method related to cerebrospinal fluid (CSF) being collected	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Stroke	Stroke
C59000	Medication L-asparaginase current former take indicator	The indicator relating to whether the subject/participant has formerly or currently taken L-asparaginase	Exploratory	Prior and Concomitant Medications	False	Stroke	Stroke
C58732	Occupation primary after event other status text	The free-text field to capture other status indicating the participant's/subject's primary occupational status after the event	Supplemental	Return to Work	False	Stroke	Stroke
C58736	Needle gauge size type other text	The free-text field related to 'Needle gauge size type' specifying other text	Supplemental	Biospecimen Collection and Processing	False	Stroke	Stroke
C58791	Bypass revascularization surgery type	Type of bypass/revascularization surgery received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C54051	D-KEFS Color-Word Interference Test (CWIT) -Time To Complete 90 Duration	Duration of total time to complete for condition 1 and 2, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke
C58827	Hyperdense venous sinus or cortical vein specify text	Specify in text the hyperdense observations that were made	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
C55009	Specimen storage temperature value	The temperature value for the specimen being stored	Supplemental-Highly Recommended	Biospecimen Collection and Processing	False	Stroke	Stroke
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Stroke	Stroke
C54885	Subarachnoid hemorrhage ictus elapsed day count	Count of 24-hour intervals elapsed between onset of subarachnoid hemorrhage (SAH) ictus and intervention	Supplemental-Highly Recommended	SAH Surgical/Procedural Interventions	False	Stroke	Stroke
C58799	Osmotic therapy type	Type of osmotic therapy received by the participant/subject	Supplemental	Stroke Surgical and Procedural Interventions	False	Stroke	Stroke
C54059	D-KEFS Color-Word Interference Test (CWIT) -Condition 4 Raw Score	Raw score of inhibition/switching, as part of Delis-Kaplan Executive Function System (D-KEFS) Color-Word Interference Test (CWIT)	Supplemental	Color-Word Interference Test Delis-Kaplan Executive Function System (D-KEFS)	True	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.