CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1501 - 1525 of 1547

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1174-C13893	C13893	Imaging vessel angiography venous findings type	Indicates vessel angiography venous findings type	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1173-C13921	C13921	Imaging other carotid ultrasound result	Indicates other carotid ultrasound findings	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1179-C14406	C14406	Intra-arterial (IA) catheter-based reperfusion other hospital indicator	Indicates whether intra-arterial (IA) catheter-based reperfusion was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1153-C14145	C14145	Family history stroke youngest age value	If there is a family history of stroke, specify the youngest age an immediate family member (parent, sibling, child) suffered a stroke	Supplemental	Family History	False	Stroke	Stroke
F2838-C14001	C14001	Extracranial stenosis type	Indicates extracranial stenosis type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2464-C13230	C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Supplemental-Highly Recommended	Modified Rankin Scale (mRS)	True	Stroke	Stroke
F1162-C14237	C14237	Intracerebral hemorrhage presumed cause type	Indicates the presumed cause(s) of the intracerebral hemorrhage (ICH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1173-C13929	C13929	Intima media thickness (IMT) edge detection algorithm indicator	Indicates intima media thickness (IMT) edge detection algorithm use	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F2838-C14010	C14010	Intracranial stenosis collateral vessel anatomic site	Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1159-C14192	C14192	Symptom awaken discover indicator	Indicate if symptoms were discovered shortly upon awakening from sleep	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1162-C14250	C14250	Subarachnoid hemorrhage Sylvian fissure lateral part score	SAH Volume Scale (Hijdra) - Sylvian fissure lateral part left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1173-C13947	C13947	Imaging peak velocity measurement	Indicates peak velocity measurement (cm/sec)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14021	C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C14258	C14258	Perinatal stroke type	Indicates the type of clinical stroke suffered by the neonate	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F2838-C13902	C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1158-C14203	C14203	Emergency Medical Services (EMS) dispatch type code	For EMS systems where there is use of a designated stroke dispatch code, this item would capture what code was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1173-C13904	C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14033	C14033	Vasospasm vessel anatomic site	Indicates vasospasm vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C14268	C14268	Sophia time detection type	Time of detection of the stroke event in the participant/subject	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F2827-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2838-C13945	C13945	Imaging spectrum depth measurement	Indicates spectrum depth measurement (mm)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1158-C14622	C14622	Los Angeles Motor Scale (LAMS) - facial smile or grimace abnormal type	Type of abnormal facial smile or grimace observed during administration of the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1162-C13835	C13835	Graeb intraventricular hemorrhage (IVH) scale - total score	Indicates Graeb IVH Scale - total Score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1174-C13880	C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke

Displaying 1501 - 1525 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.