CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1451 - 1475 of 1547

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C14270	C14270	Sophia stroke vessels affected type	Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C14050	C14050	Hijdra scale total score	Indicates Hijdra scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14220	C14220	Clinical stroke tissue-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke
F1159-C14199	C14199	Stroke complication of medical/ surgical procedure or therapy likelihood type	Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)	Exploratory	Hospital Arrival/Admission	False	Stroke	Stroke
F1158-C14201	C14201	Emergency Medical Services (EMS) dispatch date and time	This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1172-C13871	C13871	Imaging perfusion computed tomography based identification core volume measurement	Indicates perfusion CT (PCT) based identification of core volume for all the methods used	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13478	C13478	Stroke Adjudication Worksheet - stroke TIA other symptoms type	The type of other identified cause(s) of ischemic stroke	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14231	C14231	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - small vessel grade	The grade of small vessel disease, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of small vessel disease (S)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1158-C14210	C14210	Los Angeles Motor Scale (LAMS) - grip result	Assess the grip using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1203-C14054	C14054	Stroke Adjudication Worksheet - neuroimaging multiple CT stroke finding indicator	Whether the multiple brain CTs separated in time was positive for this stroke event	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1174-C13948	C13948	Imaging mean blood velocity measurement	Indicates mean velocity measurement (cm/sec) of blood	Exploratory	Vessel Imaging Angiography	False	Stroke	Stroke
F1162-C14244	C14244	Subarachnoid hemorrhage etiology type	Indicates the presumed cause(s) of the subarachnoid hemorrhage (SAH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13830	C13830	Microbleed by location count	Indicates count of Microbleeds in each location	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F2834-C14282	C14282	Do not resuscitate or intubate (DNR or DNI) indicator	Indicates if participant/ subject was made DNR/DNI (Do not resuscitate or Do not intubate) during hospitalization	Supplemental	Palliative/Comfort Care and End of Life Issues	False	Stroke	Stroke
F1169-C55345	C55345	Microdialysis cerebral probe number	The number of probes used for cerebral microdialysis specimens	Exploratory	Biospecimen Collection and Processing	False	Stroke	Stroke
F1162-C14252	C14252	Subarachnoid hemorrhage suprasellar cistern score	SAH Volume Scale (Hijdra) - Suprasellar cistern left score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13838	C13838	Hijdra scale anatomic site	The site for the Hijdra scale assessment (the Hijdra et al. (1990) described a method to grade the amount of blood in the SA space and ventricles on CT)	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1178-C14632	C14632	Antiplatelet agent in hospital type	Type(s) of antiplatelet agents received during the acute hospital stay	Supplemental-Highly Recommended	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1197-C13190	C13190	Walking time duration	Time in seconds to complete the central 4 meters of a 6 meter line at a comfortable walking pace	Supplemental-Highly Recommended	Walking Speed	False	Stroke	Stroke
F1162-C14260	C14260	Sebire-International Pediatric Stroke Study (IPSS) - sub type	The subtype as related to the Sebire/International Pediatric Stroke Study (IPSS) classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13849	C13849	Bicaudate index score	Indicates Bicaudate index	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1159-C14190	C14190	Stroke symptoms discover location type	Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered	Supplemental	Hospital Arrival/Admission	False	Stroke	Stroke
F1178-C18987	C18987	Extracranial venous thromboembolism prophylaxis other text	The free-text field related to 'Extracranial venous thromboembolism prophylaxis type', specifying other text	Supplemental	Antithrombotics and Risk Factor Controlling Medications	False	Stroke	Stroke
F1172-C13863	C13863	Imaging magnetic resonance based identification perfusion defect threshold type	Indicates MR based identification of perfusion defect threshold type used to delineate abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke

Displaying 1451 - 1475 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.