CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

Displaying 1401 - 1425 of 1547

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1159-C14191	C14191	Last known to be well date and time	The date and time at which the patient was last known to be without the signs and symptoms of the current stroke or at his or her prior baseline. This element captures the date and time for last known well that is determined to be the most accurate after all the data have been evaluated and additional witnesses interviewed (if applicable)	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
F1171-C13770	C13770	Imaging acute lesion count	Indicates acute lesion count	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1164-C13516	C13516	Hand strength findings result	Assess hand strength/ motor power on the affected side using the Scandinavian Stroke Scale	Exploratory	Physical/Neurological Exam	False	Stroke	Stroke
F2838-C14056	C14056	Imaging depth measurement	The depth measurement (mm) of imaging	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2827-C14011	C14011	Intracranial stenosis present indicator	Indicates presence of intracranial stenosis	Exploratory	Aneurysm Location and Dimensions	False	Stroke	Stroke
F2838-C13953	C13953	Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up indicator	Indicates the consensus on grading intracranial flow obstruction (COGIF) follow-up	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1173-C13947	C13947	Imaging peak velocity measurement	Indicates peak velocity measurement (cm/sec)	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1159-C14625	C14625	Hospital arrival date and time	Date (and time, if applicable and known) the participant/subject arrived at the hospital	Supplemental-Highly Recommended	Hospital Arrival/Admission	False	Stroke	Stroke
F1179-C14406	C14406	Intra-arterial (IA) catheter-based reperfusion other hospital indicator	Indicates whether intra-arterial (IA) catheter-based reperfusion was initiated for the participant/subject at an outside hospital	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1158-C14202	C14202	Emergency Medical Services (EMS) dispatch priority type	For EMS systems where there is prioritizing of calls, this item would capture what level of prioritization was assigned to the transport at dispatch	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14001	C14001	Extracranial stenosis type	Indicates extracranial stenosis type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2464-C13230	C13230	Modified Rankin Scale (mRS) Score	The overall modified Rankin Scale (mRS) score assigned to the participant/ subject	Supplemental-Highly Recommended	Modified Rankin Scale (mRS)	True	Stroke	Stroke
F1171-C13797	C13797	Modified Scheltens scale occipital caps score	Indicates Modified Scheltens scale - Occipital caps score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13904	C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14211	C14211	Los Angeles Motor Scale (LAMS) - arm strength result	Assess the arm strength using the Los Angeles Motor Scale (LAMS). Check all that apply	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F1155-C14151	C14151	Pregnancy medical terminations count	Number of medical terminations (abortions)	Supplemental-Highly Recommended	Pregnancy and Perinatal History	False	Stroke	Stroke
F2838-C14010	C14010	Intracranial stenosis collateral vessel anatomic site	Indicates intracranial stenosis collateral vessel(s)	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13880	C13880	Digital Subtraction Angiography (DSA) site of access anatomic site	The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13805	C13805	Age-related white matter changes (ARWMC) scale - basal ganglia score	The basal ganglia score related to age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13912	C13912	Imaging plaque composition result	Indicates plaque composition	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14021	C14021	Sickle cell disease blood flow velocity measurement	The velocity measurement blood flow relative to sickle cell disease	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1162-C14270	C14270	Sophia stroke vessels affected type	Vessel(s) affected by the stroke event. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C14050	C14050	Hijdra scale total score	Indicates Hijdra scale - total Score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14220	C14220	Clinical stroke tissue-based definition indicator	Indicates whether the patient suffered a clinical stroke according to the following, "tissue-based" definition: Symptomatic stroke is a sudden focal neurological deficit, of any duration, due to focal brain, spinal cord, or retinal infarction or hemorrhage. Infarction or hemorrhage may be demonstrated either 1) directly by imaging/laboratory/pathologic examination in patients with symptom duration less than 24 hours, or 2) inferred by symptoms lasting >= 24 hours (or fatal within 24 hours) that cannot be attributed to another cause	Supplemental-Highly Recommended	Stroke Types and Subtypes	False	Stroke	Stroke

Displaying 1401 - 1425 of 1547

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.