CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1401 - 1425 of 1543
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14259 Pediatric Stroke Classification (PSC) - sub type

Pediatric Stroke Classification (PSC) system (Wraige, 2005) subtype

Supplemental Stroke Types and Subtypes Stroke Stroke
C13848 Hydrocephalus present indicator

Indicates if hydrocephalus is present

Supplemental Parenchymal Imaging Stroke Stroke
C13899 Imaging probe type text

The text describing the type of imaging probe

Supplemental Vessel Imaging Transcranial Stroke Stroke
C18986 Extracranial venous thromboembolism other text

The free-text field related to 'Extracranial venous thromboembolism type', specifying other text

Supplemental Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13862 Imaging magnetic resonance based identification perfusion defect volume type

Indicates MR based identification of perfusion defect volume type

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13473 Stroke Adjudication Worksheet - not meet WHO definition indicator

The indicator of whether the event is not a stroke according to the WHO definition

Supplemental Stroke Adjudication Form Stroke Stroke
C14269 Sophia signs symptoms presentation type

Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14049 Imaging lesion absolute threshold amount text

Indicates acute lesion threshold absolute amount

Supplemental Parenchymal Imaging Stroke Stroke
C14219 Clinical stroke time-based definition indicator

Indicates whether the patient suffered a clinical stroke according to the following, "time-based" definition: Stroke is a sudden focal neurological deficit of presumed vascular origin lasting >= 24 hours (or fatal within 24 hours)

Supplemental-Highly Recommended Stroke Types and Subtypes Stroke Stroke
C13870 Imaging perfusion computed tomography based identification core method type

Indicates perfusion CT (PCT) based identification of core method used for penumbra calculation

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C13481 Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site

The anatomic location(s) of the hemorrhagic transformation during ischemic infarction

Supplemental Stroke Adjudication Form Stroke Stroke
C19077 Sophia imaging stroke composite diagnosis method other text

The free-text field related to 'Imaging stroke composite diagnosis method type' specifying other text. Imaging method at detection. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification

Supplemental Stroke Types and Subtypes Stroke Stroke
C14230 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - atherothrombotic grade

The grade of atherothrombosis, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of atherosclerosis (A)

Supplemental Stroke Types and Subtypes Stroke Stroke
C13878 Imaging perfusion computed tomography based identification penumbra volume measurement

Indicates PCT based identification of penumbra volume for all the methods selected

Supplemental Perfusion and Penumbral Imaging Stroke Stroke
C18885 Stroke Adjudication Worksheet - stroke TIA other symptoms other text

The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA other symptoms type' specifying other text. The type of other identified cause(s) of ischemic stroke

Supplemental Stroke Adjudication Form Stroke Stroke
C14238 Intraventricular hemorrhage presumed cause type

Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed

Supplemental Stroke Types and Subtypes Stroke Stroke
C13829 Microbleed anatomic site

Describes microbleed location

Supplemental Parenchymal Imaging Stroke Stroke
C55344 Microdialysis cerebral probe location anatomic site

Free-text field to describe the location of the probe for cerebral microdialysis specimens

Exploratory Biospecimen Collection and Processing Stroke Stroke
C14251 Subarachnoid hemorrhage basal part score

SAH Volume Scale (Hijdra) - Basal part left score

Supplemental Stroke Types and Subtypes Stroke Stroke
C13837 Modified Fisher scale grade

Indicates modified Fisher Scale grade

Supplemental Parenchymal Imaging Stroke Stroke
C14409 Intra-sinus intervention groin puncture date and time

Date (and time, if applicable and known) of groin puncture on the participant/ subject for intra-sinus intervention

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13904 Imaging interpretation offsite media type

Indicates imaging offsite media type

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14211 Los Angeles Motor Scale (LAMS) - arm strength result

Assess the arm strength using the Los Angeles Motor Scale (LAMS). Check all that apply

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C14151 Pregnancy medical terminations count

Number of medical terminations (abortions)

Supplemental-Highly Recommended Pregnancy and Perinatal History Stroke Stroke
C14014 Intracranial stenosis other criteria result

Other criteria for intracranial stenosis

Supplemental Vessel Imaging Transcranial Stroke Stroke
Displaying 1401 - 1425 of 1543

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.