CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1376 - 1400 of 1547
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14279 Comfort care indicator

Indicates if there is any evidence that the participant's/ subject's care was restricted to "Comfort Measures Only". Commonly referred to as "palliative care" in the medical community and "comfort care" by the general public. Palliative care includes attention to the psychological and spiritual needs of the patient and support for the dying patient and the patient's family

Supplemental Palliative/Comfort Care and End of Life Issues Stroke Stroke
C14630 Anticoagulant agent in hospital type

Type(s) of anticoagulant agents received during the acute hospital stay

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C14190 Stroke symptoms discover location type

Where was the patient when stroke was detected or when symptoms were discovered? Indicate the type of facility or setting from which the patient came from when stroke like symptoms were discovered

Supplemental Hospital Arrival/Admission Stroke Stroke
C13835 Graeb intraventricular hemorrhage (IVH) scale - total score

Indicates Graeb IVH Scale - total Score

Supplemental Parenchymal Imaging Stroke Stroke
C18985 Antiplatelet agent in hospital other text

The free-text field related to 'Antiplatelet agent in hospital type', specifying other text

Supplemental-Highly Recommended Antithrombotics and Risk Factor Controlling Medications Stroke Stroke
C13468 Stroke Adjudication Worksheet - symptom duration

How long the symptom(s) experienced around the time of the stroke event lasted

Supplemental Stroke Adjudication Form Stroke Stroke
C14199 Stroke complication of medical/ surgical procedure or therapy likelihood type

Was stroke a complication of medical or surgical procedure or therapy? This element attempts to capture if the stroke event was related to a medical or surgical procedure/ therapy the patient recently received (e.g., multifocal emboli after cardiac bypass surgery)

Exploratory Hospital Arrival/Admission Stroke Stroke
C52700 Hypercoagulable disorder type text

The free-text field related to the type of hypercoagulable disorder

Supplemental Medical History Stroke Stroke
C14201 Emergency Medical Services (EMS) dispatch date and time

This refers to the date when Emergency Medical Services (EMS) transport (either by ground or air) leaves the station to pick up the patient for transport

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13843 Hemorrhagic transformation imaging type

Describes imaging type

Supplemental Parenchymal Imaging Stroke Stroke
C13476 Stroke Adjudication Worksheet - stroke TIA symptoms type

The type of symptoms/conditions that were present and relevant for ischemic stroke subtype

Supplemental Stroke Adjudication Form Stroke Stroke
C14210 Los Angeles Motor Scale (LAMS) - grip result

Assess the grip using the Los Angeles Motor Scale (LAMS)

Supplemental Pre-Hospital/Emergency Medical Service (EMS) Course Stroke Stroke
C13900 Imaging probe frequency

Indicates imaging probe frequency (Hz)

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14233 Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - other grade

The grade of other cause, as part of the atherosclerosis small-vessel disease cardiac source other cause (ASCO) system. Patients are evaluated for the predefined phenotype of other cause (O)

Supplemental Stroke Types and Subtypes Stroke Stroke
C13928 Intima media thickness (IMT) electronic caliper indicator

Indicates intima media thickness (IMT) electronic caliper use

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C13811 Acute hematoma present indicator

Indicates presence of acute hematoma

Supplemental Parenchymal Imaging Stroke Stroke
C14029 Vasospasm posterior ratio result

Indicates vasospasm posterior ratio result

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13750 Imaging study ID number

Unique identification number assigned to the study or assessment session

Supplemental Parenchymal Imaging Stroke Stroke
C13943 Imaging B-mode result

Indicates B mode

Supplemental Vessel Imaging Transcranial Stroke Stroke
C14246 Fisher scale

Fisher scale characterizes the appearance of subarachnoid hemorrhage (SAH) on imaging

Supplemental Stroke Types and Subtypes Stroke Stroke
C13936 Intima media thickness (IMT) artery type

Indicates intima media thickness (IMT) artery for diameter

Supplemental Vessel Carotid Ultrasound Stroke Stroke
C14405 Intervention mechanical or pharmacological end time

The end time for mechanical, pharmacologic intervention for the participant/subject

Supplemental Thrombolytic/Reperfusion Therapies Stroke Stroke
C13821 Spot sign positive indicator

The positive indicator for computed tomogram angiography (CTA) 'spot sign' which describes foci of intralesional enhancement associated with hematoma expansion in primary intracerebral hemorrhage patients

Supplemental Parenchymal Imaging Stroke Stroke
C14051 High intensity transient signal hits end time

Indicates high intensity transient signal hits end time

Supplemental Vessel Imaging Transcranial Stroke Stroke
C13768 Imaging additional vascular result

Indicates additional vascular imaging findings

Supplemental Parenchymal Imaging Stroke Stroke
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.