CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1179-C14399	C14399	IV tPA not started reason	If NO Intravenous Tissue Plasminogen Activator (IV tPA) was initiated, documents reasons in the medical record for why no IV tPA was started for the participant/subject at your hospital. Were one or more of the following reasons for not administering IV thrombolytic therapy at this hospital explicitly documented by a physician, advance practice nurse, or physician assistant's notes in the medical record?	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1164-C13524	C13524	Carotid bruit indicator	Indicator of whether the participant/subject has a carotid bruit upon examination	Supplemental	Physical/Neurological Exam	False	Stroke	Stroke
F1158-C14200	C14200	Emergency Medical Services (EMS) call received date and time	Date and time first call was received by the Emergency Medical Services (EMS) dispatcher OR date and time of EMS vehicle dispatch as recorded on the EMS trip sheet or other similar documentation	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14003	C14003	Imaging brain death present indicator	Indicates presence of brain death	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1171-C13795	C13795	Modified Scheltens scale occipital score	Indicates modified Scheltens scale - occipital score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14407	C14407	Intra-sinus intervention indicator	Indicates whether the participant/subject received any intra-sinus (i.e., for cerebral venous thrombosis) intervention	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13902	C13902	Imaging acute stroke study type	Indicates imaging acute stroke study type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14209	C14209	Los Angeles Motor Scale (LAMS) - facial smile or grimace result	Assess the facial smile/ grimace using the Los Angeles Motor Scale (LAMS)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14012	C14012	Intracranial stenosis peak systolic velocity (PSV) criterion result	Indicates intracranial stenosis peak systolic velocity (PSV) criterion	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13751	C13751	Imaging acquisition reason	Describes why the imaging study was performed	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13803	C13803	Age-related white matter changes (ARWMC) scale - temporal score	The temporal score for age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13910	C13910	Imaging plaque severity grade	Indicates plaque severity grade	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14024	C14024	Vasospasm criterion value	Indicates vasospasm criterion value	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F2838-C13904	C13904	Imaging interpretation offsite media type	Indicates imaging offsite media type	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13890	C13890	Qureshi angiographic occlusions category	The score based on scheme that categorizes patients with ischemic stroke based on findings observed on initial angiography (the Qureshi angiographic occlusions scale score)	Supplemental	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13811	C13811	Acute hematoma present indicator	Indicates presence of acute hematoma	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13919	C13919	Imaging percent stenosis criterion type	The criteria used to find indicate stenosis	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1171-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1163-C14627	C14627	Stroke initial residence or discharge destination type	Participant's/ subject's discharge destination. The discharge destination is defined as where the patient is going for post-acute stay	Supplemental-Highly Recommended	Hospital Discharge	False	Stroke	Stroke
F1172-C13869	C13869	Imaging perfusion computed tomography based identification core value result	Result of perfusion CT (PCT) based identification of core value of abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13480	C13480	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation indicator	The indicator of ischemic infarction with hemorrhagic transformation being present	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C19076	C19076	Sophia signs symptoms presentation neurological signs other text	The free-text field related to 'Sophia signs and symptoms on presentation type' specifying other text. Signs and symptoms exhibited by the neonate at presentation. This variable is included along with 8 other classifying variables and clinical context in the Sophia Composite Diagnostic Classification	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1162-C14228	C14228	Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) - standard sub type	Ischemic Stroke Subtype based on the Baltimore-Washington Cooperative Young Stroke Study (BWCYSS) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13877	C13877	Imaging perfusion computed tomography based identification penumbra method type	Indicates PCT based identification of penumbra method used for penumbra calculation	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C18884	C18884	Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms other text	The free-text field related to 'Stroke Adjudication Worksheet - stroke TIA cardioembolic source symptoms type' specifying other text. The type of symptoms/conditions that were present and relevant for cardioembolic source	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.