CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Subdomain Name

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1162-C14266	C14266	Sophia vessel sub type	Sophia classification of stroke subtype by vessel affected	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13853	C13853	Tumor anatomic site	Specifies location of tumor	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C13833	C13833	Graeb intraventricular hemorrhage (IVH) scale - third ventricle score	Indicates Graeb IVH Scale - Third ventricle score	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13867	C13867	Imaging magnetic resonance based identification penumbra volume measurement	Indicates MR based identification of penumbra volume for all the methods selected	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13474	C13474	Stroke Adjudication Worksheet - TIA indicator	The indicator whether this event a transient ischemic attack (TIA)	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C18910	C18910	Intraventricular hemorrhage presumed cause other text	The free-text field related to 'Intraventricular hemorrhage presumed cause type' specifying other text. Indicates the presumed cause(s) of the intraventricular hemorrhage (IVH). Multiple responses are allowed	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C18888	C18888	Imaging acquisition reason other text	The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1162-C14225	C14225	Trial of ORG 10172 in Acute Stroke Treatment (TOAST) - ischemic stroke sub type	Ischemic Stroke Subtype based on the Trial of ORG 10172 in Acute Stroke Treatment (TOAST) Classification System	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1172-C13875	C13875	Imaging perfusion computed tomography based identification perfusion defect value	Value of PCT based identification of perfusion defect abnormality	Supplemental	Perfusion and Penumbral Imaging	False	Stroke	Stroke
F1203-C13482	C13482	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation etiology type	The type of etiology of the hemorrhage	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1182-C14290	C14290	Location post-acute stroke discharge type	Indicates the participant's/subject's location of acute hospital discharge for the index stroke/transient ischemic attack (TIA)	Supplemental	Rehabilitation Therapies	False	Stroke	Stroke
F1162-C14235	C14235	Atherosclerosis small vessel disease cardiac source other cause (ASCO) system - sub type	Stroke Subtype as defined by the A-S-C-O pattern (e.g., A1-S3-C1-O3)	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1203-C18886	C18886	Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic other text	The free-text field related to 'Stroke Adjudication Worksheet - ischemic infarction hemorrhagic transformation anatomic site' specifying other text. The anatomic location(s) of the hemorrhagic transformation during ischemic infarction	Supplemental	Stroke Adjudication Form	False	Stroke	Stroke
F1162-C14248	C14248	Ogilvy subarachnoid hemorrhage grade	Ogilvy comprehensive grading system for classifying severity of SAH. In the system, 1 point is assigned for Hunt and Hess Grade 4 or 5, Fisher Scale score of 3 or 4, aneurysm size greater than 10 mm, patient age older than 50 years, and if the lesion is a giant (>= 25 mm) posterior circulation lesion. By adding the total points, the 5-point grading system is obtained	Supplemental	Stroke Types and Subtypes	False	Stroke	Stroke
F1171-C13834	C13834	Graeb intraventricular hemorrhage (IVH) scale - fourth ventricle score	Indicates Graeb IVH Scale - Fourth ventricle score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1181-C14275	C14275	Smoking cessation treatment type	If the participant/subject received anti-smoking/ smoking cessation treatment, describes the type(s) of treatment received. The interventions can be directed at the caregiver if the participant/subject is unable to comprehend	Supplemental	Lifestyle Modification Therapies	False	Stroke	Stroke
F1171-C13794	C13794	Modified Scheltens scale parietal score	Indicates Modified Scheltens scale - Parietal score	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1179-C14411	C14411	Investigational or experimental protocol for thrombolysis indicator	Whether medical records suggest some kind of investigational thrombolytic protocol was used during provision of care	Supplemental	Thrombolytic/Reperfusion Therapies	False	Stroke	Stroke
F1173-C13901	C13901	Imaging patient type	Indicates imaging patient type	Supplemental	Vessel Carotid Ultrasound	False	Stroke	Stroke
F1158-C14208	C14208	Pre-hospital neurological impairment scale indicator	Whether a pre-hospital neurologic impairment scale screen was documented by EMS personnel. Pre-hospital neurologic impairment scales are defined as published validated scales or those required by state EMS agencies (e.g., GCS for suspected hemorrhagic stroke or any stroke with impaired consciousness, Los Angeles Motor Scale, etc.)	Supplemental	Pre-Hospital/Emergency Medical Service (EMS) Course	False	Stroke	Stroke
F2838-C14007	C14007	Imaging Transcranial Doppler (TCD) findings result type	Indicates Transcranial Doppler (TCD) findings	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke
F1174-C13750	C13750	Imaging study ID number	Unique identification number assigned to the study or assessment session	Supplemental-Highly Recommended	Vessel Imaging Angiography	False	Stroke	Stroke
F1171-C13802	C13802	Age-related white matter changes (ARWMC) scale - parieto-occipital score	The parieto-occipital score age-related white matter changes (ARWMC) scale	Supplemental	Parenchymal Imaging	False	Stroke	Stroke
F1173-C13909	C13909	Imaging plaque surface type	Indicates plaque surface type	Supplemental-Highly Recommended	Vessel Carotid Ultrasound	False	Stroke	Stroke
F2838-C14015	C14015	High intensity transient signal hits count	Numeric value counting the number of high intensity transient signals hits	Supplemental	Vessel Imaging Transcranial	False	Stroke	Stroke

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.